Access Ability: Policies, Practices, and Representations of Disability Online

ii Acknowledgements iv Introduction Media Studies, Internet Studies, and the Intervention of Disability 1 Chapter 1 The Public, Media, & Access: Accessibility as a Model for Media Access 45 Chapter 2 Convergence and Difference: The Sociohistorical Context of the Web and Disability 111 Chapter 3 Web Accessibility 1.0: Forming Policies of Form 151 Chapter 4 Changing Content: The Implementation of Accessibility Policies 189 Chapter 5 Web (Accessibility) 2.0: Policies for Participation and Varied Uses 229 Chapter 6 Webbed Accessibility: Networked Practices in a Disability Blogosphere 274 Conclusion Circulating Media through Circuits of Access 332 Appendix 1: Timeline of U.S. Web Accessibility History 350 Appendix 2: Ethnographic Methods 356 Appendix 3: Interview Questions 370

[1]  Shani Orgad,et al.  How can researchers make sense of the issues involved in collecting and interpreting online and offline data , 2009 .

[2]  Elaine Gerber,et al.  The Benefits of and Barriers to Computer use for Individuals who are Visually Impaired , 2003 .

[3]  Catherine Easton,et al.  The Web Content Accessibility Guidelines 2.0: An Analysis of Industry Self-regulation , 2011, Int. J. Law Inf. Technol..

[4]  Gregory John Downey,et al.  Closed Captioning: Subtitling, Stenography, and the Digital Convergence of Text with Television , 2008 .

[5]  Jurgita Matačinskaitė,et al.  The Internet as a “Public Sphere” , 2011 .

[6]  K. Blair,et al.  Feminist Cyberscapes: Mapping Gendered Academic Spaces , 2000 .

[7]  J. Barlow.  dot.con. The Greatest Story Ever Sold. , 2002 .

[8]  Mark Deuze,et al.  Participation, Remediation, Bricolage: Considering Principal Components of a Digital Culture , 2006, Inf. Soc..

[9]  Sut Jhally,et al.  The struggle over media literacy , 1998 .

[10]  Jonathan Lazar,et al.  One year older, but not necessarily wiser: an evaluation of homepage accessibility problems over time , 2006, Universal Access in the Information Society.

[11]  James Ledbetter.  Made Possible By...: The Death of Public Broadcasting in the United States , 1997 .

[12]  I. C. A. Riley.  Disability and the Media: Prescriptions for Change , 2012 .

[13]  Nancy Fraser.  Rethinking the Public Sphere: A Contribution to the Critique of Actually Existing Democracy , 2016, Public Space Reader.

[14]  G. Valentine,et al.  ‘AN UMBILICAL CORD TO THE WORLD’ , 2009 .

[15]  Gregg C. Vanderheiden,et al.  Web Content Accessibility Guidelines (WCAG) 2.0 , 2008 .

[16]  Jo-Ann Fiske.  Understanding Popular Culture , 1989 .

[17]  P. Aufderheide.  Public television and the public sphere , 1991 .

[18]  Makayla Lewis.  Cerebral palsy and online social networks , 2010, ASSETS '10.

[19]  Alex B. Long,et al.  Introducing the New and Improved Americans with Disabilities Act: Assessing the ADA Amendments Act of 2008 , 2008 .

[20]  G. Lovink.  Zero comments: blogging and critical internet culture , 2008 .

[21]  B. Kirkpatrick.  Bringing Blue Skies Down to Earth , 2012 .

[22]  ラン ラン,et al.  Interview ラン・ラン , 2014 .

[23]  W. Aspray,et al.  Inventing the internet , 1997, IEEE Spectrum.

[24]  Marcy M. Allen,et al.  The Ever-Shifting Internet Population: A New Look At Internet Access and the Digital Divide, Amanda Lenhart (Ed.). The Pew Internet & American Life Project, Washington, DC (2003) , 2005, Gov. Inf. Q..

[25]  Chris Hables Gray,et al.  The cyborg handbook , 1995 .

[26]  Jonathan Lazar,et al.  Improving web accessibility: a study of webmaster perceptions , 2004, Comput. Hum. Behav..

[27]  Celeste M. Condit,et al.  The rhetorical limits of polysemy , 1989 .

[28]  Mark Warschauer,et al.  Reconceptualizing the Digital Divide , 2002, First Monday.

[29]  John S. Schuchman,et al.  Hollywood Speaks: Deafness and the Film Entertainment Industry. , 1990 .

[30]  David J. Gunkel.  Second Thoughts: Toward a Critique of the Digital Divide , 2003, New Media Soc..

