‘We do things together’

The value of the single case study is well established in dementia care with the seminal contributions of Alzheimer and Kitwood being based on the study of individuals. This article presents a case study of an elderly married couple living with dementia and explores how their relationship has continued to flourish. In drawing on their story we highlight ways in which both partners seek to ‘maintain involvement’ of the person with dementia (PWD) (Keady, 1999), and consider the various types of ‘work’ that is required. We suggest that whilst the ‘personhood’ of the PWD as an individual has received much recent attention, a consideration of ‘couplehood’ is also essential to a full understanding of how spouses live with and respond to the impact of dementia.

[1]  R. Montgomery,et al.  Implications of differential impacts of care-giving for future research on Alzheimer care , 2001, Aging & mental health.

[2]  Robert Baldwin National Service Framework for Older People , 2003 .

[3]  C. Vassy,et al.  [The awareness of dying]. , 1993, Soins; la revue de reference infirmiere.

[4]  H. S. Wilson,et al.  Early probable Alzheimer's disease and awareness context theory. , 1997, Social science & medicine.

[5]  B. Heyman Researching user perspectives on community health care , 1995 .

[6]  Murna Downs,et al.  The Emergence of the Person in Dementia Research , 1997, Ageing and Society.

[7]  M. Rodwell Social work constructivist research , 1998 .

[8]  C. MacDonald Nurse Autonomy as Relational , 2002, Nursing ethics.

[9]  G. Grant,et al.  Defining 'people-centredness': making the implicit explicit. , 1998, Health & social care in the community.

[10]  B. Gillies A memory like clockwork: Accounts of living through dementia , 2000 .

[11]  Diana Friel McGowin Living in the Labyrinth: A Personal Journey Through the Maze of Alzheimer's , 1992 .

[12]  Rolf Rønning In defence of care: The importance of care as a positive concept , 2002 .

[13]  Relationship Difficulties in Dementia Care , 2003 .

[14]  Peter Crome,et al.  The National Service Framework for Older People , 2004, Drugs & aging.

[15]  Tom Carney Fourth Generation Evaluation , 1991 .

[16]  T. Kitwood,et al.  Towards a Theory of Dementia Care: Personhood and Well-being , 1992, Ageing and Society.

[17]  A. Phinney Fluctuating Awareness and the Breakdown of the Illness Narrative in Dementia , 2002 .

[18]  M. Devine Partnerships in Family Care: Understanding the caregiving career , 2005 .

[19]  B. Davis,et al.  My Journey Into Alzheimer's Disease , 1989 .

[20]  J. Keady,et al.  Younger-onset Alzheimer's disease: learning from the experience of one spouse carer. , 1995, Journal of clinical nursing.

[21]  R. Stake The art of case study research , 1995 .

[22]  Alison Bowes,et al.  The Perspectives of People with Dementia , 2001 .

[23]  R. Woods,et al.  Discovering the person with Alzheimer's disease: Cognitive, emotional and behavioural aspects , 2001, Aging & mental health.

[24]  D. Omdahl Unending Work and Care: Managing Chronic Illness at Home , 1989 .

[25]  N. Denzin,et al.  Handbook of Qualitative Research , 1994 .

[26]  S. Hunter Dementia : challenges and new directions , 1997 .

[27]  P. Clark Values and voices in teaching gerontology and geriatrics: case studies as stories. , 2002, The Gerontologist.

[28]  C. Clarke,et al.  Dementia Care: Developing Partnerships in Practice , 1999 .

[29]  J. Morse Critical Issues in Qualitative Research Methods , 1993 .

[30]  A. Phinney Living with dementia from the patient's perspective. , 1998, Journal of gerontological nursing.

[31]  J. Keady The dynamics of dementia : a modified grounded theory study , 1999 .

[32]  Philip B. Stafford,et al.  The Culture of Long Term Care: Nursing Home Ethnography , 1995 .

[33]  David Jolley Hearing the Voice of People with Dementia: Opportunities and Obstacles By Malcolm Goldsmith. London: Jessica Kingsley. 1996. 182 pp. £12.95 (pb) , 1997 .

[34]  L. Clare Developing Awareness about Awareness in Early-Stage Dementia , 2002 .

[35]  J. Keady,et al.  1 The dynamics of dementia : working together , working separately , or working alone ? , 2003 .

[36]  J. Yorgason,et al.  Successful Aging: What's Not to Like? , 1999 .

[37]  M. Bassey Pedagogic Research: on the relative merits of search for generalisation and study of single events , 1981 .

[38]  C. Warwick The new NHS: modern dependable , 1998 .

[39]  C. Whitlatch Including the person with dementia in family care-giving research , 2001, Aging & mental health.

[40]  H. Kivnick,et al.  Vital Involvement: An Overlooked Source of Identity in Frail Elders , 1997 .

[41]  L. Flicker Dementia Reconsidered: the Person Comes First , 1999, BMJ.

[42]  Brendan McCormack Negotiating Partnerships with Older People: A Person Centred Approach , 2001 .