Assessing the quality of information to support people in making decisions about their health and healthcare

The Picker Institute works with patients, professionals and policy makers to promote understanding of the patient's perspective at all levels of healthcare policy and practice. We undertake a unique combination of research, development and policy activities which together work to make patients' views count. There are three key strands to our work: • Measurement-researching and evaluating patients' experience • Improvement-leading initiatives that make improvements happen • Policy-building evidence to inform health policy. Items may be reproduced free of charge in any format or medium provided that they are not for commercial resale. This consent is subject to the material being reproduced accurately and provided it is not used in a derogatory manner or misleading context.

[1]  Kathleen N. Lohr,et al.  A Systematic Review of the Literature , 2004 .

[2]  C. Charles,et al.  Impact of cancer-related decision aids. , 2002, Evidence report/technology assessment.

[3]  Christian Köhler,et al.  How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews , 2002, BMJ : British Medical Journal.

[4]  R. Howells,et al.  Is the provision of information leaflets before colposcopy beneficial? A prospective randomised study , 1999, British journal of obstetrics and gynaecology.

[5]  Robert P. Hawkins,et al.  CHESS: 10 years of research and development in consumer health informatics for broad populations, including the underserved , 2002, Int. J. Medical Informatics.

[6]  Ros Dowse,et al.  Effect of Pictograms on Readability of Patient Information Materials , 2003, The Annals of pharmacotherapy.

[7]  L. Lemyre,et al.  Is anxiety a suitable measure of decision aid effectiveness: a systematic review? , 2003, Patient education and counseling.

[8]  Angela Coulter,et al.  The European Patient Of The Future , 2003 .

[9]  G. Elwyn,et al.  Personalised risk communication for informed decision making about entering screening programs. , 2003, The Cochrane database of systematic reviews.

[10]  K. McPherson,et al.  Cancer patients' information needs and information seeking behaviour: in depth interview study , 2000, BMJ : British Medical Journal.

[11]  Angela Fagerlin,et al.  Evidence-based patient choice: a prostate cancer decision aid in plain language , 2005, BMC Medical Informatics Decis. Mak..

[12]  Nisha Gandhi,et al.  Promoting informed decisions about cancer screening in communities and healthcare systems. , 2004, American journal of preventive medicine.

[13]  D. Crivellari,et al.  Does the Information Level of Cancer Patients Correlate with Quality of Life? A Prospective Study , 1998, Tumori.

[14]  V. Entwistle,et al.  Giving tape recordings or written summaries of consultations to people with cancer: a systematic review , 2001, Health expectations : an international journal of public participation in health care and health policy.

[15]  P. Garrud,et al.  Impact of risk information in a patient education leaflet. , 2001, Patient education and counseling.

[16]  J. Higgins,et al.  Dietary advice given by a dietitian versus other health professional or self-help resources to reduce blood cholesterol. , 2003, The Cochrane database of systematic reviews.

[17]  J Pearson,et al.  Randomised trial of personalised computer based information for cancer patients , 1999, BMJ.

[18]  Elizabeth Murray,et al.  Interactive Health Communication Applications for people with chronic disease. , 2005, The Cochrane database of systematic reviews.

[19]  J Tyndall,et al.  Written and verbal information versus verbal information only for patients being discharged from acute hospital settings to home. , 2003, The Cochrane database of systematic reviews.

[20]  Should patient decision aids ( PtDAs ) be introduced in the health care system ? , 2005 .

[21]  C. McPherson,et al.  Effective methods of giving information in cancer: a systematic literature review of randomized controlled trials. , 2001, Journal of public health medicine.

[22]  A. Liberati,et al.  A field guide to experts , 2004, BMJ : British Medical Journal.

[23]  P. Hewett,et al.  Effects of video information on precolonoscopy anxiety and knowledge: a randomised trial , 1999, The Lancet.

[24]  C Estabrooks,et al.  Decision aids: are they worth it? A systematic review , 2001, Journal of health services research & policy.

