Security and Access of Health Research Data

The objective of this study is to discover how to maximise the use of health research data without breaching the patient’s confidentiality. To achieve this, we have examined available options identified in enhancing information security of health research data. It has been noted that there are gaps in information security for health research data. Our novel approach, searching through encrypted data is discussed in this paper.

[1]  Stephen B. Johnson,et al.  Multicenter Patient Records Research , 1999 .

[2]  Lucila Ohno-Machado,et al.  Disambiguation Data: Extracting Information from Anonymized Sources , 2002, J. Am. Medical Informatics Assoc..

[3]  Catherine Quantin,et al.  Anonymous statistical methods versus cryptographic methods in epidemiology , 2000, Int. J. Medical Informatics.

[4]  Matthew K. Franklin,et al.  Identity-Based Encryption from the Weil Pairing , 2001, CRYPTO.

[5]  W. Barlow,et al.  Current medicolegal and confidentiality issues in large, multicenter research programs. , 2000, American journal of epidemiology.

[6]  M. Bellare,et al.  Searchable Encryption Revisited: Consistency Properties, Relation to Anonymous IBE, and Extensions , 2008, Journal of Cryptology.

[7]  Joonsang Baek,et al.  On the Integration of Public Key Data Encryption and Public Key Encryption with Keyword Search , 2006, ISC.

[8]  Rathindra Sarathy,et al.  Can You Have Your Cake and Eat It Too? Sharing Healthcare Data Without Compromising Privacy and Confidentiality , 2005, AMCIS.

[9]  Dawn Xiaodong Song,et al.  Practical techniques for searches on encrypted data , 2000, Proceeding 2000 IEEE Symposium on Security and Privacy. S&P 2000.

[10]  P. Cox Using patient identifiable data without consent , 2001, BMJ : British Medical Journal.

[11]  Joonsang Baek,et al.  Public Key Encryption with Keyword Search Revisited , 2008, ICCSA.

[12]  A. Fraser Privacy and the secondary use of data in health research in Scotland , 2003, Journal of health services research & policy.

[13]  J Dudeck Informed consent for cancer registration. , 2001, The Lancet. Oncology.

[14]  K. Win A Review of Security of Electronic Health Records , 2005, Health information management : journal of the Health Information Management Association of Australia.

[15]  Lucila Ohno-Machado,et al.  Protecting patient privacy by quantifiable control of disclosures in disseminated databases , 2004, Int. J. Medical Informatics.

[16]  Costas Lambrinoudakis,et al.  A security architecture for interconnecting health information systems , 2004, Int. J. Medical Informatics.

[17]  Karim Keshavjee,et al.  Patients' consent preferences for research uses of information in electronic medical records: interview and survey data , 2003, BMJ : British Medical Journal.

[18]  W. Lowrance,et al.  Learning from experience: privacy and the secondary use of data in health research. , 2003, Journal of health services research & policy.

[19]  Behlen Fm,et al.  Multicenter patient records research: security policies and tools. , 1999 .

[20]  Jeffrey M Drazen,et al.  Registry research and medical privacy. , 2004, The New England journal of medicine.