The impact of home enteral tube feeding in everyday life: a qualitative study.

Advances in clinical and technical areas, combined with developments in community support services, have enabled people to receive enteral tube feeding at home in the UK. Research has focused on clinical and technical aspects, and people's experiences have largely been explored through the audit of after-care services. The research reported in the present paper consisted of a qualitative study in which a small number of people under going enteral tube feeding at home and their carers were interviewed. The study took place in one area of northern England. The interviews explored aspects of daily life, focusing on decision-making and adaptation, and revealed positive feelings about the process of tube feeding, as well as areas of difficulty and concern. Opportunities to improve practice and services are identified from these accounts.

[1]  A. Rudd,et al.  Management of stroke , 2003, Postgraduate medical journal.

[2]  R. Baker,et al.  Feeding problems, gastrostomy and families: a qualitative pilot study , 2002 .

[3]  R. Watson Eating difficulty in older people with dementia. , 2002, Nursing Older People.

[4]  T. Cederholm,et al.  Treatment of protein-energy malnutrition in chronic nonmalignant disorders. , 2001, The American journal of clinical nutrition.

[5]  P. Howard,et al.  The challenges of innovation in the organization of home enteral tube feeding. , 2001, Journal of human nutrition and dietetics : the official journal of the British Dietetic Association.

[6]  S. Post Tube feeding and advanced progressive dementia. , 2001, The Hastings Center report.

[7]  W. Tierney,et al.  Outcomes of Percutaneous Endoscopic Gastrostomy Among Older Adults in a Community Setting , 2000, Journal of the American Geriatrics Society.

[8]  M. Steinberg,et al.  PEG Feeding, Dementia and the Need for Policies and Guidelines , 2000 .

[9]  A. Spangler,et al.  Maternal stress in caring for children with feeding disabilities: implications for health care providers. , 1999, Journal of the American Dietetic Association.

[10]  P. Mckeever,et al.  Mothers' experiences caring for children with disabilities who require a gastrostomy tube. , 1998, Journal of pediatric nursing.

[11]  F. L’Estrange An audit of adult patients on home enteral tube feeding in a region of Northern Ireland , 1997 .

[12]  A. Barsevick,et al.  Quality of life and nutritional support in patients with cancer. , 1996, Cancer practice.

[13]  G. Holmes,et al.  A randomised prospective comparison of percutaneous endoscopic gastrostomy and nasogastric tube feeding after acute dysphagic stroke , 1996, BMJ.

[14]  J. Payne-James Enteral nutrition : Nutrition for gastroenterologists : when, how and for how long ? , 1995 .

[15]  C. Wheatley,et al.  Home nutrition survey in the UK: the patient's perspective. , 1993, Clinical nutrition.

[16]  McCrae Ja,et al.  Current practices for home enteral nutrition. , 1989 .