Information and communication technologies for informal carers and paid assistants: benefits from micro-, meso-, and macro-levels

The aim of this study was to explore the benefits of information and communication technologies (ICT)-based services for informal carers and paid assistants of older people living in the community. We cross-case analysed the effects of twelve initiatives in the EU, the USA and Canada, based on their individual analysis documented through interviews with promoters and a literature review. We carried out the cross-case analysis following a variables-oriented strategy on seven dimensions of impact at micro-, meso- and macro-levels: the quality of life of informal carers and paid assistants, quality of life of care recipients, quality of care, care efficiency and sustainability, acceptability, and infrastructure and accessibility. ICT-based services for informal carers and paid assistants improve the quality of life of older people and their carers and access to qualified care. They also generate savings which contribute to the sustainability of the care systems. These findings constitute a first look at the benefits of the use of ICT-based services for informal carers and paid assistants. Nevertheless, more research using experimental methods is needed to demonstrate the impact of these ICT-based services at meso- and macro-levels. This would help to support policy-makers to deploy these technologies for long-term care delivery.

[1]  L. Lam,et al.  The use of information technology and mental health among older care-givers in Australia , 2009, Aging & mental health.

[2]  E. Hanson,et al.  Final report on the "Methodological Framework" , 2011 .

[3]  R. Toseland,et al.  The effectiveness of a telephone support program for caregivers of frail older adults. , 2006, The Gerontologist.

[4]  Francesca Colombo,et al.  The long-term care workforce: overview and strategies to adapt supply to a growing demand , 2009 .

[5]  Meg E. Morris,et al.  Smart technologies for older people: a systematic literature review of smart technologies that promote health and wellbeing of older people living at home , 2012 .

[6]  E. Hanson,et al.  Supporting frail older people and their family carers at home using information and communication technology: cost analysis. , 2005, Journal of advanced nursing.

[7]  S. Carretero,et al.  Evaluation of the home help service and its impact on the informal caregiver's burden of dependent elders , 2007, International journal of geriatric psychiatry.

[8]  James Stewart,et al.  Can technology – based services support long-term care challenges in home care? Analysis of evidence from social innovation good practices across the EU CARICT Project Summary Report , 2012 .

[9]  Yves Jorens,et al.  Long term care in the European union , 2008 .

[10]  Peng-Chih Wang,et al.  Impact of in-home behavioral management versus telephone support to reduce depressive symptoms and perceived stress in Chinese caregivers: results of a pilot study. , 2007, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[11]  M. Okoye Princess royal trust for carers. , 2010, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

[12]  Elsa Marziali,et al.  Dementia Caregivers’ Responses to 2 Internet-Based Intervention Programs , 2011, American journal of Alzheimer's disease and other dementias.

[13]  C. Winters,et al.  Social Support in Cyberspace: The Next Generation , 2005, Computers, informatics, nursing : CIN.

[14]  V. Sanjosé,et al.  The informal caregiver's burden of dependent people: theory and empirical review. , 2009, Archives of gerontology and geriatrics.

[15]  Christine Redecker Long-term Care Challenges in an Ageing Society: The Role of ICT and Migrants , 2010 .

[16]  Clarann Weinert,et al.  An Evaluation of an Online Intervention to Provide Social Support and Health Education , 2004, Computers, informatics, nursing : CIN.

[17]  S. Yeandle,et al.  The Potential of ICT in supporting Domiciliary Care in England , 2010 .

[18]  Richard Schulz,et al.  Enhancing the Quality of Life of Dementia Caregivers from Different Ethnic or Racial Groups , 2006, Annals of Internal Medicine.

[19]  A. Rigaud,et al.  [Information and communication technology interventions supporting carers of people with Alzheimer's disease: a literature review]. , 2009, Psychologie & neuropsychiatrie du vieillissement.

[20]  A. Simonazzi,et al.  Care regimes and national employment models , 2008 .

[21]  G. Vermeylen,et al.  Second European Quality of Life Survey - overview , 2009 .

[22]  Jenny R. Billings,et al.  Long-Term Care in Europe: Improving Policy and Practice , 2013 .

[23]  J. Morse Qualitative data analysis (2nd ed): Mathew B. Miles and A. Michael Huberman. Thousand Oaks, CA: Sage Publications, 1994. Price: $65.00 hardback, $32.00 paperback. 238 pp , 1996 .

[24]  Diana Gosálvez Prados European Centre for Social Welfare Policy and Research , 2013 .

[25]  B. Willemse,et al.  A pilot study on the use of tracking technology: Feasibility, acceptability, and benefits for people in early stages of dementia and their informal caregivers , 2012, Aging & mental health.

[26]  Suzanne Pingree,et al.  An Exploratory Study of Predictors of Participation in a Computer Support Group for Women With Breast Cancer , 2006, Computers, informatics, nursing : CIN.

[27]  K. Seers Qualitative data analysis , 2011, Evidence Based Nursing.

[28]  Manuel Armayones,et al.  The Potential of ICT in supporting Domiciliary Care in Germany , 2010 .

[29]  D. Hunter,et al.  Primary care trusts , 2004, BMJ : British Medical Journal.

[30]  E. Hanson,et al.  Working together with persons with early stage dementia and their family members to design a user-friendly technology-based support service , 2007 .

[31]  S. Carretero,et al.  Informal care in the long-term care system European Overview Paper , 2010 .

[32]  T. Thompson,et al.  Caregivers dealing with stroke pull together and feel connected. , 2004, The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses.

[33]  Lorraine R. Buis,et al.  Emotional and Informational Support Messages in an Online Hospice Support Community , 2008, Computers, informatics, nursing : CIN.

[34]  E. Hanson,et al.  Blended learning networks supported by information and communication technology: an intervention for knowledge transformation within family care of older people. , 2011, The Gerontologist.

[35]  Carlos Chiatti,et al.  Final report containing case-by-case detailed description and analysis of selected 12 Good practices , 2011 .

[36]  B MilesMatthew,et al.  Qualitative Data Analysis , 2009, Approaches and Processes of Social Science Research.

[37]  Lennart Magnusson,et al.  A pilot study of how information and communication technology may contribute to health promotion among elderly spousal carers in Norway. , 2007, Health & social care in the community.

[38]  Britt Östlund,et al.  Turning older people’s experiences into innovations: Ippi as the convergence of mobile services and TV viewing , 2011 .

[39]  E. Hanson,et al.  Assisting carers using the ACTION model for working with family carers. , 2002, British journal of nursing.