Caring for a Person With Dementia on the Margins of Long-Term Care: A Perspective on Burden From 8 European Countries.

[1]  D. Challis,et al.  People with dementia and carer preferences for home support services in early-stage dementia , 2018, Aging & mental health.

[2]  S. Zwakhalen,et al.  Psychological well-being over time among informal caregivers caring for persons with dementia living at home , 2017, Aging & mental health.

[3]  R. Woods,et al.  What are the essential features of resilience for informal caregivers of people living with dementia? A Delphi consensus examination , 2017, Aging & mental health.

[4]  S. Zarit,et al.  Resistiveness to care during assistance with activities of daily living in non-institutionalized persons with dementia: associations with informal caregivers’ stress and well-being , 2016, Aging & mental health.

[5]  J. Haro,et al.  Direct and indirect costs and resource use in dementia care: A cross-sectional study in patients living at home. , 2016, International journal of nursing studies.

[6]  D. Challis,et al.  Patient and carer preferences for home support services in early stage dementia , 2016 .

[7]  S. Zwakhalen,et al.  Informal dementia care: Consequences for caregivers' health and health care use in 8 European countries. , 2015, Health policy.

[8]  D. Brooker,et al.  Women and Dementia: A Global Research Review , 2015 .

[9]  Gabriele Meyer,et al.  The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study. , 2015, Journal of advanced nursing.

[10]  Kai Saks,et al.  Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study. , 2015, Journal of advanced nursing.

[11]  Roy W Jones,et al.  Dependence in Alzheimer's disease and service use costs, quality of life, and caregiver burden: The DADE study , 2015, Alzheimer's & Dementia.

[12]  M. Canavan,et al.  Effectiveness of educational interventions for informal caregivers of individuals with dementia residing in the community: systematic review and meta‐analysis of randomised controlled trials , 2015, International journal of geriatric psychiatry.

[13]  S. Ryu,et al.  Effects of social supports on burden in caregivers of people with dementia , 2014, International Psychogeriatrics.

[14]  H. Duivenvoorden,et al.  Multivariate models of subjective caregiver burden in dementia: A systematic review , 2014, Ageing Research Reviews.

[15]  D. Aarsland,et al.  The use and costs of formal care in newly diagnosed dementia: a three-year prospective follow-up study. , 2014, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[16]  R. Adelman,et al.  Caregiver burden: a clinical review. , 2014, JAMA.

[17]  B. Vellas,et al.  Analysis of burden in caregivers of people with Alzheimer’s disease using self-report and supervision hours , 2014, The journal of nutrition, health & aging.

[18]  L. Calvó-Perxas,et al.  Three-year trajectories of caregiver burden in Alzheimer's disease. , 2014, Journal of Alzheimer's disease : JAD.

[19]  K. Buckwalter,et al.  Differences between dementia caregivers who are users and nonusers of community services. , 2013, Public health nursing.

[20]  H. Brodaty,et al.  Moving in: adjustment of people living with dementia going into a nursing home and their families , 2013, International Psychogeriatrics.

[21]  John Bond,et al.  The worldwide economic impact of dementia 2010 , 2013, Alzheimer's & Dementia.

[22]  Roy W Jones,et al.  The GERAS Study: a prospective observational study of costs and resource use in community dwellers with Alzheimer's disease in three European countries--study design and baseline findings. , 2013, Journal of Alzheimer's disease : JAD.

[23]  H. Brodaty,et al.  Meta-analysis of nonpharmacological interventions for neuropsychiatric symptoms of dementia. , 2012, The American journal of psychiatry.

[24]  C. Dirksen,et al.  Predictive Factors for the Objective Burden of Informal Care in People With Dementia: A Systematic Review , 2012, Alzheimer disease and associated disorders.

[25]  J. Gaugler,et al.  The problem with “problem behaviors”: a systematic review of the association between individual patient behavioral and psychological symptoms and caregiver depression and burden within the dementia patient–caregiver dyad , 2012, International Psychogeriatrics.

[26]  Gabriele Meyer,et al.  A European study investigating patterns of transition from home care towards institutional dementia care: the protocol of a RightTimePlaceCare study , 2012, BMC Public Health.

[27]  K. Chou,et al.  Caregiver support groups in patients with dementia: a meta‐analysis , 2011, International journal of geriatric psychiatry.

[28]  M. Prince,et al.  Chronic diseases among older people and co-resident psychological morbidity: a 10/66 Dementia Research Group population-based survey , 2011, International Psychogeriatrics.

[29]  D. Morgan,et al.  The Positive Aspects of the Caregiving Journey With Dementia: Using a Strengths-Based Perspective to Reveal Opportunities , 2010 .

