Development and assessment of a shortened Quality of Life in Childhood Epilepsy Questionnaire (QOLCE‐55)

To develop and validate a shortened version of the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE). A secondary aim was to compare baseline risk factors predicting health‐related quality of life (HRQoL) in children newly diagnosed with epilepsy, as identified using the original and shortened version.

[1]  Marilyn A. McCubbin,et al.  Family assessment : resiliency, coping and adaptation : inventories for research and practice , 1996 .

[2]  Diana Adler,et al.  Using Multivariate Statistics , 2016 .

[3]  L. Angeles.  Evaluating Cutoff Criteria of Model Fit Indices for Latent Variable Models with Binary and Continuous Outcomes , 2002 .

[4]  T. Kurashige,et al.  Proposal for Revised Classification of Epilepsies and Epileptic Syndromes , 1989, No to hattatsu = Brain and development.

[5]  D. Dillman,et al.  EFFECTS OF QUESTIONNAIRE LENGTH, RESPONDENT-FRIENDLY DESIGN, AND A DIFFICULT QUESTION ON RESPONSE RATES FOR OCCUPANT-ADDRESSED CENSUS MAIL SURVEYS , 1993 .

[6]  M. Boyle,et al.  Health-related quality of life in youth with epilepsy: Theoretical model for clinicians and researchers. Part I: The role of epilepsy and co-morbidity , 2006, Quality of Life Research.

[7]  P. Bentler,et al.  Cutoff criteria for fit indexes in covariance structure analysis : Conventional criteria versus new alternatives , 1999 .

[8]  C. Harris,et al.  Assessment of health-related quality of life in children and adolescents: an integrative review. , 1996, Journal of pediatric psychology.

[9]  G. Smilkstein,et al.  The family APGAR: a proposal for a family function test and its use by physicians. , 1978, The Journal of family practice.

[10]  U. S. Department of Health and Human Services FDA Cen Research,et al.  Guidance for industry: patient-reported outcome measures: use in medical product development to support labeling claims: draft guidance , 2006, Health and quality of life outcomes.

[11]  A. Bye,et al.  Validation of a New Quality of Life Measure for Children with Epilepsy , 2000, Epilepsia.

[12]  M. Hallett,et al.  Deficient activation of the motor cortical network in patients with writer’s cramp , 1999, Neurology.

[13]  P. Bentler,et al.  Significance Tests and Goodness of Fit in the Analysis of Covariance Structures , 1980 .

[14]  S. Shinnar,et al.  Long-term prognosis of seizures with onset in childhood. , 1998, The New England journal of medicine.

[15]  M. Eliasziw,et al.  Assessing severity of epilepsy in children: Preliminary evidence of validity and reliability of a single-item scale , 2008, Epilepsy & Behavior.

[16]  Sharon Davies Mbbs MRCPsych,et al.  A population survey of mental health problems in children with epilepsy , 2003 .

[17]  A. Bye,et al.  Validation of the Quality of Life in Childhood Epilepsy Questionnaire in American epilepsy patients , 2003, Epilepsy & Behavior.

[18]  Hamilton I McCubbin,et al.  FILE: Family Inventory of Life Events and Changes , 1985 .

[19]  P. Kellaway,et al.  Proposal for Revised Clinical and Electroencephalographic Classification of Epileptic Seizures , 1981, Epilepsia.

[20]  D. Dunn,et al.  Children with Epilepsy: Quality of Life and Psychosocial Needs , 2000, Annual Review of Nursing Research.

[21]  Arnold Zellner,et al.  Introduction to Measurement with Theory , 2009 .

[22]  P. Camfield,et al.  Idiopathic generalized epilepsy with generalized tonic-clonic seizures (IGE-GTC): A population-based cohort with >20year follow up for medical and social outcome , 2010, Epilepsy & Behavior.

[23]  M. Browne,et al.  Alternative Ways of Assessing Model Fit , 1992 .

[24]  Duane T. Wegener,et al.  Evaluating the use of exploratory factor analysis in psychological research. , 1999 .

[25]  I. Scheffer,et al.  The health‐related quality of life of childhood epilepsy syndromes , 2003, Journal of paediatrics and child health.

[26]  Justin A Cowan,et al.  A Review of Subjective Impact Measures for Use with Children and Adolescents with Epilepsy , 2004, Quality of Life Research.

[27]  E. Perrin,et al.  Cautions in using the Child Behavior Checklist: observations based on research about children with a chronic illness. , 1991, Journal of pediatric psychology.

[28]  J. Ware,et al.  Measuring Components of Children's Health Status , 1979, Medical care.

[29]  A. Jennekens‐Schinkel,et al.  Not only a matter of epilepsy: early problems of cognition and behavior in children with "epilepsy only"--a prospective, longitudinal, controlled study starting at diagnosis. , 2003, Pediatrics.

[30]  R. Doughty,et al.  Measuring health-related quality of life. , 1999, The New Zealand medical journal.

[31]  Isobel Heyman,et al.  A population survey of mental health problems in children with epilepsy , 2003, Developmental medicine and child neurology.

[32]  Josemir W Sander,et al.  The global burden and stigma of epilepsy , 2008, Epilepsy & Behavior.

[33]  M. Duchowny,et al.  The impact of epilepsy surgery on quality of life in children , 2006, Neurology.

[34]  Guang Yong Zou,et al.  On the estimation of additive interaction by use of the four-by-two table and beyond. , 2008, American journal of epidemiology.

[35]  G. Baker,et al.  Epilepsy, psychosocial and cognitive functioning , 2009, Epilepsy Research.