Methods and initial findings from the Durham Diabetes Coalition: Integrating geospatial health technology and community interventions to reduce death and disability

Objective The Durham Diabetes Coalition (DDC) was established in response to escalating rates of disability and death related to type 2 diabetes mellitus, particularly among racial/ethnic minorities and persons of low socioeconomic status in Durham County, North Carolina. We describe a community-based demonstration project, informed by a geographic health information system (GHIS), that aims to improve health and healthcare delivery for Durham County residents with diabetes. Materials and Methods A prospective, population-based study is assessing a community intervention that leverages a GHIS to inform community-based diabetes care programs. The GHIS integrates clinical, social, and environmental data to identify, stratify by risk, and assist selection of interventions at the individual, neighborhood, and population levels. Results The DDC is using a multifaceted approach facilitated by GHIS to identify the specific risk profiles of patients and neighborhoods across Durham County. A total of 22,982 patients with diabetes in Durham County were identified using a computable phenotype. These patients tended to be older, female, African American, and not covered by private health insurance, compared with the 166,041 persons without diabetes. Predictive models inform decision-making to facilitate care and track outcomes. Interventions include: 1) neighborhood interventions to improve the context of care; 2) intensive team-based care for persons in the top decile of risk for death or hospitalization within the coming year; 3) low-intensity telephone coaching to improve adherence to evidence-based treatments; 4) county-wide communication strategies; and 5) systematic quality improvement in clinical care. Conclusions To improve health outcomes and reduce costs associated with type 2 diabetes, the DDC is matching resources with the specific needs of individuals and communities based on their risk characteristics.

[1]  Suzette J. Bielinski,et al.  Use of diverse electronic medical record systems to identify genetic risk for type 2 diabetes within a genome-wide association study , 2012, J. Am. Medical Informatics Assoc..

[2]  Iain A. Sanderson,et al.  The future of cardiovascular clinical research: informatics, clinical investigators, and community engagement. , 2012, JAMA.

[3]  Howard H. Chang,et al.  Proximity to roadways and pregnancy outcomes , 2013, Journal of Exposure Science and Environmental Epidemiology.

[4]  Bradley D Schultz,et al.  Assessing the impact of race, social factors and air pollution on birth outcomes: a population-based study , 2014, Environmental Health.

[5]  W. Alexander,et al.  American diabetes association. , 2010, P & T : a peer-reviewed journal for formulary management.

[6]  Lessons from Medicare’s Demonstration Projects on Disease Management, Care Coordination, and Value-Based Payment , 2011 .

[7]  D. Berwick,et al.  The triple aim: care, health, and cost. , 2008, Health affairs.

[8]  Frederick R. Broome,et al.  Geographic information systems (GIS): new perspectives in understanding human health and environmental relationships. , 1996, Statistics in medicine.

[9]  R. Holman,et al.  Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes (UKPDS 33). UK Prospective Diabetes Study (UKPDS) Group. , 1998 .

[10]  A. Gelfand,et al.  A spatial measure of neighborhood level racial isolation applied to low birthweight, preterm birth, and birthweight in North Carolina. , 2011, Spatial and spatio-temporal epidemiology.

[11]  P. Hogan,et al.  Economic Costs of Diabetes in the U , 2013 .

[12]  Sharon E. Edwards,et al.  Race, socioeconomic status, and air pollution exposure in North Carolina. , 2013, Environmental research.

[13]  Adrienne Y. Stith,et al.  Unequal treatment: confronting racial and ethnic disparities in health care. , 2003 .

[14]  T. Richards,et al.  Geographic information systems and public health: mapping the future. , 1999, Public health reports.

[15]  R. Jackson,et al.  The future of population registers: linking routine health datasets to assess a population's current glycaemic status for quality improvement , 2014, BMJ Open.

[16]  Plamen Nikolov,et al.  Economic Costs of Diabetes in the U.S. in 2002 , 2003, Diabetes care.

[17]  Michelle M. Smerek,et al.  Improving population representation through geographic health information systems: mapping the MURDOCK study. , 2014, American journal of translational research.

[18]  Marie Lynn Miranda,et al.  Geographic health information systems: a platform to support the 'triple aim'. , 2013, Health affairs.

