National Patient-Centered Clinical Research Network (PCORnet) Phase I

[1]  Amy P Abernethy,et al.  Use of tablet personal computers for sensitive patient-reported information. , 2009, The journal of supportive oncology.

[2]  Chunhua Weng,et al.  Methods and dimensions of electronic health record data quality assessment: enabling reuse for clinical research , 2013, J. Am. Medical Informatics Assoc..

[3]  Roma Maguire,et al.  What is the value of the routine use of patient-reported outcome measures toward improvement of patient outcomes, processes of care, and health service outcomes in cancer care? A systematic review of controlled trials. , 2014, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[4]  B. Thiers,et al.  Eligibility Criteria of Randomized Controlled Trials Published in High-Impact General Medical Journals: A Systematic Sampling Review , 2008 .

[5]  Joshua R. Vest,et al.  Health information exchange: persistent challenges and new strategies , 2010, J. Am. Medical Informatics Assoc..

[6]  Susan E. Sheridan,et al.  Patient-powered research networks aim to improve patient care and health research. , 2014, Health affairs.

[7]  R. Platt,et al.  Developing the Sentinel System--a national resource for evidence development. , 2011, The New England journal of medicine.

[8]  L. Nelson,et al.  Quantitative challenges facing patient-centered outcomes research , 2014, Expert review of pharmacoeconomics & outcomes research.

[9]  Jianhua Liu,et al.  Toward a Fully De-identified Biomedical Information Warehouse , 2009, AMIA.

[10]  P. Schyve Leadership in Healthcare Organizations: A Guide to Joint Commission Leadership Standards , 2009 .

[11]  A. Braun,et al.  A European Survey on Biobanks: Trends and Issues , 2010, Public Health Genomics.

[12]  Rachael Fleurence,et al.  How the Patient-Centered Outcomes Research Institute is engaging patients and others in shaping its research agenda. , 2013, Health affairs.

[13]  Ethan Basch,et al.  The missing voice of patients in drug-safety reporting. , 2010, The New England journal of medicine.

[14]  Richard Platt,et al.  Launching PCORnet, a national patient-centered clinical research network , 2014, Journal of the American Medical Informatics Association : JAMIA.

[15]  M. Kahn,et al.  Data Quality Assessment for Comparative Effectiveness Research in Distributed Data Networks , 2013, Medical care.