Using personas to tailor educational messages to the preferences of coronary heart disease patients

PURPOSE Although tailoring health education messages to individual characteristics of patients has shown promising results, most patient education materials still take a one-size-fits-all approach. The aim of this study was to develop a method for tailoring health education messages to patients' preferences for various message features, using the concept of personas. This is a preliminary study focused on education for coronary heart disease (CHD) patients. METHODS This study used a three-step approach. First, we created personas by (i) performing k-means cluster analysis on data from an online survey that assessed the preferences of 213 CHD patients for various message features and, (ii) creating a vivid description of the preferences per patient cluster in an iterative process with the research team. Second, we developed adaptation rules to tailor existing educational messages to the resulting personas. Third, we conducted a pilot validation by adapting nine existing educational messages to each of the personas. These messages and the resulting personas were then presented to a separate group of 38 CHD patients who visited the cardiology outpatient clinic. They were first asked to choose their most preferred, second most preferred, and least preferred persona. Subsequently, they were asked to rate three of the adapted messages; one for every of the persona choices. RESULTS We created five personas that pertained to five patient clusters. Personas varied mainly on preferences for medical or lay language, current or future temporal perspective, and including or excluding explicit health risks. Fifty-five different adaptation rules were developed, primarily describing adaptations to the message's perspective, level of detail, sentence structure, and terminology. Most participants in the validation study could identify with one of the five personas, although some of them found it hard to choose. On average, 68.5% of all participants rated the messages that matched their most preferred persona more positively than, or in the same way as, the messages that matched their least preferred persona. CONCLUSIONS The persona-based method developed in this study can be used to create a manageable set of patient-centered tailored messages, while additionally using the developed personas to assess patients' preferences.

[1]  D. O’Keefe,et al.  The Relative Persuasiveness of Different Message Types Does Not Vary as a Function of the Persuasive Outcome Assessed: Evidence from 29 Meta-Analyses of 2,062 Effect Sizes for 13 Message Variations , 2013 .

[2]  A. Moyer,et al.  Tailored interventions to promote mammography screening: a meta-analytic review. , 2007, Preventive medicine.

[3]  Su-I Hou,et al.  Health Literacy Online , 2012, Health promotion practice.

[4]  Erin Donovan-Kicken,et al.  Do Message Features Influence Reactions to HIV Disclosures? A Multiple-Goals Perspective , 2009, Health communication.

[5]  Stephen A. Rains,et al.  Health information-seeking and perceptions of website credibility: Examining Web-use orientation, message characteristics, and structural features of websites , 2009, Comput. Hum. Behav..

[6]  F. Bull,et al.  Understanding how people process health information: a comparison of tailored and nontailored weight-loss materials. , 1999, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[7]  Eduardo Bruera,et al.  Treatment decisions for breast carcinoma , 2002, Cancer.

[8]  Michael Haas,et al.  How to Master the Challenges of Service Mass Customization - A Persona-Based Approach , 2009 .

[9]  N. Peek,et al.  An online survey to study the relationship between patients’ health literacy and coping style and their preferences for self-management-related information , 2014, Patient preference and adherence.

[10]  Stephen A. Rains Health Information Seeking and the World Wide Web: An Uncertainty Management Perspective , 2014, Journal of health communication.

[11]  E. Bruera,et al.  Patient preferences versus physician perceptions of treatment decisions in cancer care. , 2001, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[12]  Jonathan Grudin,et al.  Personas: practice and theory , 2003, DUX '03.

[13]  S. Noar,et al.  Tailored Health Communication to Change Lifestyle Behaviors , 2011 .

[14]  Simona Botti,et al.  When Choosing is Not Deciding: The Effect Of Perceived Responsibility on Satisfaction , 2006 .

[15]  Greg Hamerly,et al.  Learning the k in k-means , 2003, NIPS.

[16]  Brid Kilonzo,et al.  Secondary prevention and learning needs post percutaneous coronary intervention (PCI): perspectives of both patients and nurses. , 2011, Journal of clinical nursing.