[31]  Laura Dianne Stanley,et al.  Beyond Access: Psychosocial Barriers to Computer Literacy Special Issue: ICTs and Community Networking , 2003, Inf. Soc..

[32]  Jonathan Lazar,et al.  User-Centered Web Development , 2001 .

[33]  Clare Morrell,et al.  Access denied , 2007, Nature Reviews Microbiology.

[34]  D. Larson,et al.  Machine as Messiah: Cyborgs, Morphs, and the American Body Politic , 1997 .

[35]  Wendy Hsu,et al.  On Digital Ethnography , 2014 .

[36]  Karen Peltz Strauss.  A New Civil Right: Telecommunications Equality for Deaf and Hard of Hearing Americans , 2006 .

[37]  Laurie J Ouellette.  Viewers Like You: How Public TV Failed the People , 2002 .

[38]  Lisa J. Servon,et al.  Community Technology Centers and the Urban Technology Gap , 2001 .

[39]  M. Poster.  The Second Media Age , 1994 .

[40]  Gregg C. Vanderheiden,et al.  Guidelines for the Design of Computers and Information Processing Systems to Increase Their Access by Persons with Disabilities. Version 2.0. , 1986 .

[41]  S. Schlozman,et al.  Everything Bad Is Good for You: How Today's Popular Culture Is Actually Making Us Smarter , 2006 .

[42]  D. Mattison.  The war of desire and technology at the close of the mechanical age , 1997 .

[43]  Michele White.  Where do you want to sit today? Computer programmers' static bodies and disability , 2006 .

[44]  N. Katherine Hayles,et al.  How we became posthuman , 1999 .

[45]  Patrick D. Murphy,et al.  Writing Media Culture: Representation and Experience in Media Ethnography , 2008 .

[46]  P. Longmore.  Disability Policy and Politics , 2000 .

[47]  Geert Lovink,et al.  Video Vortex reader: responses to YouTube , 2008 .

[48]  Annette N. Markham,et al.  Life Online: Researching Real Experience in Virtual Space , 1998 .

[49]  R. Streitmatter.  Up from Invisibility: Lesbians, Gay Men, and the Media in America , 2002 .

[50]  J. Dijck,et al.  Facebook as a Tool for Producing Sociality and Connectivity , 2012 .

[51]  Lois W. Sayrs.  Interviews : an introduction to qualitative research interviewing , 1996 .

[52]  Alistair S. Duff,et al.  Reading Digital Culture , 2001 .

[53]  S. Livingstone.  Audience research at the crossroads , 1998 .

[54]  Jacquie Ripat,et al.  Characteristics of assistive technology service delivery models: stakeholder perspectives and preferences , 2005, Disability and rehabilitation.

[55]  J. Durlak.  The Language of New Media , 2002 .

[56]  Sage Associates,et al.  Document ID: DOJ-CRT-2010-0005-0001: Nondiscrimination on the Basis of Disability: Accessibility of Web Information and Services of State and Local Government Entities and Public Accommodations , 2011 .

[57]  J. Caldwell.  Critical Industrial Practice , 2006 .

[58]  E. Hargittai.  Digital Na(t)ives? Variation in Internet Skills and Uses among Members of the “Net Generation”* , 2010 .

[59]  Mark B. N. Hansen.  Bodies in Code: Interfaces with Digital Media , 2006 .

[60]  B. Brueggemann.  Deaf Subjects: Between Identities and Places , 2009 .

[61]  M. R. DeVries.  ARCHITECTURAL AND TRANSPORTATION BARRIERS COMPLIANCE BOARD , 2005 .

[62]  Michael G. Paciello.  Web Accessibility for People with Disabilities , 2000 .

[63]  Jakob Nielsen,et al.  Designing web usability , 1999 .

[64]  Lawrence Lessig,et al.  Code and Other Laws of Cyberspace , 1999 .

[65]  Martin B. H. Weiss,et al.  Communications Policy and the Public Interest , 2001 .

[66]  Ephraim P. Glinert,et al.  Computers and People with Disabilities , 2008, TACC.

[67]  Constance C. Gerger.  Social Linguistics and Literacies: Ideology in Discourses. , 1993 .

[68]  K. Crenshaw.  Mapping the margins: intersectionality, identity politics, and violence against women of color , 1991 .

[69]  Sergio Paulo Benevides,et al.  Silencing the past: power and the production of history , 1999 .

[70]  Jeffrey Scott Ranen.  Was Blind but Now I See: The Argument for ADA Applicability to the Internet , 2002 .

[71]  Leah A. Lievrouw,et al.  Information and equity , 2005, Annu. Rev. Inf. Sci. Technol..

