Heart failure registries: how far can we go?

Heart failure (HF) registries have developed into powerful survey tools providing valuable epidemiological data and contributing crucially to our understanding of this syndrome.1 A recent study identified 23 registries (43% multinational and 57% national) reporting data for HF patients.2 Those registries concerned acute HF (31%), chronic HF (43%), and both acute and chronic HF (26%). The number of patients included varied from 1037 to 25 000 and the average follow-up ranged from 3 months to 53 months. The accumulated evidence concerned patient demographics (in 100% of registries), co-morbidities (87%), diagnosis and disease classification (78%), mortality (78%), hospitalization (96%), prescribed drugs (100%), and patient-reported outcomes (17%).

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[12]  G. Filippatos,et al.  Temporal trends in epidemiology, clinical presentation and management of acute heart failure: results from the Greek cohorts of the Acute Heart Failure Global Registry of Standard Treatment and the European Society of Cardiology-Heart Failure pilot survey. , 2014, European heart journal. Acute cardiovascular care.

[13]  K. Sliwa,et al.  Readmission and death after an acute heart failure event: predictors and outcomes in sub-Saharan Africa: results from the THESUS-HF registry. , 2013, European heart journal.

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[15]  Gerasimos Filippatos,et al.  Heart failure diagnosis and prognosis in the elderly: the proof of the pudding is in the eating , 2011, European journal of heart failure.

[16]  K. Adams,et al.  Characteristics and outcomes of patients hospitalized for heart failure in the United States: rationale, design, and preliminary observations from the first 100,000 cases in the Acute Decompensated Heart Failure National Registry (ADHERE). , 2005, American heart journal.

[17]  N Freemantle,et al.  The EuroHeart Failure survey programme-- a survey on the quality of care among patients with heart failure in Europe. Part 1: patient characteristics and diagnosis. , 2003, European heart journal.