Tick box for child? The ethical positioning of children as vulnerable, researchers as Barbarians and reviewers as overly cautious.

Children have historically been marginalized in research with proxies used as appropriate sources of information about children's experiences, perceptions and understandings. In the context of research governance and ethical review, the default setting in many countries reflects a long history of framing children within a discourse of vulnerability and seeing research with (or on) children as inherently risky. This perspective inevitably positions researchers as '(potentially) dangerous' and requires reviewers to adopt a (super-) cautious approach to any research proposal involving children's participation. Halse and Honey [Halse, C., Honey, A., 2007. Rethinking ethics review as institutional discourse. Qualitative Inquiry 13 (3), 336-352] suggest that this forces the researcher into the position of barbarian and the reviewers into the role of the research subject's champion. However, the discourse of child vulnerability competes with the discourse of child participation and involvement. Research with children is further complicated since children also have tended to be viewed as a homogenous group although this clearly misrepresents the diversity, individuality and multiplicity of their geographies. The tensions that arise from children being protected from the predations of the 'barbarian researchers' have meant that researchers have tended to undertake research on the least vulnerable/most adult-like children. This has resulted in some interesting and important research although the findings are likely to have much less utility than if researchers made greater efforts to engage or been given the opportunities to engage with the more marginalized children. Researchers and reviewers are a heterogeneous group each sharing some barbarian and champion tendencies. Both groups need to acknowledge their own 'adultist' assumptions and discursive practices in relation to involving children within research and consider the benefits (as well as the risks) that can accrue from researching children's own perspectives. Currently, the 'tick box' approach automatically identifies a research study as inherently more risky, forcing researchers into a defensive position and framing children as vulnerable even when the risks may be neglible and the risks of not doing the research are higher for children. Considering ways in which we could stretch our current understanding of vulnerability through the use of child-led and oriented ethics review could accommodate the strengths, expertise and capacities of children.

[1]  H. Calabretto,et al.  Involving Children in Health and Social Research , 2004 .

[2]  Faith Gibson,et al.  Conducting focus groups with children and young people: strategies for success , 2007 .

[3]  Jenny Morris,et al.  Including all children: finding out about the experiences of children with communication and/or cognitive impairments , 2003 .

[4]  T. Booth,et al.  Sounds of Silence: Narrative research with inarticulate subjects , 1996 .

[5]  E. Hall The entangled geographies of social exclusion/inclusion for people with learning disabilities. , 2005, Health & place.

[6]  Alison J. Cocks The Ethical Maze , 2006 .

[7]  Viviene E. Cree,et al.  Research with Children: Sharing the Dilemmas , 2002 .

[8]  B. Beresford,et al.  Doing research with children and young people who do not use speech for communication , 2005 .

[9]  C. Philo 'To Go Back up the Side Hill': Memories, Imaginations and Reveries of Childhood , 2003 .

[10]  E. Whittaker,et al.  Adjudicating entitlements: the emerging discourses of research ethics boards , 2005, Health.

[11]  Malcolm Hill,et al.  Children and Society , 1997 .

[12]  G. Valentine,et al.  The Ethical and Methodological Complexities of Doing Research with 'Vulnerable' Young People , 2001 .

[13]  Helene Berman,et al.  Getting Critical With Children: Empowering Approaches With a Disempowered Group , 2003, ANS. Advances in nursing science.

[14]  F. Baylis,et al.  Children and decisionmaking in health research. , 1999, IRB.

[15]  Stuart C. Aitken,et al.  Putting Children in Their Place , 1994 .

[16]  Robert VanWynsberghe,et al.  Community mapping as a research tool with youth , 2005 .

[17]  O. Jones 'Before the Dark of Reason': Some Ethical and Epistemological Considerations on the Otherness of Children , 2001 .

[18]  H. Matthews Power Games and Moral Territories: Ethical Dilemmas when Working with Children and Young People , 2001 .

[19]  Gill Valentine,et al.  Being Seen and Heard? The Ethical Complexities of Working with Children and Young People at Home and at School , 1999 .

[20]  R. Hodgkin Effective government structures for children , 1997 .

[21]  M. Maguire,et al.  What if You Talked to Me? I Could Be Interesting! Ethical Research Considerations in Engaging with Bilingual / Multilingual Child Participants in Human Inquiry , 2005 .

[22]  Katherine Curtis,et al.  ‘How come I don’t get asked no questions?’ Researching ‘hard to reach’ children and teenagers , 2004 .

[23]  J. Horton 'Do You Get Some Funny Looks When You Tell People What You Do?' Muddling through Some Angsts and Ethics of (Being a Male) Researching with Children , 2001 .

[24]  Malcolm Hill,et al.  Children’s Voices on Ways of Having a Voice , 2006 .

[25]  C. Halse,et al.  Rethinking Ethics Review as Institutional Discourse , 2007 .

[26]  C. Barnes disability activism and the struggle for change , 2007 .

[27]  Hugh Matthews,et al.  Defining an agenda for the geography of children: review and prospect , 1999 .

[28]  M. Priestley Childhood Disability and Disabled Childhoods , 1998 .

[29]  H. Matthews Participatory Structures and the Youth of Today: Engaging Those Who Are Hardest to Reach , 2001 .

[30]  V. Lloyd,et al.  Conducting Qualitative Interview Research With People With Expressive Language Difficulties , 2006, Qualitative health research.

[31]  J. Rollins,et al.  Tell Me About It: Drawing as a Communication Tool for Children With Cancer , 2005, Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses.