The advent of the ‘unpatients’

Predictive diagnosis by molecular methods will change the scientific basis of prognostics. At the same time, it will change the ethical dimensions of the relation among patients, their doctors and other providers of care.

[1]  Sandi Wiggins,et al.  The Psychological Consequences of Predictive Testing for Huntington’s Disease , 1992 .

[2]  M. Hayden,et al.  Predictive testing for Huntington disease in Canada: adverse effects and unexpected results in those receiving a decreased risk. , 1992, American journal of medical genetics.

[3]  Steven E. Bayer,et al.  A strong candidate for the breast and ovarian cancer susceptibility gene BRCA1. , 1994, Science.

[4]  Robert N. Proctor,et al.  Racial Hygiene: Medicine Under the Nazis , 1990 .

[5]  Robert Olby,et al.  In the Name of Eugenics: Genetics and the Uses of Human Heredity , 1985 .

[6]  R. Cook-Deegan The genesis of the Human Genome Project. , 1991, Molecular genetic medicine.

[7]  E. Marshall NIH told to reconsider crime meeting. , 1993, Science.

[8]  L. Groop,et al.  Association between polymorphism of the glycogen synthase gene and non-insulin-dependent diabetes mellitus. , 1993, The New England journal of medicine.

[9]  N. Holtzman,et al.  Involving consumers in the development of an educational program for cystic fibrosis carrier screening. , 1994, American journal of human genetics.

[10]  M. Hayden,et al.  Predictive testing for Huntington disease in Canada: the experience of those receiving an increased risk. , 1992, American journal of medical genetics.

[11]  Michael S. Yesley,et al.  ELSI Bibliography: Ethical legal and social implications of the Human Genome Project , 1993 .

[12]  N. Holtzman,et al.  Offering cystic fibrosis carrier screening to an HMO population: factors associated with utilization. , 1994, American journal of human genetics.

[13]  M. Mehlman,et al.  Coverage of genetic technologies under national health reform. , 1994, American journal of human genetics.

[14]  M. Dunlop Colorectal cancer genetics. , 1992, Seminars in cancer biology.

[15]  S. Seal,et al.  Localization of a breast cancer susceptibility gene, BRCA2, to chromosome 13q12-13. , 1994, Science.

[16]  J. Fanos,et al.  Perception of carrier status by cystic fibrosis siblings. , 1995, American journal of human genetics.