[17]  Juliann Cortese,et al.  Computer-tailored health interventions delivered over the Web: review and analysis of key components. , 2009, Patient education and counseling.

[18]  Arie Dijkstra,et al.  The Psychology of Tailoring-Ingredients in Computer-Tailored Persuasion , 2008 .

[19]  Nancy Grant Harrington,et al.  The Role of Message Tailoring in the Development of Persuasive Health Communication Messages , 2009 .

[20]  P. Butow,et al.  Sharing decisions in cancer care. , 2001, Social science & medicine.

[21]  Adrienne Shaw,et al.  Patients' perspectives of the doctor-patient relationship and information giving across a range of literacy levels. , 2009, Patient education and counseling.

[22]  Stacey Hunter,et al.  The information needs of patients treated with primary angioplasty for heart attack: an exploratory study. , 2008, Patient education and counseling.

[23]  Jakob D. Jensen,et al.  The Relative Persuasiveness of Gain-Framed Loss-Framed Messages for Encouraging Disease Prevention Behaviors: A Meta-Analytic Review , 2007, Journal of health communication.

[24]  D. Rothenbacher,et al.  Treatment decisions in palliative cancer care: patients' preferences for involvement and doctors' knowledge about it. , 1997, European journal of cancer.

[25]  B. Chaney,et al.  Challenges for Tailored Messaging in Health Education , 2008 .

[26]  Robert Tibshirani,et al.  Estimating the number of clusters in a data set via the gap statistic , 2000 .

[27]  F. J. Zuuren,et al.  Coping with medical threat: An evaluation of the Threatening Medical Situations Inventory (TMSI) , 1996 .

[28]  Ehud Reiter,et al.  Book Reviews: Building Natural Language Generation Systems , 2000, CL.

[29]  Andrew W. Moore,et al.  X-means: Extending K-means with Efficient Estimation of the Number of Clusters , 2000, ICML.

[30]  N. Arora,et al.  Interacting with cancer patients: the significance of physicians' communication behavior. , 2003, Social science & medicine.

[31]  E. Langer The illusion of control. , 1975 .

[32]  P. Salovey,et al.  Matching health messages to monitor-blunter coping styles to motivate screening mammography. , 2005, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[33]  Cynthia LeRouge,et al.  User profiles and personas in the design and development of consumer health technologies , 2013, Int. J. Medical Informatics.

[34]  Peter Salovey,et al.  Motivating Cancer Prevention and Early Detection Behaviors using Psychologically Tailored Messages , 2005, Journal of health communication.

[35]  Pieter Jan Stappers,et al.  A qualitative participatory study to identify experiences of coronary heart disease patients to support the development of online self-management services , 2013, Int. J. Medical Informatics.

[36]  Albert Gatt,et al.  Automatic generation of textual summaries from neonatal intensive care data , 2009 .

[37]  S. Noar,et al.  A Meta-Analysis of Web-Delivered Tailored Health Behavior Change Interventions , 2013, Journal of health communication.

[38]  Peter Salovey,et al.  Tailoring messages to individual differences in monitoring-blunting styles to increase fruit and vegetable intake. , 2009, Journal of nutrition education and behavior.

[39]  Jonathan Grudin,et al.  Personas, Participatory Design and Product Development: An Infrastructure for Engagement , 2002 .

[40]  Corinna E. Löckenhoff,et al.  Choosing with confidence: Self-efficacy and preferences for choice , 2012, Judgment and Decision Making.

[41]  Laura R. Olevitch,et al.  Tailoring Health Messages: Customizing Communication With Computer Technology , 1999 .

[42]  Phyllis Butow,et al.  A systematic review on communicating with patients about evidence. , 2006, Journal of evaluation in clinical practice.

[43]  Eun-Jun Park,et al.  Computerized Tailoring of Health Information , 2009, Computers, informatics, nursing : CIN.

[44]  D. O’Keefe Persuasive effects of strategic maneuvering , 2009 .

