Insights into the concept and measurement of health literacy from a study of shared decision-making in a low literacy population

This article explores the concept and measurement of health literacy in the context of shared health decision-making. It draws upon a series of qualitative and quantitative studies undertaken in the development and evaluation of a bowel cancer screening decision aid for low literacy populations. The findings indicate that different types of health literacy (functional, interactive and critical) are required in decision-making and present a set of instruments to assess and discriminate between higher level health literacy skills required for engagement in decision-making. It concludes that greater sophistication in both the definition and measurement of health literacy in research is needed.

[1]  A. Barratt,et al.  Informed choice in bowel cancer screening: a qualitative study to explore how adults with lower education use decision aids , 2014, Health expectations : an international journal of public participation in health care and health policy.

[2]  Lyndal Trevena,et al.  A theoretical framework for measuring knowledge in screening decision aid trials. , 2012, Patient education and counseling.

[3]  Lena Mårtensson,et al.  Health literacy -- a heterogeneous phenomenon: a literature review. , 2012, Scandinavian journal of caring sciences.

[4]  M. Barry,et al.  Shared decision making--pinnacle of patient-centered care. , 2012, The New England journal of medicine.

[5]  A. Edwards,et al.  The development of health literacy in patients with a long-term health condition: the health literacy pathway model , 2012, BMC Public Health.

[6]  Gerardine Doyle,et al.  Health literacy and public health: A systematic review and integration of definitions and models , 2012, BMC Public Health.

[7]  V. Freimuth,et al.  Associations Between Older Adults' Spoken Interactive Health Literacy and Selected Health Care and Health Communication Outcomes , 2011, Journal of health communication.

[8]  A. Darragh,et al.  “I Cried Because I Didn't Know if I Could Take Care of Him”: Toward a Taxonomy of Interactive and Critical Health Literacy as Portrayed by Caregivers of Children with Special Health Care Needs , 2011, Journal of health communication.

[9]  R. Rikard,et al.  Health Literacy Measurement: A Proposed Research Agenda , 2011, Journal of health communication.

[10]  H. Ishikawa,et al.  The relationship of patient participation and diabetes outcomes for patients with high vs. low health literacy. , 2011, Patient education and counseling.

[11]  P. Tugwell,et al.  Health Literacy: What Is It and Why Is It Important to Measure? , 2011, The Journal of Rheumatology.

[12]  Stacey L. Sheridan,et al.  Low Health Literacy and Health Outcomes: An Updated Systematic Review , 2011, Annals of Internal Medicine.

[13]  D. Chinn.  Critical health literacy: a review and critical analysis. , 2011, Social science & medicine.

[14]  Elizabeth Mogford,et al.  Teaching critical health literacy in the US as a means to action on the social determinants of health. , 2011, Health promotion international.

[15]  Lyndal Trevena,et al.  A decision aid to support informed choices about bowel cancer screening among adults with low education: randomised controlled trial , 2010, BMJ : British Medical Journal.

[16]  Rachelle Buchbinder,et al.  Conceptualising health literacy from the patient perspective. , 2010, Patient education and counseling.

[17]  Lyndal Trevena,et al.  Exploring patient involvement in healthcare decision making across different education and functional health literacy groups. , 2009, Social science & medicine.

[18]  R. Buchbinder,et al.  Patient assessment of medication information leaflets and validation of the Evaluative Linguistic Framework (ELF). , 2009, Patient education and counseling.

[19]  Andrew Steptoe,et al.  Health Literacy and Health Actions: A Review and a Framework From Health Psychology , 2009, Health education & behavior : the official publication of the Society for Public Health Education.

[20]  Don Nutbeam,et al.  Defining and measuring health literacy: what can we learn from literacy studies? , 2009, International Journal of Public Health.

[21]  Lyndal Trevena,et al.  Development and preliminary evaluation of a bowel cancer screening decision aid for adults with lower literacy. , 2009, Patient Education and Counseling.

[22]  I. Kickbusch,et al.  Health Literacy: engaging in a political debate , 2009, International Journal of Public Health.

[23]  D. Nutbeam.  The evolving concept of health literacy. , 2008, Social science & medicine.

[24]  Lyndal Trevena,et al.  Information needs and preferences of low and high literacy consumers for decisions about colorectal cancer screening: utilizing a linguistic model , 2008, Health expectations : an international journal of public participation in health care and health policy.

[25]  S. Kuruvilla,et al.  A tale of two health literacies: public health and clinical approaches to health literacy. , 2008, Health promotion international.

[26]  A. Coulter,et al.  Effectiveness of strategies for informing, educating, and involving patients , 2007, BMJ : British Medical Journal.

[27]  D. Baker.  The meaning and the measure of health literacy , 2006, Journal of general internal medicine.

[28]  L. G. Doak,et al.  The role of pictures in improving health communication: a review of research on attention, comprehension, recall, and adherence. , 2006, Patient education and counseling.

[29]  B. Weiss,et al.  Quick Assessment of Literacy in Primary Care: The Newest Vital Sign , 2005, The Annals of Family Medicine.

[30]  R. Buchbinder,et al.  A linguistic framework for assessing the quality of written patient information: its use in assessing methotrexate information for rheumatoid arthritis. , 2005, Health education research.

[31]  T. Marteau,et al.  A measure of informed choice , 2001, Health expectations : an international journal of public participation in health care and health policy.

[32]  Y Peterburg,et al.  Health literacy in health systems: perspectives on patient self-management in Israel. , 2001, Health promotion international.

[33]  Ruotao Wang,et al.  Critical health literacy: a case study from China in schistosomiasis control , 2000 .

[34]  D. Nutbeam.  Health literacy as a public health goal: a challenge for contemporary health education and communication strategies into the 21st century , 2000 .

[35]  F Sainfort,et al.  Measuring Post-decision Satisfaction , 2000, Medical decision making : an international journal of the Society for Medical Decision Making.

[36]  L. G. Doak,et al.  Improving comprehension for cancer patients with low literacy skills: Strategies for clinicians , 1998, CA: a cancer journal for clinicians.

[37]  K C Carriere,et al.  Information needs and decisional preferences in women with breast cancer. , 1997, JAMA.

[38]  C. Charles,et al.  Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). , 1997, Social science & medicine.

[39]  Mark V. Williams,et al.  Test of Functional Health Literacy in Adults , 2016 .

[40]  A. O'Connor.  Validation of a Decisional Conflict Scale , 1995, Medical decision making : an international journal of the Society for Medical Decision Making.

[41]  R H Jackson,et al.  Rapid assessment of literacy levels of adult primary care patients. , 1991, Family medicine.

[42]  Don Nutbeam,et al.  Health promotion glossary. , 1986, Health promotion.

[43]  T. Abel.  Measuring health literacy: moving towards a health – promotion perspective , 2008, International Journal of Public Health.

[44]  David A. Kindig,et al.  Health literacy : a prescription to end confusion , 2004 .

[45]  L. S. St Leger.  Schools, health literacy and public health: possibilities and challenges. , 2001, Health promotion international.

[46]  D. Nutbeam,et al.  Health promotion glossary (1998) , 1998 .

[47]  L. G. Doak,et al.  Teaching Patients With Low Literacy Skills , 1985 .