[72]  Jim Ellison,et al.  Assessing the accessibility of fifty United States government Web pages: Using Bobby to check on Uncle Sam , 2004, First Monday.

[73]  Sally A. Guthrie.  Making the World Wide Web Accessible to All Students , 2000 .

[74]  Henry Jenkins.  Convergence Culture: Where Old and New Media Collide , 2006 .

[75]  T. Shakespeare,et al.  Cultural Representation of Disabled People: Dustbins for Disavowal? , 1994 .

[76]  Jakob Nielsen,et al.  Prioritizing Web Usability , 2006 .

[77]  Jeffery D. Higginbotham,et al.  Design Meets Disability , 2009 .

[78]  Critical Divides: Judith Butler's Body Theory and the Question of Disability , 2002 .

[79]  Ragnar Andreas Audunson,et al.  Technology and Social Inclusion. Rethinking the Digital Divide , 2006, J. Documentation.

[80]  Wayne H. Brekhus.  Out in the Country: Youth, Media, and Queer Visibility in Rural America , 2011 .

[81]  E. Hargittai,et al.  The disability divide in internet access and use , 2006 .

[82]  Diana Saco,et al.  Cybering Democracy: Public Space and the Internet , 2002 .

[83]  James Watzke,et al.  A Three-Way Dance: The Global Public Good and Accessibility in Information Technologies , 2007, Inf. Soc..

[84]  J. Gray,et al.  Watching with The Simpsons: Television, Parody, and Intertextuality , 2005 .

[85]  Colin Lankshear,et al.  Online memes, affinities, and cultural production , 2007 .

[86]  Colin Potts,et al.  Design of Everyday Things , 1988 .

[87]  N. Fenton.  The Personal Interview , 1934 .

[88]  Eszter Hargittai,et al.  Second-Level Digital Divide: Differences in People's Online Skills , 2002, First Monday.

[89]  Christian Sandvig.  Network neutrality is the new common carriage , 2007 .

[90]  E. G. Coleman.  Ethnographic Approaches to Digital Media , 2010 .

[91]  Radhika Gajjala,et al.  Developing Cyberethnographic Research Methods for Understanding Digitally Mediated Identities , 2007 .

[92]  D. Haraway,et al.  A Cyborg Manifesto: Science, Technology, and Socialist-Feminism in the Late Twentieth Century , 2013 .

[93]  M. Foucault,et al.  The archaeology of knowledge ; and, The discourse on language , 1972 .

[94]  A. Asch.  Critical Race Theory, Feminism, and Disability: Reflections on Social Justice and Personal Identity , 2001 .

[95]  D. Morley.  Family Television: Cultural Power and Domestic Leisure , 1986 .

[96]  Richard Johnson,et al.  What Is Cultural Studies Anyway , 1986 .

[97]  Jean Burgess,et al.  Hearing Ordinary Voices: Cultural Studies, Vernacular Creativity and Digital Storytelling , 2006 .

[98]  Meng Yuan.  A private sphere: democracy in a digital age , 2012 .

[99]  Stuart Hall,et al.  Doing Cultural Studies: The Story of the Sony Walkman , 1997 .

[100]  L. Carlson,et al.  Cognitive Ableism and Disability Studies: Feminist Reflections on the History of Mental Retardation , 2001, Hypatia.

[101]  Tim O'Reilly,et al.  What is Web 2.0: Design Patterns and Business Models for the Next Generation of Software , 2007 .

[102]  Donna Harawy.  Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective , 2022, Philosophical Literary Journal Logos.

[103]  P. Jaeger,et al.  Understanding Disability: Inclusion, Access, Diversity, and Civil Rights , 2005 .

[104]  Stuart Hall,et al.  Cultural studies and its theoretical legacies , 2006 .

[105]  Pierre Lévy,et al.  Collective Intelligence: Mankind's Emerging World in Cyberspace , 1997 .

[106]  M. Poster,et al.  What's the Matter with the Internet? , 2001 .

[107]  Jeffrey Zeldman,et al.  Designing with Web Standards , 2003 .

[108]  H. Kennedy.  The successful self-regulation of web designers , 2010 .

[109]  Annette N. Markham,et al.  FABRICATION AS ETHICAL PRACTICE , 2012 .

[110]  B. Kirkpatrick.  “A Blessed Boon”: Radio, Disability, Governmentality, and the Discourse of the “Shut-In,” 1920–1930 , 2012 .

[111]  Janet Staiger,et al.  Media Reception Studies , 2022 .

[112]  S. Schneider,et al.  Web Sphere Analysis : An Approach to Studying Online Action Forthcoming in Virtual Methods : Issues in Social Science Research on the Internet , , 2004 .