[45]  P. Salovey,et al.  Using message framing to motivate HIV testing among low-income, ethnic minority women. , 2003, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[46]  James Price Dillard,et al.  The Persuasion Handbook: Developments in Theory and Practice , 2002 .

[47]  M. Bouvy,et al.  Patients' satisfaction with information and experiences with counseling on cardiovascular medication received at the pharmacy. , 2011, Patient education and counseling.

[48]  Sandra van Dulmen,et al.  Tailored information about cancer risk and screening: a systematic review. , 2009, Patient education and counseling.

[49]  E. Langer,et al.  The effects of choice and enhanced personal responsibility for the aged: a field experiment in an institutional setting. , 1976, Journal of personality and social psychology.

[50]  John S. Pruitt,et al.  The Persona Lifecycle: Keeping People in Mind Throughout Product Design , 2006 .

[51]  Shelley E. Taylor,et al.  Illusion and well-being: a social psychological perspective on mental health. , 1988, Psychological bulletin.

[52]  Hendrik Drachsler,et al.  The Handover Toolbox: a knowledge exchange and training platform for improving patient care , 2012, BMJ quality & safety.

[53]  G Demiris,et al.  Assessing Older Adults’ Perceptions of Sensor Data and Designing Visual Displays for Ambient Environments , 2014, Methods of Information in Medicine.

[54]  S. Noar,et al.  Does tailoring matter? Meta-analytic review of tailored print health behavior change interventions. , 2007, Psychological bulletin.

[55]  Nicole Novielli,et al.  User modeling and adaptation in health promotion dialogs with an animated character , 2006, J. Biomed. Informatics.

[56]  Blaine Reeder,et al.  Scenarios, personas and user stories: User-centered evidence-based design representations of communicable disease investigations , 2013, J. Biomed. Informatics.

[57]  Traci Hong,et al.  The influence of structural and message features on Web site credibility , 2006 .

[58]  D. Lewis,et al.  Consumer health informatics : informing consumers and improving health care , 2010 .

[59]  Allison W. McCulloch,et al.  Developing and Using a Codebook for the Analysis of Interview Data: An Example from a Professional Development Research Project , 2011 .

[60]  John A Updegraff,et al.  Health Message Framing Effects on Attitudes, Intentions, and Behavior: A Meta-analytic Review , 2012, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[61]  Blaine Reeder,et al.  Scenario-based design: A method for connecting information system design with public health operations and emergency management , 2011, J. Biomed. Informatics.

[62]  B. Rimer,et al.  Advancing Tailored Health Communication: A Persuasion and Message Effects Perspective , 2006 .

[63]  M. P. Fransen,et al.  Applicability of Internationally Available Health Literacy Measures in the Netherlands , 2011, Journal of health communication.

[64]  M. Fishbein,et al.  Understanding tailoring in communicating about health. , 2008, Health education research.

[65]  F. Bull,et al.  Are tailored health education materials always more effective than non-tailored materials? , 2000, Health education research.

[66]  P Ley,et al.  Satisfaction, compliance and communication. , 1982, The British journal of clinical psychology.

[67]  Rita Kukafka,et al.  Tailored Health Communication , 2005 .

[68]  George Demiris,et al.  Modeling the oldest old: personas to design technology-based solutions for older adults. , 2011, AMIA ... Annual Symposium proceedings. AMIA Symposium.

[69]  Janice L. Krieger,et al.  Enhancing Web-Based Kidney Disease Prevention Messages for Hispanics Using Targeting and Tailoring , 2009, Journal of health communication.

[70]  S. Noar,et al.  Reporting standards for studies of tailored interventions. , 2012, Health education research.

[71]  George Demiris,et al.  Participatory design of an integrated information system design to support public health nurses and nurse managers. , 2014, Public health nursing.

[72]  John W. Creswell,et al.  Designing and Conducting Mixed Methods Research , 2006 .

[73]  D. Lehmann,et al.  Designing Effective Health Communications: A Meta-Analysis , 2008 .