[19]  E John Orav,et al.  Contribution of preventable acute care spending to total spending for high-cost Medicare patients. , 2013, JAMA.

[20]  Norman Fleischer,et al.  The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial Research Group. , 1993 .

[21]  Adrienne Y. Stith,et al.  Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care , 2005 .

[22]  Russell S. Kirby,et al.  The Dartmouth Atlas of Health Care , 1998 .

[23]  Marie Lynn Miranda,et al.  Geocoding Large Population‐level Administrative Datasets at Highly Resolved Spatial Scales , 2014, Trans. GIS.

[24]  M. Miranda,et al.  Associations between the Quality of the Residential Built Environment and Pregnancy Outcomes among Women in North Carolina , 2011, Environmental health perspectives.

[25]  J. Car,et al.  Integrated care pilot in north-west London: a mixed methods evaluation , 2013, International journal of integrated care.

[26]  Jay R. Desai,et al.  Construction of a Multisite DataLink Using Electronic Health Records for the Identification, Surveillance, Prevention, and Management of Diabetes Mellitus: The SUPREME-DM Project , 2012, Preventing chronic disease.

[27]  L. Nelson Lessons from Medicare's Demonstration Projects on Disease Management and Care Coordination: Working Paper 2012-01 , 2012 .

[28]  Marybeth Farquhar,et al.  AHRQ Quality Indicators , 2008 .

[29]  James Albers,et al.  Neuropathy among the diabetes control and complications trial cohort 8 years after trial completion. , 2006, Diabetes care.

[30]  E. Araki,et al.  Intensive insulin therapy prevents the progression of diabetic microvascular complications in Japanese patients with non-insulin-dependent diabetes mellitus: a randomized prospective 6-year study. , 1995, Diabetes research and clinical practice.

[31]  Jennifer G. Robinson,et al.  Electronic health records based phenotyping in next-generation clinical trials: a perspective from the NIH Health Care Systems Collaboratory. , 2013, Journal of the American Medical Informatics Association : JAMIA.

[32]  Sheryl M Davies,et al.  AHRQ Quality Indicators Guide to Prevention Quality Indicators : Hospital Admission for Ambulatory Care Sensitive Conditions , 2001 .

[33]  Desmond E. Williams,et al.  Full Accounting of Diabetes and Pre-Diabetes in the U.S. Population in 1988–1994 and 2005–2006 , 2009, Diabetes Care.

[34]  R. Holman,et al.  10-year follow-up of intensive glucose control in type 2 diabetes. , 2008, The New England journal of medicine.

[35]  Hayden B Bosworth,et al.  Intentional and Unintentional Nonadherence to Antihypertensive Medication , 2005, The Annals of pharmacotherapy.

[36]  Marie Lynn Miranda,et al.  The Built Environment and Childhood Obesity in Durham, North Carolina , 2012, Clinical pediatrics.

[37]  Richard Smith,et al.  Dartmouth Atlas of Health Care , 2011, BMJ : British Medical Journal.

[38]  S. Genuth,et al.  The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. , 1993, The New England journal of medicine.

[39]  M. Miranda,et al.  The Urban Built Environment and Associations with Women’s Psychosocial Health , 2013, Journal of Urban Health.

[40]  R. Holman,et al.  Association of glycaemia with macrovascular and microvascular complications of type 2 diabetes (UKPDS 35): prospective observational study , 2000, BMJ : British Medical Journal.

[41]  R. Holman,et al.  Effect of intensive blood-glucose control with metformin on complications in overweight patients with type 2 diabetes (UKPDS 34) , 1998, The Lancet.

[42]  J. Kaufman,et al.  Racial Residential Segregation and Preterm Birth: Built Environment as a Mediator , 2014, Epidemiology.

[43]  C. Ward‐Caviness,et al.  Association of Roadway Proximity with Fasting Plasma Glucose and Metabolic Risk Factors for Cardiovascular Disease in a Cross-Sectional Study of Cardiac Catheterization Patients , 2015, Environmental health perspectives.

[44]  Matthew D. Davis,et al.  Retinopathy and nephropathy in patients with type 1 diabetes four years after a trial of intensive therapy. , 2000, The New England journal of medicine.