Effects of training and support programs for leaders of illness-based support groups: commentary and updated evidence

[1]  B. Thombs,et al.  Training and support needs of scleroderma support group facilitators: the North American Scleroderma Support Group Facilitators Survey , 2019, Disability and rehabilitation.

[2]  B. Thombs,et al.  Reasons for attending support groups and organizational preferences: the European scleroderma support group members survey , 2019, Disability and rehabilitation.

[3]  B. Thombs,et al.  Reasons for Not Participating in Scleroderma Patient Support Groups: A Cross‐Sectional Study , 2018, Arthritis care & research.

[4]  Lorie A. Kloda,et al.  Perceived Benefits and Factors that Influence the Ability to Establish and Maintain Patient Support Groups in Rare Diseases: A Scoping Review , 2017, The Patient - Patient-Centered Outcomes Research.

[5]  Lorie A. Kloda,et al.  Effect of support group peer facilitator training programmes on peer facilitator and support group member outcomes: a systematic review , 2016, BMJ Open.

[6]  B. Thombs,et al.  Reasons for non-participation in scleroderma support groups. , 2016, Clinical and experimental rheumatology.

[7]  P. Butow,et al.  SUPPORTING THE SUPPORTERS: A RANDOMIZED CONTROLLED TRIAL OF INTERVENTIONS TO ASSIST THE LEADERS OF CANCER SUPPORT GROUPS , 2015 .

[8]  R. Steele,et al.  The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context , 2013, BMJ Open.

[9]  H. Cook.  Find a support group , 2013 .

[10]  R. Steele,et al.  New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN). , 2012, Clinical and experimental rheumatology.

[11]  P. Butow,et al.  Exploring the impact of training on the experience of Australian support group leaders: current practices and implications for research , 2010, Health expectations : an international journal of public participation in health care and health policy.

[12]  A. Reimann,et al.  Patientenzentrierte Versorgung bei seltenen Erkrankungen , 2007, Bundesgesundheitsblatt - Gesundheitsforschung - Gesundheitsschutz.

[13]  P. Butow,et al.  What do cancer support groups provide which other supportive relationships do not? The experience of peer support groups for people with cancer. , 2006, Social science & medicine.

[14]  P. Butow,et al.  Sustaining Leaders of Cancer Support Groups , 2006, Social work in health care.

[15]  S Gary Firestein,et al.  Kelley's Textbook of Rheumatology , 2004 .

[16]  A. Docherty,et al.  Experience, functions and benefits of a cancer support group. , 2004, Patient education and counseling.

[17]  H. Stam,et al.  Cancer Narratives and the Cancer Support Group , 2003, Journal of health psychology.

[18]  R. Nelissen,et al.  Orthopaedic sequelae in neurologically recovered obstetrical brachial plexus injury. Case study and literature review , 2003, Disability and rehabilitation.

[19]  T. Al-Sayed,et al.  Clinical features of systemic sclerosis. , 2001, Saudi medical journal.

[20]  Hugh Gordon,et al.  Scleroderma , 1937 .

[21]  M. Mayes.  Systemic Sclerosis A. Clinical Features , 2007 .

[22]  Penelope R. Williamson ScD,et al.  Support Groups , 2019, The SAGE Encyclopedia of Human Communication Sciences and Disorders.

[23]  D. Boud,et al.  The challenge of problem-based learning 2nd ed , 1997 .

[24]  Imogen Taylor,et al.  The challenge of problem-based learning , 1997 .

[25]  J. Gladman,et al.  The role of leisure in stroke rehabilitation. , 1997, Disability and rehabilitation.