Content validation and psychometric evaluation of the Angioedema Quality of Life Questionnaire for hereditary angioedema
暂无分享,去创建一个
S. Shahraz | Sara Costa-Cabral | J. Mendivil | K. Weller | M. Watt | G. Devercelli | S. Rhoten | C. Kosmas | M. Vanya | Stephanie E Rhoten
[1] T. Craig,et al. Racial and Ethnic Disparities in the Research and Care of Hereditary Angioedema Patients in the United States. , 2021, The journal of allergy and clinical immunology. In practice.
[2] J. Bernstein,et al. Long‐term prevention of hereditary angioedema attacks with lanadelumab: The HELP OLE Study , 2021, Allergy.
[3] W. Lumry,et al. Letting the patients speak: an in-depth, qualitative research-based investigation of factors relevant to health-related quality of life in real-world patients with hereditary angioedema using subcutaneous C1 inhibitor replacement therapy , 2021, Allergy, Asthma & Clinical Immunology.
[4] J. Simon,et al. Prophylactic Treatment in Hereditary Angioedema Is Associated with Reduced Anxiety in Patients in Leipzig, Germany , 2021, International Archives of Allergy and Immunology.
[5] T. Craig,et al. Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report , 2021, Allergy, Asthma & Clinical Immunology.
[6] E. Aygören‐Pürsün,et al. Clinical characteristics and burden of illness in patients with hereditary angioedema: findings from a multinational patient survey , 2021, Orphanet Journal of Rare Diseases.
[7] W. Lumry,et al. Hereditary angioedema: Epidemiology and burden of disease. , 2020, Allergy and asthma proceedings.
[8] J. Bernstein,et al. US HAEA Medical Advisory Board 2020 Guidelines for the Management of Hereditary Angioedema. , 2020, The journal of allergy and clinical immunology. In practice.
[9] T. Zuberbier,et al. Validation of the Angioedema Control Test (AECT) - a patient reported outcome instrument for assessing angioedema control. , 2020, The journal of allergy and clinical immunology. In practice.
[10] T. Brown,et al. Patient-reported burden of hereditary angioedema: findings from a US patient survey. , 2020, Annals of allergy, asthma & immunology : official publication of the American College of Allergy, Asthma, & Immunology.
[11] T. Zuberbier,et al. Development of the Angioedema Control Test—A patient‐reported outcome measure that assesses disease control in patients with recurrent angioedema , 2019, Allergy.
[12] M. Maurer,et al. Angioedema quality of life questionnaire (AE-QoL) - interpretability and sensitivity to change , 2019, Health and Quality of Life Outcomes.
[13] W. Lumry,et al. Development of a health-related quality of life instrument for patients with hereditary angioedema living in the United States. , 2019, The journal of allergy and clinical immunology. In practice.
[14] William H. Yang,et al. Fixed-Dose Subcutaneous C1-Inhibitor Liquid for Prophylactic Treatment of C1-INH-HAE: SAHARA Randomized Study. , 2019, The journal of allergy and clinical immunology. In practice.
[15] William H. Yang,et al. Effect of Lanadelumab Compared With Placebo on Prevention of Hereditary Angioedema Attacks: A Randomized Clinical Trial , 2018, JAMA.
[16] M. Triggiani,et al. Oral Plasma Kallikrein Inhibitor for Prophylaxis in Hereditary Angioedema , 2018, The New England journal of medicine.
[17] M. Triggiani,et al. Evaluation of avoralstat, an oral kallikrein inhibitor, in a Phase 3 hereditary angioedema prophylaxis trial: The OPuS‐2 study , 2018, Allergy.
[18] W. Aberer,et al. The Icatibant Outcome Survey: experience of hereditary angioedema management from six European countries , 2017, Journal of the European Academy of Dermatology and Venereology : JEADV.
[19] William H. Yang,et al. Prevention of Hereditary Angioedema Attacks with a Subcutaneous C1 Inhibitor , 2017, The New England journal of medicine.
[20] D. Supina,et al. Health-related quality of life with hereditary angioedema following prophylaxis with subcutaneous C1-inhibitor with recombinant hyaluronidase. , 2017, Allergy and asthma proceedings.
[21] P. Martus,et al. The Angioedema Quality of Life Questionnaire (AE‐QoL) – assessment of sensitivity to change and minimal clinically important difference , 2016, Allergy.
[22] H. Longhurst,et al. The Humanistic, Societal, and Pharmaco-economic Burden of Angioedema , 2016, Clinical Reviews in Allergy & Immunology.
[23] M. Buchberger,et al. Nanofiltrated C1‐esterase‐inhibitor in the prophylactic treatment of bradykinin‐mediated angioedema , 2016, Transfusion.
[24] M. Riedl,et al. Managing the Female Patient with Hereditary Angioedema , 2016, Women's health.
[25] M. Maurer,et al. Development and content validity testing of a patient-reported outcomes questionnaire for the assessment of hereditary angioedema in observational studies , 2015, Health and Quality of Life Outcomes.
[26] P. Martus,et al. Development, validation, and initial results of the Angioedema Activity Score , 2013, Allergy.
[27] P. Martus,et al. Development and construct validation of the angioedema quality of life questionnaire , 2012, Allergy.
[28] E. Remor,et al. Development of a disease-specific quality of life questionnaire for adult patients with hereditary angioedema due to C1 inhibitor deficiency (HAE-QoL): Spanish multi-centre research project , 2012, Health and Quality of Life Outcomes.
[29] D. Cella,et al. Developing a Valid Patient‐Reported Outcome Measure , 2011, Clinical pharmacology and therapeutics.
[30] G. Bonsel,et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) , 2011, Quality of Life Research.
[31] G. Norman,et al. Interpretation of Changes in Health-related Quality of Life: The Remarkable Universality of Half a Standard Deviation , 2003, Medical care.
[32] O. Chassany,et al. Patient-Reported Outcomes: The Example of Health-Related Quality of Life—a European Guidance Document for the Improved Integration of Health-Related Quality of Life Assessment in the Drug Regulatory Process , 2002 .
[33] J. Ware,et al. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. , 1996, Medical care.
[34] P. Lachenbruch. Statistical Power Analysis for the Behavioral Sciences (2nd ed.) , 1989 .
[35] D. W. Goodwin. The Anxiety Disease and How to Overcome It , 1984 .
[36] Jacob Cohen. Statistical Power Analysis for the Behavioral Sciences , 1969, The SAGE Encyclopedia of Research Design.
[37] J. Nunnally,et al. Psychometric Theory , 2020, Encyclopedia of Behavioral Medicine.
[38] W. Aberer,et al. Triggers and Prodromal Symptoms of Angioedema Attacks in Patients With Hereditary Angioedema. , 2016, Journal of investigational allergology & clinical immunology.
[39] K. Beusterien,et al. The humanistic burden of hereditary angioedema: results from the Burden of Illness Study in Europe. , 2014, Allergy and asthma proceedings.
[40] A. Sheffer,et al. The spectrum of chronic angioedema. , 2009, Allergy and asthma proceedings.
[41] A. Kaplan,et al. Angioedema. , 2005, Journal of the American Academy of Dermatology.
[42] K. Schulz,et al. Hereditary angioedema , 2004, Humangenetik.
[43] Hilde van der Togt,et al. Publisher's Note , 2003, J. Netw. Comput. Appl..
[44] N. Jersey.,et al. SENATE OF THE UNITED STATES , 2003 .
[45] A. Kasuya. EuroQol--a new facility for the measurement of health-related quality of life. , 1990, Health policy.
[46] S. S. Stevens. Mathematics, measurement, and psychophysics. , 1951 .