Quality of life, health-related quality of life, and associated factors in Huntington’s disease: a systematic review
暂无分享,去创建一个
N. Chavannes | R. Moldovan | J. Roth | J. Klempír | J. Hoblyn | S. Migliore | F. Squitieri | T. Burke | P. Foley | E. Scaricamazza | G. Landwehrmeyer | O. Ulmanová | E. Meijer | B. D’Alessio | Sabrina Maffi | Muthukumaran Thangaramanujam | E. van Duijn | O. Klempířová | K. Doleckova | C. Di Giorgio | Melissa Casella | A. Mühlbäck | E. O’Malley | Stephen McKenna | S. D. de Bot | W. Frank | J. Thorpe | Pearl J C van Lonkhuizen | Anne-Wil Heemskerk | I. McKenna | J. Kerr | Pearl J. C. van Lonkhuizen | Niels H. Susanne T. Pearl J. C G. Bernhard Franziska Jiř Chavannes de Bot van Lonkhuizen Landwehrmey | Franziska Steck | Romama Konvalinková | Eva Bezuchová | Anna Coffey
[1] A. Exuzides,et al. Understanding the Burdens Associated with Huntington’s Disease in Manifest Patients and Care Partners–Comparing to Parkinson’s Disease and the General Population , 2022, Brain sciences.
[2] E. Mayo-Wilson,et al. The PRISMA 2020 statement: An updated guideline for reporting systematic reviews. , 2021, Journal of clinical epidemiology.
[3] K. Borg,et al. TOLERABILITY AND PSYCHOLOGICAL EFFECTS OF A MULTIMODAL DAY-CARE REHABILITATION PROGRAMME FOR PERSONS WITH HUNTINGTON’S DISEASE , 2020, Journal of rehabilitation medicine.
[4] N. Carlozzi,et al. Perceptions of the impact of chorea on health-related quality of life in Huntington disease (HD): A qualitative analysis of individuals across the HD spectrum, family members, and clinicians , 2020, Neuropsychological rehabilitation.
[5] R. Reilmann,et al. Movement Disorder Society Task Force Viewpoint: Huntington's Disease Diagnostic Categories , 2019, Movement disorders clinical practice.
[6] L. Quinn,et al. Quality of Life in Huntington's Disease: Critique and Recommendations for Measures Assessing Patient Health‐Related Quality of Life and Caregiver Quality of Life , 2018, Movement disorders : official journal of the Movement Disorder Society.
[7] A. Bentivoglio,et al. The contribution of gender differences in motor, behavioral and cognitive features to functional capacity, independence and quality of life in patients with Huntington's disease. , 2018, Parkinsonism & related disorders.
[8] M. Geschwind,et al. Clinical Neurology and Epidemiology of the Major Neurodegenerative Diseases. , 2018, Cold Spring Harbor perspectives in biology.
[9] Jane S. Paulsen,et al. Relationships Among Apathy, Health-Related Quality of Life, and Function in Huntington's Disease. , 2018, The Journal of neuropsychiatry and clinical neurosciences.
[10] P. McColgan,et al. Huntington's disease: a clinical review , 2018, European journal of neurology.
[11] P. Dayalu,et al. Huntington’s Disease—Update on Treatments , 2017, Current Neurology and Neuroscience Reports.
[12] N. Andelic,et al. Health-related quality of life and unmet healthcare needs in Huntington’s disease , 2017, Health and Quality of Life Outcomes.
[13] C. Demetriou,et al. Quality of Life of Cypriot Patients Suffering with Huntington’s Disease , 2016, PLoS currents.
[14] J. Brazier,et al. Health, Health-Related Quality of Life, and Quality of Life: What is the Difference? , 2016, PharmacoEconomics.
[15] E. Clay,et al. The quality of life of Spanish patients with Huntington's disease measured with H-QoL-I and EQ-5D , 2016, Journal of market access & health policy.
[16] M. Ziman,et al. Respiratory muscle training on pulmonary and swallowing function in patients with Huntington’s disease: a pilot randomised controlled trial , 2015, Clinical rehabilitation.
[17] Graciela H. Tonon. Qualitative Studies in Quality of Life , 2015 .
[18] M. Hayden,et al. Huntington disease , 2015, Nature Reviews Disease Primers.
[19] W. Poewe,et al. Prädiktoren der psychischen und physischen Lebensqualität beim Morbus Huntington , 2015, Der Nervenarzt.
[20] R. Reilmann,et al. Diagnostic criteria for Huntington's disease based on natural history , 2014, Movement disorders : official journal of the Movement Disorder Society.
[21] H. Rickards,et al. Putting things into perspective: the nature and impact of theory of mind impairment in Huntington’s disease , 2014, European Archives of Psychiatry and Clinical Neuroscience.
[22] S. Knutsen,et al. Effects of a Two-Year Intensive Multidisciplinary Rehabilitation Program for Patients with Huntington’s Disease: a Prospective Intervention Study , 2013, PLoS currents.
[23] S. Knutsen,et al. Effects of a One Year Intensive Multidisciplinary Rehabilitation Program for Patients with Huntington’s Disease: a Prospective Intervention Study , 2013, PLoS currents.
[24] H. Rickards,et al. Impact of cognitive and behavioural changes on quality of life in Huntington's disease , 2013 .
[25] Jane S. Paulsen,et al. Psychological well-being in persons affected by Huntington’s disease: A comparison of at-risk, prodromal, and symptomatic groups , 2013, Journal of health psychology.
[26] D. Tulsky,et al. Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease , 2013, Journal of health psychology.
[27] T. Hoppitt,et al. Health-related quality of life and supportive care in patients with rare long-term neurological conditions , 2013, Quality of Life Research.
[28] M. Rudzińska,et al. Huntington’s disease from the patient, caregiver and physician’s perspectives: three sides of the same coin? , 2012, Journal of Neural Transmission.
[29] Jane S. Paulsen,et al. Quality of Life in Prodromal HD: Qualitative Analyses of Discourse from Participants and Companions , 2011, Neurology research international.
[30] R. Roos,et al. Huntington's disease: a clinical review , 2010, Orphanet journal of rare diseases.
[31] M. McCabe,et al. A longitudinal study of economic pressure among people living with a progressive neurological illness , 2009, Chronic illness.
[32] R. Barker,et al. Health‐related quality of life in Huntington's disease: Which factors matter most? , 2009, Movement disorders : official journal of the Movement Disorder Society.
[33] J. Barth,et al. Mental health and quality of life after genetic testing for Huntington disease: A long‐term effect study in Germany , 2008, American journal of medical genetics. Part A.
[34] Jane S. Paulsen,et al. Patient and caregiver quality of life in Huntington's disease , 2008, Movement disorders : official journal of the Movement Disorder Society.
[35] J. Hamming,et al. Measuring quality of life , 2007, The British journal of surgery.
[36] M. Nance. Comprehensive care in Huntington's disease A physician's perspective , 2007, Brain Research Bulletin.
[37] W. Budts,et al. Caliber of quality-of-life assessments in congenital heart disease: a plea for more conceptual and methodological rigor. , 2004, Archives of pediatrics & adolescent medicine.
[38] A. Tibben,et al. A hereditary disorder in the family and the family life cycle: Huntington disease as a paradigm. , 2002, Family process.
[39] S. Saxena,et al. The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization. , 1995, Social science & medicine.
[40] T M Gill,et al. A critical appraisal of the quality of quality-of-life measurements. , 1994, JAMA.