Primary care practitioner and patient understanding of the concepts of multimorbidity and self-management: A qualitative study

Objectives: The aim of this article is to offer insight into how professionals and patients understand and experience multimorbidity and how these accounts differ, and how they affect attitudes and engagement with self-management. Methods: Semi-structured interviews with 20 primary healthcare practitioners and 20 patients with at least 2 long-term conditions (including coronary heart disease, diabetes, osteoarthritis, chronic obstructive pulmonary disease and depression). Thematic analysis was used, and themes were identified using an open-coding method. Results: Practitioners associated multimorbidity with complexity and uncertainty in the clinic, leading to emotional strain and ‘heart sink’. Patient accounts differed. Some described multimorbidity as problematic when it exacerbated their symptoms and caused emotional and psychological strain. Others did not perceive multimorbidity as problematic. Self-management was seen by practitioners and patients to be a key element of managing multiple conditions, but drivers for prompting and engaging in self-management differed between patients and practitioners. Conclusion: This study suggests that recommendations for clinical practice for multimorbid patients should take into account the gap in perceptions between practitioner and patients about experiences of multimorbidity. Not least, practice would need to reflect the tension between practitioners’ and patients’ accounts about the role and benefits of self-management in the presence of multimorbidity.

[1]  N. Pidgeon,et al.  Qualitative research and psychological theorizing. , 1992, British journal of psychology.

[2]  K. Charmaz,et al.  The Body, Identity, and Self: Adapting To Impairment , 1995 .

[3]  C. Weel Chronic diseases in general practice: the longitudinal dimension , 1996 .

[4]  N. Hoffart Basics of Qualitative Research: Techniques and Procedures for Developing Grounded Theory , 2000 .

[5]  John F. Steiner,et al.  Descriptions of Barriers to Self-Care by Persons with Comorbid Chronic Diseases , 2003, The Annals of Family Medicine.

[6]  V. Braun,et al.  Using thematic analysis in psychology , 2006 .

[7]  François G Schellevis,et al.  Comorbidity and guidelines: conflicting interests , 2006, The Lancet.

[8]  G Foster,et al.  Self-management education programmes by lay leaders for people with chronic conditions. , 2007, The Cochrane database of systematic reviews.

[9]  B. Starfield,et al.  Defining Comorbidity: Implications for Understanding Health and Health Services , 2009, The Annals of Family Medicine.

[10]  A. Parekh,et al.  The challenge of multiple comorbidity for the US health care system. , 2010, JAMA.

[11]  R. Mathur,et al.  Cardiovascular multimorbidity: the effect of ethnicity on prevalence and risk factor management. , 2011, The British journal of general practice : the journal of the Royal College of General Practitioners.

[12]  Wendy Macdonald,et al.  Multimorbidity, service organization and clinical decision making in primary care: a qualitative study. , 2011, Family practice.

[13]  S. Wyke,et al.  An ‘endless struggle’: a qualitative study of general practitioners’ and practice nurses’ experiences of managing multimorbidity in socio-economically deprived areas of Scotland , 2011, Chronic illness.

[14]  Tracy Yuen,et al.  A systematic review of resilience in the physically ill. , 2011, Psychosomatics.

[15]  J. Valderas,et al.  Epidemiology and impact of multimorbidity in primary care: a retrospective cohort study. , 2011, The British journal of general practice : the journal of the Royal College of General Practitioners.

[16]  Caroline Sanders,et al.  Shifting priorities in multimorbidity: a longitudinal qualitative study of patient’s prioritization of multiple conditions , 2011, Chronic illness.

[17]  B. Starfield,et al.  RECONFIGURING HEALTH PROFESSIONS IN TIMES OF MULTI-MORBIDITY: EIGHT RECOMMENDATIONS FOR CHANGE OECD 50th Anniversary Conference on Health Reform: Meeting the challenge of ageing and multiple morbidities , 2011 .

[18]  Chris Salisbury,et al.  Multimorbidity: redesigning health care for people who use it , 2012, The Lancet.

[19]  D. Mangin,et al.  Beyond diagnosis: rising to the multimorbidity challenge , 2012, British medical journal.

[20]  B. Guthrie,et al.  Adapting clinical guidelines to take account of multimorbidity , 2012, BMJ : British Medical Journal.

[21]  W. Katon,et al.  Does depression predict the use of urgent and unscheduled care by people with long term conditions? A systematic review with meta-analysis. , 2012, Journal of psychosomatic research.

[22]  P. Bower,et al.  Illness representations in patients with multimorbid long-term conditions: Qualitative study , 2012, Psychology & health.

[23]  S. Wyke,et al.  Epidemiology of multimorbidity and implications for health care, research, and medical education: a cross-sectional study , 2012, The Lancet.

[24]  Martin Roland,et al.  Better management of patients with multimorbidity , 2013, BMJ.