[113]  B. Kirkpatrick.  Re-thinking 'Access': Cultural Barriers to Public Access Television , 2001 .

[114]  Scott McCoy,et al.  The state of corporate website accessibility , 2009, CACM.

[115]  J. Newhagen,et al.  Media Access : Social and Psychological Dimensions of New Technology Use , 2003 .

[116]  Henry Jenkins.  Confronting the Challenges of Participatory Culture: Media Education for the 21st Century , 2006 .

[117]  Heli Leppälä,et al.  The ugly laws: disability in public , 2011 .

[118]  Henry A. Giroux.  The Crisis of Public Values in the Age of the New Media , 2011 .

[119]  John Hartley.  The Uses Of Television , 1999 .

[120]  David Silver,et al.  Internet/Cyberculture/ Digital Culture/New Media/ Fill-in-the-Blank Studies , 2004, New Media Soc..

[121]  Jeffrey T. Prince,et al.  The Diffusion of the Internet and the Geography of the Digital Divide in the United States , 2006 .

[122]  Alison Adam,et al.  DISABILITY AND DISCOURSES OF WEB ACCESSIBILITY , 2009 .

[123]  Donald MacKenzie,et al.  The social shaping of technology : how the refrigerator got its hum , 1985 .

[124]  Ingunn Moser,et al.  Disability and the promises of technology: Technology, subjectivity and embodiment within an order of the normal , 2006 .

[125]  G. Kirkup,et al.  The Gendered Cyborg: A reader , 1999 .

[126]  Philip Auslander,et al.  Teleliteracy: Taking Television Seriously, and: Make Room for TV: Television and the Family Ideal in Postwar America , 1994 .

[127]  R. G. Thomson,et al.  Extraordinary Bodies: Figuring Physical Disability in American Culture and Literature , 1996 .

[128]  Ravi Kuber,et al.  An empirical investigation into the difficulties experienced by visually impaired Internet users , 2008, Universal Access in the Information Society.

[129]  Ted Friedman.  Electric Dreams: Computers in American Culture , 2005 .

[130]  J. Gee.  Social Linguistics And Literacies: Ideology in Discourse , 1996 .

[131]  Megan Sapnar Ankerson.  Historicizing Web Design: Software, Style, and the Look of the Web , 2009 .

[132]  Frank Marchak,et al.  Universal Design , 2001 .

[133]  Michele White,et al.  Television and Internet Differences by Design , 2006 .

[134]  Benjamin M. Compaine,et al.  Unexpected Outcomes in Digital Divide Policy: What Children Really Do in the Public Library , 2001 .

[135]  Michele White,et al.  The Body and the Screen: Theories of Internet Spectatorship , 2006 .

[136]  James L. Cherney.  Deaf Culture and the Cochlear Implant Debate: Cyborg Politics and the Identity of People with Disabilities , 1999 .

[137]  S. Linton,et al.  Claiming Disability: Knowledge and Identity , 1998 .

[138]  M. Foucault,et al.  Power/Knowledge: Selected Interviews and Other Writings 1972-1977 , 1980 .

[139]  Mark Fischetti,et al.  Weaving the web - the original design and ultimate destiny of the World Wide Web by its inventor , 1999 .

[140]  William G. Christ,et al.  MEDIA LITERACY, MEDIA EDUCATION, AND THE ACADEMY , 1998 .

[141]  Simeon Keates,et al.  Inclusive Design: Design for the Whole Population , 2003 .

[142]  C. Geertz.  The interpretation of cultures: Selected essays , 1975 .

[143]  Paul DiMaggio,et al.  Digital Inequality: From Unequal Access to Differentiated Use , 2004 .

[144]  Jim Everett,et al.  Coming of Age in Second Life: An Anthropologist Explores the Virtually Human , 2010 .

[145]  James A. Brown.  Media Literacy Perspectives , 1998 .

[146]  Hugh Richard Slotten,et al.  Selling the Air: A Critique of the Policy of Commercial Broadcasting in the United States by Thomas Streeter (review) , 1996, Technology and Culture.

[147]  J. Sterne.  Thinking the Internet: Cultural Studies Versus the Millennium , 1999 .

[148]  Elizabeth Daley,et al.  Expanding the Concept of Literacy. , 2003 .

[149]  J. Chamberlin,et al.  Nothing About Us Without Us: Disability Oppression and Empowerment , 1999 .

[150]  Lawrence Busch,et al.  Standards: Recipes for Reality , 2011 .

[151]  Kim Q. Hall.  Feminist disability studies , 2011 .

