Concordance Between Respondent Self‐reports and Medical Records for Chronic Conditions: Experience From the Veterans Health Study

Researchers have frequently relied on case identification using clinician-based screening as the standard. This study evaluates a self-administered screening questionnaire developed for use in the Veterans Health Study. We compared concordance between elderly patients' reports of selected chronic illnesses and the medical record. The purpose of this study was to determine the feasibility of using a self-report screening questionnaire for case identification in an outcomes study of elderly respondents. Reports of the presence of selected chronic illnesses were compared in a sample of patients (N = 402) receiving outpatient care between 2 data sources, patient self-report and medical record, to determine overall concordance in 5 common chronic conditions (hypertension, adult-onset diabetes mellitus, chronic low-back pain, osteoarthritis of the knee, and chronic lung disease). Discordance between the 2 data sources varied by condition. Differences in reporting were small for diabetes and hypertension, intermediate for chronic lung disease, and larger for osteoarthritis of the knee and chronic low-back pain, where the chart did not identify substantial proportions of cases reported in the questionnaire. Use of patient-reported screening questionnaires, which are self-administered, is a valid, cost-efficient method to identify some chronic illnesses. Using medical records alone may result in underestimation of some symptom-based conditions.

[1]  Donald R. Miller,et al.  Study Design and Sampling in the Veterans Health Study , 2004, The Journal of ambulatory care management.

[2]  S. Osganian,et al.  Prehospital Delay in Individuals with Acute Coronary Disease: Concordance of Medical Records and Follow-Up Phone Interviews , 2002, Cardiology.

[3]  P. Selby,et al.  Self-reported quality of life of individual cancer patients: concordance of results with disease course and medical records. , 2001, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[4]  J. Guelfi,et al.  Concordance between self-report and clinician's assessment of depression. , 1999, Journal of psychiatric research.

[5]  L. Kazis,et al.  Health-related quality of life in patients served by the Department of Veterans Affairs: results from the Veterans Health Study. , 1998, Archives of internal medicine.

[6]  C Safran,et al.  Predicting In‐Hospital Mortality The Importance of Functional Status Information , 1995, Medical care.

[7]  C. Minder,et al.  The relation of reported symptoms to social, individual, and behavioral indicators of ill-health: is the number of reported symptoms a unique general dimension of ill-health? , 1995, Journal of clinical epidemiology.

[8]  S. Leatherman,et al.  Using Claims Data for Epidemiologic Research: The Concordance of Claims-Based Criteria With the Medical Record and Patient Survey for Identifying a Hypertensive Population , 1993, Medical care.

[9]  A. Aromaa,et al.  Reliability and validity of interview data on chronic diseases. The Mini-Finland Health Survey. , 1993, Journal of clinical epidemiology.

[10]  K. Midthjell,et al.  Is questionnaire information valid in the study of a chronic disease such as diabetes? The Nord-Trøndelag diabetes study. , 1992, Journal of epidemiology and community health.

[11]  M. Adams,et al.  Patients as Reliable Reporters of Medical Care Process: Recall of Ambulatory Encounter Events , 1992, Medical care.

[12]  G. Klerman,et al.  Determinants of perceived health status of medical outpatients. , 1992, Social science & medicine.

[13]  S. Kasl,et al.  Health perceptions and survival: do global evaluations of health status really predict mortality? , 1991, Journal of gerontology.

[14]  S. Harlow,et al.  Agreement between questionnaire data and medical records. The evidence for accuracy of recall. , 1989, American journal of epidemiology.

[15]  W. Willett,et al.  Validation of questionnaire information on risk factors and disease outcomes in a prospective cohort study of women. , 1986, American journal of epidemiology.

[16]  A. B. Barnes,et al.  A comparison of pregnancy history recall and medical records. Implications for retrospective studies. , 1985, American journal of epidemiology.

[17]  S. M. Putnam,et al.  The Validity of the Medical Record , 1981, Medical care.

[18]  L. Demlo,et al.  Reliability of Information Abstracted from Patients' Medical Records , 1978, Medical care.

[19]  J. Fleiss,et al.  Statistical methods for rates and proportions , 1973 .

[20]  J. Morley,et al.  Applying health services research to long-term care , 1996 .

[21]  A. Stewart,et al.  Measuring Functioning and Well-Being: The Medical Outcomes Study Approach , 1992 .

[22]  H. Bryant,et al.  Records, recall loss, and recall bias in pregnancy: a comparison of interview and medical records data of pregnant and postnatal women. , 1989, American journal of public health.