Codesign with people living with cognitive or sensory impairments: a case for method stories and uniqueness

Codesign with people living with cognitive or sensory impairments poses challenges for researchers and designers, due to differences in their mutual experiences and due to the fact that many well-established codesign methods and techniques may not be appropriate and need adjustment. This paper describes a search for an appropriate, dedicated methodological approach for involving people living with impairments in codesign projects. Based on both existing literature and on a series of three academic workshops, we aimed to understand how researchers and designers adjust common codesign techniques and to derive general principles from those adjustments. During our search for a dedicated codesign approach, however, we came to change our view, and therefore our aims. The outcomes of the workshops, more specifically the identification of common challenges that researchers and designers experience, showed that such a dedicated approach may not be the best way to advance the field of codesign methods for people living with impairments. Instead, we now advocate a highly individual approach towards adjusting codesign techniques. In addition, we suggest a new tradition of sharing experiences in order for researchers and designers to learn from one another in the form of method stories.

[1]  Rebecca Cober,et al.  Using a participatory approach to design a technology-enhanced museum tour for visitors who are blind , 2012, iConference '12.

[2]  Gerhard Fischer,et al.  Reflective design-in-use: co-designing an assistive remote communication system with individuals with cognitive disabilities and their families , 2007 .

[3]  Eva Brandt,et al.  Evoking the future: Drama and props in user centered design , 2000 .

[4]  FischerGerhard,et al.  Socio-technical environments supporting people with cognitive disabilities using public transportation , 2005 .

[5]  Karin Slegers,et al.  Interactive applications for children with hearing impairments: a process of inspiration, ideation, and conceptualization , 2012, IDC '12.

[6]  Michael J. Muller,et al.  Participatory design: the third space in HCI , 2002 .

[7]  Jung-Joo Lee,et al.  Against Method: The Portability of Method in Human-Centered Design , 2012 .

[8]  P. Olivier,et al.  Empathy, participatory design and people with dementia , 2012, CHI.

[9]  Jung-Joo Lee,et al.  The True Benefits of Designing Design Methods , 2014 .

[10]  Elizabeth B.-N. Sanders,et al.  Postdesign and Participatory Culture , 1999 .

[11]  Pieter Jan Stappers,et al.  Co-creation and the new landscapes of design , 2008 .

[12]  Randolph G. Bias,et al.  Research Methods for Human-Computer Interaction , 2010, J. Assoc. Inf. Sci. Technol..

[13]  M. Steen Tensions in human-centred design , 2011 .

[14]  Kristina Höök,et al.  CHI '12 Extended Abstracts on Human Factors in Computing Systems , 2012, CHI 2012.

[15]  Maria M. Klawe,et al.  The participatory design of a sound and image enhanced daily planner for people with aphasia , 2004, CHI.

[16]  Andrea Botero,et al.  Opening exhibitions: the visually impaired and the design of probes packages , 2008, PDC.

[17]  Abi Roper,et al.  Words are not enough: empowering people with aphasia in the design process , 2012, PDC '12.

[18]  Mike Wu,et al.  Participatory design of an orientation aid for amnesics , 2005, CHI.

[19]  Stephen Lindsay,et al.  Engaging older people using participatory design , 2012, CHI.

[20]  Mike Wu,et al.  Participatory design with individuals who have amnesia , 2004, PDC 04.

[21]  Allison Druin,et al.  The role of children in the design of new technology , 2002 .

[22]  Melissa Dawe,et al.  "Let me show you what i want": engaging individuals with cognitive disabilities and their families in design , 2007, CHI Extended Abstracts.

[23]  Karin Slegers,et al.  Research methods for involving hearing impaired children in IT innovation , 2010, NordiCHI.

[24]  Karin Slegers,et al.  Challenges in doing participatory design with people with dementia , 2014, PDC '14.

[25]  Pieter Jan Stappers,et al.  Connecting through interacting : Toys that help designers learn from children with autism by playing with them , 2009 .

[26]  E. Hanson,et al.  Working together with persons with early stage dementia and their family members to design a user-friendly technology-based support service , 2007 .

[27]  Panayiotis Zaphiris,et al.  Involving People with Dementia in the Development of a Discussion Forum: A Community-centred Approach , 2006 .

[28]  Erik Duval,et al.  Designing with Dementia: Guidelines for Participatory Design together with Persons with Dementia , 2013, INTERACT.

[29]  Ravi Kuber,et al.  Towards developing assistive haptic feedback for visually impaired internet users , 2007, CHI.

[30]  Halime Demirkan,et al.  Universal product design involving elderly users: a participatory design model. , 2004, Applied ergonomics.

[31]  Karin Slegers,et al.  Participatory design with people living with cognitive or sensory impairments , 2014, CHI Extended Abstracts.

[32]  Eva Brandt,et al.  Designing exploratory design games: a framework for participation in Participatory Design? , 2006, PDC '06.

[33]  Karin Slegers,et al.  Participatory design for users with impairments affecting cognitive functions and communication skills , 2012, PDC '12.

[34]  Liz Crow,et al.  INCLUDING ALL OF OUR LIVES: RENEWING THE SOCIAL MODEL OF DISABILITY , 1996 .

[35]  K. Slegers,et al.  Participatory Design for Personswith Cognitive or Sensory Impairments , 2013, INTERACT 2013.

[36]  Sandrine Balbo,et al.  Towards co-design with users who have autism spectrum disorders , 2009, Universal Access in the Information Society.

[37]  Norman Alm,et al.  Designing a multimedia conversation aid for reminiscence therapy in dementia care environments , 2004, CHI EA '04.

[38]  Kim Halskov,et al.  Participatory design in Britain and North America: responses to the “Scandinavian Challenge” , 1991, CHI '91.

[39]  Elizabeth DePoy,et al.  Multiculturalism and Disability: A critical perspective , 2000 .

[40]  Peter Graf,et al.  Insights from the aphasia project: designing technology for and with people who have aphasia , 2002, CUU '03.

[41]  Sue Cobb,et al.  A method for involving children with autism in design , 2011, IDC.

[42]  Hilary Johnson,et al.  Diversity for design: a framework for involving neurodiverse children in the technology design process , 2014, CHI.