Adolescents with cancer undergo suffering resulting from diagnosis, therapy and changes in their routine and family life. The objective of this study was to identify the chief causes of their suffering, identified in interviews with those patients themselves. The study population were 12 adolescents admitted to the Paediatric Clinic of the Ribeirao Preto Medical School Clinical Hospital, University of Sao Paulo, from the 13th. November, 1997 to 16th. December, 1997. Data were analysed by means of qualitative approach. The chief causes of suffering reported by the studied adolescents were: hospitalization, restrictions in routine activities, aggressive therapy, modification of self-image and fear of dying. The adolescents not only talked about their suffering but also offered some suggestions to lessen it, as for instance, use of central venous catheter, liberation of visiting time, reducing number of hospitalization events, efficient communication and good rapport with the attending team.
[1]
K. Enskär,et al.
Symptom distress and life situation in adolescents with cancer.
,
1997,
Cancer nursing.
[2]
L. F. Pinto,et al.
[The children of the Valley of Death--reflections on terminal children].
,
1996,
Jornal de pediatria.
[3]
T. Fears,et al.
Experiences of cancer in children and adolescents.
,
1996,
Cancer nursing.
[4]
Cibele Andrucioli de Mattos Pimenta.
Avaliacao da experiencia dolorosa
,
1995
.
[5]
R. Farrelly.
The special care needs of adolescents in hospital.
,
1994,
Nursing Times.
[6]
P. McGrath,et al.
American Academy of Pediatrics Report of the Subcommittee on Assessment and Methodologic Issues in the Management of Pain in Childhood Cancer.
,
1990,
Pediatrics.