Use of 13 disease registries in 5 countries demonstrates the potential to use outcome data to improve health care's value.

As health care systems worldwide struggle with rising costs, a consensus is emerging to refocus reform efforts on value, as determined by the evaluation of patient outcomes relative to costs. One method of using outcome data to improve health care value is the disease registry. An international study of thirteen registries in five countries (Australia, Denmark, Sweden, the United Kingdom, and the United States) suggests that by making outcome data transparent to both practitioners and the public, well-managed registries enable medical professionals to engage in continuous learning and to identify and share best clinical practices. The apparent result: improved health outcomes, often at lower cost. For example, we calculate that if the United States had a registry for hip replacement surgery comparable to one in Sweden that enabled reductions in the rates at which these surgeries are performed a second time to replace or repair hip prostheses, the United States would avoid $2 billion of an expected $24 billion in total costs for these surgeries in 2015.

[1]  H. Flynn,et al.  Nosocomial acute-onset postoperative endophthalmitis at a university teaching hospital (2002-2009). , 2009, American journal of ophthalmology.

[2]  B. Lindahl,et al.  Improved Clinical Outcome After Acute Myocardial Infarction in Hospitals Participating in a Swedish Quality Improvement Initiative , 2009, Circulation. Cardiovascular quality and outcomes.

[3]  S. Kurtz,et al.  Future clinical and economic impact of revision total hip and knee arthroplasty. , 2007, The Journal of bone and joint surgery. American volume.

[4]  C. Held,et al.  Association between adoption of evidence-based treatment and survival for patients with ST-elevation myocardial infarction. , 2011, JAMA.

[5]  U. Stenevi,et al.  One million cataract surgeries: Swedish National Cataract Register 1992-2009. , 2011, Journal of cataract and refractive surgery.

[6]  Steven Kurtz,et al.  Prevalence of primary and revision total hip and knee arthroplasty in the United States from 1990 through 2002. , 2005, The Journal of bone and joint surgery. American volume.

[7]  B Ehinger,et al.  Data reliability and structure in the Swedish National Cataract Register. , 2001, Acta ophthalmologica Scandinavica.

[8]  H. Flynn,et al.  Acute-onset postoperative endophthalmitis: review of incidence and visual outcomes (1995-2001). , 2002, Ophthalmic surgery and lasers.

[9]  L. Wallentin,et al.  Abstract 1428: Statin Use After Myocardial Iinfarction Improves Survival in Nearly All With Renal Dysfunction: Data From the Swedish Web-system for Enhancement and Development of Evidence-based Care in Heart Disease Evaluated According to Recommended Therapies (SWEDEHEART) , 2009 .

[10]  U. Stenevi,et al.  Endophthalmitis after cataract surgery: a nationwide prospective study evaluating incidence in relation to incision type and location. , 2007, Ophthalmology.