Supporting cancer patients' unanchored health information management with mobile technology.

Cancer patients often need to manage care-related information when they are away from home, when they are experiencing pain or treatment side effects, or when their abilities to deal with information effectively are otherwise impaired. In this paper, we describe the results from a four-week evaluation of HealthWeaver Mobile, a mobile phone application that we developed to support such "unanchored" patient information activities. Based on experiences from nine cancer patients, our results indicate that HealthWeaver Mobile can help patients to access care-related information from anywhere, to capture information whenever a need arises, and to share information with clinicians during clinic visits. The enhanced ability to manage information, in turn, helps patients to manage their care and to feel more confident in their ability to stay in control of their information and their health.

[1]  D. Gustafson,et al.  Effect of computer support on younger women with breast cancer , 2001, Journal of General Internal Medicine.

[2]  Kevin B. Johnson,et al.  Personal health records: evaluation of functionality and utility. , 2002, Journal of the American Medical Informatics Association : JAMIA.

[3]  Robert P. Hawkins,et al.  CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved , 2002, Int. J. Medical Informatics.

[4]  M. Watson,et al.  Influence of psychological response on breast cancer survival: 10-year follow-up of a population-based cohort. , 2005, European journal of cancer.

[5]  David W. Bates,et al.  White Paper: Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption , 2006, J. Am. Medical Informatics Assoc..

[6]  Shelagh A Mulvaney,et al.  Patient Web Portals to Improve Diabetes Outcomes: A Systematic Review , 2010, Current diabetes reports.

[7]  Wanda Pratt,et al.  Blowing in the wind: unanchored patient information work during cancer care , 2010, CHI.

[8]  F. Davidoff,et al.  Patient-Centered Medicine: A Professional Evolution , 1996 .

[9]  N. Kearney,et al.  Evaluation of a mobile phone-based, advanced symptom management system (ASyMS©) in the management of chemotherapy-related toxicity , 2009, Supportive Care in Cancer.

[10]  D. Strouse Patient-centered medicine. , 1996, JAMA.

[11]  Shirley Moore,et al.  Designing Tailored Internet Support to Assist Cancer Patients in Illness Management , 2007, AMIA.

[12]  Alison Richardson,et al.  Does the patient‐held record improve continuity and related outcomes in cancer care: a systematic review , 2007, Health expectations : an international journal of public participation in health care and health policy.

[13]  Wanda Pratt,et al.  Health Weaver Mobile: Designing a Mobile Tool for Managing Personal Health Information during Cancer Care. , 2010, AMIA ... Annual Symposium proceedings. AMIA Symposium.

[14]  Paul C. Tang,et al.  Integrated Personal Health Records: Transformative Tools for Consumer-Centric Care , 2008, BMC Medical Informatics Decis. Mak..

[15]  J. Fernández-castro,et al.  A Structural Model of the Relationships Between Perceived Control and Adaptation to Illness in Women with Breast Cancer , 2007, Journal of psychosocial oncology.

[16]  Cinzia Brunelli,et al.  Bmc Medical Informatics and Decision Making a Wireless Health Outcomes Monitoring System (whoms): Development and Field Testing with Cancer Patients Using Mobile Phones , 2022 .