Relatives’ experiences of the Boston Psychiatric Rehabilitation approach: A qualitative study

The Boston Psychiatric Rehabilitation (BPR) approach is individualized and characterized by being based entirely on the individual's unique needs and preferences in the areas of working, learning, social contacts, and living environment. Relatives of clients in mental health services influence the client's possibilities for recovery by their everyday relationship. Relatives have, however, traditionally had a subordinated role in the care of their mentally ill family member. The perspective of relatives is an important aspect in the development of new approaches to psychiatric rehabilitation. The purpose of this study was thus to describe and explore relatives’ experiences of the BPR approach. Ten relatives of clients in mental health services taking part in the BPR were interviewed. The interviews were transcribed and analyzed with a qualitative content analysis method to explore relatives’ experiences of the BPR intervention in a county in Sweden. The findings from the interviews could be summarized in the theme “To meet the clients’ needs” consisting of three categories: “Dependence on staffs’ competence,” “Responsibility for user involvement,” and “The necessity for coordination between authorities and caregivers.” The findings suggest that relatives may contribute with important information about clients’ needs related to outcome of care. Relatives’ perspectives may be of importance in future development of BPR. Further research about the relatives’ role in psychiatric rehabilitation is needed as well as studies that compare different kinds of psychiatric rehabilitation from the perspective of relatives.

[1]  P. Svedberg,et al.  A 2-year follow-up study of people with severe mental illness involved in psychosocial rehabilitation , 2014, Nordic journal of psychiatry.

[2]  K. Ziegert,et al.  'Family in the waiting room': a Swedish study of nurses' conceptions of family participation in acute psychiatric inpatient settings. , 2011, International journal of mental health nursing.

[3]  O. Hellzén,et al.  “They can do whatever they want”: Meanings of receiving psychiatric care based on a common staff approach , 2011, International journal of qualitative studies on health and well-being.

[4]  E. Svensson,et al.  Family members' involvement in psychiatric care: experiences of the healthcare professionals' approach and feeling of alienation. , 2010, Journal of psychiatric and mental health nursing.

[5]  M. Farkas,et al.  Psychiatric rehabilitation interventions: A review , 2010, International review of psychiatry.

[6]  P. Goossens,et al.  Alone together: A grounded theory study of experienced burden, coping, and support needs of spouses of persons with a bipolar disorder. , 2009, International journal of mental health nursing.

[7]  J. Aaltonen,et al.  Mental health and creating safety: the participation of relatives in psychiatric treatment and its significance , 2009 .

[8]  Helvi Kyngäs,et al.  The qualitative content analysis process. , 2008, Journal of advanced nursing.

[9]  K. Kristoffersen,et al.  Experience of being the spouse/cohabitant of a person with bipolar affective disorder: a cumulative process over time. , 2008, Scandinavian journal of caring sciences.

[10]  B. Happell,et al.  Psychiatric Nurses' Attitudes Toward Consumer and Carer Participation in Care: Part 1—Exploring the Issues , 2007, Policy, politics & nursing practice.

[11]  Gerd Ahlström,et al.  Next of kin's conceptions of the quality of care in the psychiatric setting: a phenomenographic study. , 2007, International journal of mental health nursing.

[12]  P. Goossens,et al.  Burden, coping and needs for support of caregivers for patients with a bipolar disorder: a systematic review. , 2007, Journal of psychiatric and mental health nursing.

[13]  E. S. Rogers,et al.  The Choose-Get-Keep Model of Psychiatric Rehabilitation: A Synopsis of Recent Studies , 2006 .

[14]  B. Fridlund,et al.  Mental health professional support in families with a member suffering from severe mental illness: a grounded theory model. , 2006, Scandinavian journal of caring sciences.

[15]  B. Kable Mental health. , 2005, Australian family physician.

[16]  E. Forrest Mental health. The right to choose. , 2004, The Health service journal.

[17]  B. Lundman,et al.  Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. , 2004, Nurse education today.

[18]  W. Anthony Psychiatric rehabilitation: key issues and future policy. , 1992, Health affairs.

[19]  Klaus Krippendorff,et al.  Content Analysis: An Introduction to Its Methodology , 1980 .

[20]  O. Timm Psychiatric rehabilitation. , 1959, Military medicine.

[21]  T. Rennie,et al.  Vocational rehabilitation of the psychiatrically disabled. , 1949, Mental hygiene.