[152]  J. Burgess.  'All your chocolate rain are belong to us'?: Viral video, YouTube and the dynamics of participatory culture , 2008 .

[153]  J. Habermas,et al.  The structural transformation of the public sphere : an inquiryinto a category of bourgeois society , 1991 .

[154]  Steven G. Jones,et al.  Ethical Decision-Making and Internet Research: Recommendations from the AoIR Ethics Working Committee , 2004 .

[155]  D. Edge,et al.  The social shaping of technology , 1988 .

[156]  Claire Chaffey.  Technology Gap , 1967, Nature.

[157]  Vered Amit Talai,et al.  Constructing the field : ethnographic fieldwork in the contemporary world , 1999 .

[158]  A. Reed.  ‘My blog is me’: Texts and persons in UK online journal culture (and anthropology) , 2005 .

[159]  Mark Urban,et al.  Introduction to WCAG 2.0 , 2006 .

[160]  Tim O'Reilly,et al.  Web Squared: Web 2.0 Five Years On , 2009 .

[161]  Wim Vanderbauwhede,et al.  Communication Challenges in the W3C's Web Content Accessibility Guidelines , 2006 .

[162]  Lindsy Van Gelder.  The Strange Case of the Electronic Lover , 1991, Computerization and Controversy, 2nd Ed..

[163]  Julie D’Acci.  Cultural Studies, Television Studies, and the Crisis in the Humanities , 2004, Television after TV.

[164]  Jennifer Niederst,et al.  Web design in a nutshell - a desktop quick reference , 1998 .

[165]  Shawn Lawton Henry,et al.  Understanding Web Accessibility , 2006 .

[166]  Neil Shepard.  Representing Disability in an Ableist World: Essays on Mass Media , 2011 .

[167]  David B. Nieborg,et al.  Wikinomics and its discontents: a critical analysis of Web 2.0 business manifestos , 2009, New Media Soc..

[168]  Harry G. Lang,et al.  A Phone of Our Own: The Deaf Insurrection Against Ma Bell , 2000 .

[169]  Estelle Thoreau,et al.  Ouch!: An Examination of the Self-Representation of Disabled People on the Internet , 2006, J. Comput. Mediat. Commun..

[170]  Elizabeth Ellcessor,et al.  BRIDGING DISABILITY DIVIDES , 2010 .

[171]  John E. Newhagen,et al.  Routes to Media Access , 2003 .

[172]  Regina Dunlea.  Mobile Web Best Practices 1.0 10/05 , 2005 .

[173]  Philip N. Howard,et al.  Comparing Digital Divides: Internet Access and Social Inequality in Canada and the United States , 2010 .

[174]  Alice E. Marwick.  Status update: Celebrity, publicity and self-branding in Web 2.0 , 2010 .

[175]  Lada A. Adamic,et al.  Expressing Social Relationships on the Blog through Links and Comments , 2007, ICWSM.

[176]  D. Hindman.  The Virtual Community: Homesteading on the Electronic Frontier , 1996 .

[177]  Mike Kent,et al.  Disability and new media , 2011 .

[178]  Glen Farrelly,et al.  Practitioner barriers to diffusion and implementation of web accessibility , 2011 .

[179]  Wallace Koehler,et al.  Virtual inequality: Beyond the digital divide , 2004, J. Assoc. Inf. Sci. Technol..

[180]  C. Michael Sperberg-McQueen,et al.  World Wide Web Consortium , 2009, Encyclopedia of Database Systems.

[181]  G. Pullin.  Inclusion, inspiration and lightness of touch , 2003 .

[182]  Susan Wendell,et al.  The Rejected Body: Feminist Philosophical Reflections on Disability , 1996 .

[183]  D. Boyd.  Taken Out of Context: American Teen Sociality in Networked Publics , 2010 .

[184]  Bert Massie,et al.  The Social Model of Disability , 1993 .

[185]  Sergio Luján Mora,et al.  Introduction to Web Accessibility , 2011 .

[186]  N. Garnham.  The Media and the Public Sphere , 2020 .

[187]  Lisa Tripp,et al.  ‘The computer is not for you to be looking around, it is for schoolwork’: Challenges for digital inclusion as Latino immigrant families negotiate children’s access to the internet , 2011, New Media Soc..

[188]  Gregg C. Vanderheiden,et al.  Web content accessibility guidelines 1.0 , 2001, INTR.

[189]  Joe Clark.  Building Accessible Websites , 2002 .

[190]  D. I. Canavan.  The subject of impairment. , 1983, The Journal of the Medical Society of New Jersey.

[191]  Peter Dahlgren.  The Internet, Public Spheres, and Political Communication: Dispersion and Deliberation , 2005 .