[25]  A. Bauman,et al.  Limited (information only) patient education programs for adults with asthma. , 2002, The Cochrane database of systematic reviews.

[26]  Petra Wilson,et al.  How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet. , 2002, BMJ : British Medical Journal.

[27]  M. Roland,et al.  What Predicts Patients' Interest in the Internet as a Health Resource in Primary Care in England? , 2003, Journal of health services research & policy.

[28]  J. Powell,et al.  Empirical studies assessing the quality of health information for consumers on the world wide web: a systematic review. , 2002, JAMA.

[29]  Iain Chalmers,et al.  Well informed uncertainties about the effects of treatments , 2004, BMJ : British Medical Journal.

[30]  G. Eysenbach.  The Impact of the Internet on Cancer Outcomes , 2003, CA: a cancer journal for clinicians.

[31]  E. Murray,et al.  Interactive Health Communication Applications for people with chronic disease. , 2005, The Cochrane database of systematic reviews.

[32]  L. Sansom,et al.  Do Internet interventions for consumers cause more harm than good? A systematic review , 2002, Health expectations : an international journal of public participation in health care and health policy.

[33]  P Burnard,et al.  The Effectiveness of One-to-one Risk-communication Interventions in Health Care , 2000, Medical decision making : an international journal of the Society for Medical Decision Making.

[34]  D Charnock,et al.  DISCERN: an instrument for judging the quality of written consumer health information on treatment choices. , 1999, Journal of epidemiology and community health.

[35]  H. Moudgil,et al.  Asthma education and quality of life in the community: a randomised controlled study to evaluate the impact on white European and Indian subcontinent ethnic groups from socioeconomically deprived areas in Birmingham, UK , 2000, Thorax.

[36]  Martin Tattersall,et al.  Informing Patients: An Assessment of the Quality of Patient Information Materials , 1999, BMJ.

[37]  Khan Mk,et al.  Health literacy: report of the Council on Scientific Affairs. Ad Hoc Committee on Health Literacy for the Council on Scientific Affairs, American Medical Association. , 1999, JAMA.

[38]  Mark J Sculpher,et al.  Effects of decision aids for menorrhagia on treatment choices, health outcomes, and costs: a randomized controlled trial. , 2002, JAMA.

[39]  C. V. van Boeijen,et al.  Efficacy of self-help manuals for anxiety disorders in primary care: a systematic review. , 2005, Family practice.

[40]  A Coulter,et al.  Sharing decisions with patients: is the information good enough? , 1999, BMJ.

[41]  G. Humphris,et al.  Randomised trial of the psychological effect of information about oral cancer in primary care settings. , 2001, Oral oncology.

[42]  S. Bull,et al.  Reaching those most in need: a review of diabetes self‐management interventions in disadvantaged populations , 2002, Diabetes/metabolism research and reviews.

[43]  R. Thomson,et al.  Decision aids for people facing health treatment or screening decisions. , 2003, The Cochrane database of systematic reviews.

[44]  eEurope 2002: Quality Criteria for Health related Websites , 2002, Journal of medical Internet research.

[45]  D. Wantland,et al.  The Effectiveness of Web-Based vs. Non-Web-Based Interventions: A Meta-Analysis of Behavioral Change Outcomes , 2004, Journal of medical Internet research.

[46]  A. Creutzig,et al.  [Clinical evidence]. , 2001, VASA. Zeitschrift fur Gefasskrankheiten.

[47]  David A. Kindig,et al.  Health literacy : a prescription to end confusion , 2004 .

[48]  Vikki Entwistle,et al.  Informing patients: an assessment of the quality of patient information materials Informing patients: an assessment of the quality of patient information materials Coulter Angela Entwisde Vikki Gilbert David King's Fund 219pp £16.95 1-85717-2144-0 18571721440. , 1999, Nursing Standard.

[49]  A. Laizner,et al.  Exploring the value of audiotapes for health literacy: a systematic review. , 2005, Patient education and counseling.