Patient‐reported outcomes and joint status across subgroups of US adults with hemophilia with varying characteristics: Results from the Pain, Functional Impairment, and Quality of Life (P‐FiQ) study

Pain and functional impairment associated with joint disease are major problems for people with hemophilia, and impact on health‐related quality of life (HRQoL) may vary across groups defined by demographic and treatment‐related characteristics.

[1]  Michael Wang,et al.  Internal consistency and item-total correlation of patient-reported outcome instruments and hemophilia joint health score v2.1 in US adult people with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study , 2017, Patient preference and adherence.

[2]  T. Buckner,et al.  Known-group validity of patient-reported outcome instruments and hemophilia joint health score v2.1 in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study , 2017, Patient preference and adherence.

[3]  T. Buckner,et al.  Reliability of patient-reported outcome instruments in US adults with hemophilia: the Pain, Functional Impairment and Quality of life (P-FiQ) study , 2017, Patient preference and adherence.

[4]  D. Cooper,et al.  Construct validity of patient-reported outcome instruments in US adults with hemophilia: results from the Pain, Functional Impairment, and Quality of life (P-FiQ) study , 2017, Patient preference and adherence.

[5]  T. Buckner,et al.  Self‐reported prevalence, description and management of pain in adults with haemophilia: methods, demographics and results from the Pain, Functional Impairment, and Quality of life (P‐FiQ) study , 2017, Haemophilia : the official journal of the World Federation of Hemophilia.

[6]  Michelle A. Anderson,et al.  Quality of Life in Chronic Pancreatitis is Determined by Constant Pain, Disability/Unemployment, Current Smoking, and Associated Co-Morbidities , 2017, The American Journal of Gastroenterology.

[7]  D. Cooper,et al.  Impact of mild to severe hemophilia on education and work by US men, women, and caregivers of children with hemophilia B: The Bridging Hemophilia B Experiences, Results and Opportunities into Solutions (B‐HERO‐S) study , 2017, European journal of haematology.

[8]  H. I. Jensen,et al.  Associations between demographics and health-related quality of life for chronic non-malignant pain patients treated at a multidisciplinary pain centre: a cohort study. , 2016, International journal for quality in health care : journal of the International Society for Quality in Health Care.

[9]  M. E. Lynch,et al.  Distress in patients with bleeding disorders: a single institutional cross‐sectional study , 2015, Haemophilia : the official journal of the World Federation of Hemophilia.

[10]  D. Cooper,et al.  Associations of quality of life, pain, and self-reported arthritis with age, employment, bleed rate, and utilization of hemophilia treatment center and health care provider services: results in adults with hemophilia in the HERO study , 2015, Patient preference and adherence.

[11]  J. Mathias,et al.  Psychological functioning of people living with chronic pain: a meta-analytic review. , 2015, The British journal of clinical psychology.

[12]  C. Kessler,et al.  Managing chronic pain in adults with haemophilia: current status and call to action , 2015, Haemophilia : the official journal of the World Federation of Hemophilia.

[13]  A. Iorio,et al.  Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics , 2014, Haemophilia : the official journal of the World Federation of Hemophilia.

[14]  Jingwei Wu,et al.  Reciprocal relationship between pain and depression: a 12-month longitudinal analysis in primary care. , 2011, The journal of pain : official journal of the American Pain Society.

[15]  G. Bonsel,et al.  Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L) , 2011, Quality of Life Research.

[16]  J. Elander,et al.  An assessment of the relative influence of pain coping, negative thoughts about pain, and pain acceptance on health-related quality of life among people with hemophilia , 2009, PAIN®.

[17]  M. Bullinger,et al.  Challenges of patient-reported outcome assessment in hemophilia care—a state of the art review. , 2009, Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research.

[18]  Frederick Wolfe,et al.  Predicting depression in rheumatoid arthritis: the signal importance of pain extent and fatigue, and comorbidity. , 2009, Arthritis and rheumatism.

[19]  C. Cleeland The Brief Pain Inventory User Guide , 2009 .

[20]  B. Feldman,et al.  Hemophilia joint health score reliability study , 2006, Haemophilia : the official journal of the World Federation of Hemophilia.

[21]  F. Lafeber,et al.  Pathogenesis of haemophilic arthropathy , 2006, Haemophilia : the official journal of the World Federation of Hemophilia.

[22]  P. Helders,et al.  Measuring patients’ perceptions on their functional abilities: validation of the Haemophilia Activities List , 2006, Haemophilia : the official journal of the World Federation of Hemophilia.

[23]  P. Helders,et al.  Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List , 2004, Haemophilia : the official journal of the World Federation of Hemophilia.

[24]  F. Lafeber,et al.  Blood-induced joint damage in hemophilia. , 2003, Seminars in thrombosis and hemostasis.