[30]  J. Vilalta-Franch,et al.  Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: an exploratory comparative design. , 2010, International journal of nursing studies.

[31]  B. Winblad,et al.  Relative importance of patient disease indicators on informal care and caregiver burden in Alzheimer's disease , 2010, International Psychogeriatrics.

[32]  B. Vellas,et al.  Does cognitive impairment influence burden in caregivers of patients with Alzheimer's disease? , 2009, Journal of Alzheimer's disease : JAD.

[33]  C. Lendon,et al.  Determinants of burden in those who care for someone with dementia , 2008, International journal of geriatric psychiatry.

[34]  T. Lawrence,et al.  Carer burden in dementia. , 2009, The Ceylon medical journal.

[35]  Joost Dekker,et al.  Community based occupational therapy for patients with dementia and their care givers: randomised controlled trial , 2006, BMJ : British Medical Journal.

[36]  D. Molloy,et al.  Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors , 2005, International Psychogeriatrics.

[37]  M. R. Murphy,et al.  Are there Sex Differences in Emotional and Biological Responses in Spousal Caregivers of Patients with Alzheimer’s Disease? , 2004, Biological research for nursing.

[38]  Shelby D Reed,et al.  A Multinational Review of Recent Trends and Reports in Dementia Caregiver Burden , 2004, Alzheimer disease and associated disorders.

[39]  L. Nichols,et al.  Primary care interventions for dementia caregivers: 2-year outcomes from the REACH study. , 2003, The Gerontologist.

[40]  Henry Brodaty,et al.  Meta‐Analysis of Psychosocial Interventions for Caregivers of People with Dementia , 2003, Journal of the American Geriatrics Society.

[41]  M. Pinquart,et al.  Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. , 2003, The journals of gerontology. Series B, Psychological sciences and social sciences.

[42]  N. Chappell,et al.  Burden and well-being among caregivers: examining the distinction. , 2002, The Gerontologist.

[43]  Kristine Yaffe,et al.  Patient and caregiver characteristics and nursing home placement in patients with dementia. , 2002, JAMA.

[44]  Patricia Langenberg,et al.  Gender differences in burden and depression among informal caregivers of demented elders in the community , 2002, International journal of geriatric psychiatry.

[45]  D McDaid,et al.  Estimating the costs of informal care for people with Alzheimer's disease: methodological and practical challenges , 2001, International journal of geriatric psychiatry.

[46]  K. Bandeen-Roche,et al.  Appendix 1 , 2019, European Journal of Human Genetics.

[47]  J. Cummings,et al.  Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. , 2000, The Journal of neuropsychiatry and clinical neurosciences.

[48]  R. Hébert,et al.  Reliability, Validity and Reference Values of the Zarit Burden Interview for Assessing Informal Caregivers of Community-Dwelling Older Persons with Dementia* , 2000, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[49]  Andy P. Field,et al.  Discovering Statistics Using SPSS , 2000 .

[50]  Sube Banerjee,et al.  EUROCARE: a cross‐national study of co‐resident spouse carers for people with Alzheimer's disease: I—factors associated with carer burden , 1999, International journal of geriatric psychiatry.

[51]  D. Coakley,et al.  BEHAVIOUR DISTURBANCE AND OTHER PREDICTORS OF CARER BURDEN IN ALZHEIMER'S DISEASE , 1997, International journal of geriatric psychiatry.

[52]  S. Gambert,et al.  Women and dementia , 1991, Neurology.

[53]  D. Molloy,et al.  Reliability of a Standardized Mini-Mental State Examination compared with the traditional Mini-Mental State Examination. , 1991, The American journal of psychiatry.

[54]  A. Barusch,et al.  Gender differences in caregiving: why do wives report greater burden? , 1989, The Gerontologist.

[55]  G. Alexopoulos,et al.  Cornell scale for depression in dementia , 1988, Biological Psychiatry.

[56]  C. Mackenzie,et al.  A new method of classifying prognostic comorbidity in longitudinal studies: development and validation. , 1987, Journal of chronic diseases.

[57]  Sydney Katz.  Assessing Self‐maintenance: Activities of Daily Living, Mobility, and Instrumental Activities of Daily Living , 1983, Journal of the American Geriatrics Society.

[58]  S. Zarit,et al.  Relatives of the impaired elderly: correlates of feelings of burden. , 1980, The Gerontologist.

[59]  S. Folstein,et al.  "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. , 1975, Journal of psychiatric research.

[60]  R. Weiss.  The provisions of social relationships , 1974 .