Experiences of the ‘Nearest Relative’ provisions in the compulsory detention of people under the Mental Health Act: a rapid systematic review

Service users detained for assessment and/or treatment under the Mental Health Act 1983 (MHA 1983) are allocated a ‘Nearest Relative’ (NR). The NR has access to confidential information about the service user and can make decisions about their care and treatment. Tensions exist regarding the identification, displacement and powers of the NR.To examine the experiences of service users, carers and relevant professionals of the NR provisions of the MHA 1983, and the equivalent Named Person (NP) provisions in Scotland. Five research objectives were defined: understanding the experiences of and issues associated with (1) the identification of the NR, (2) the displacement of the NR, (3) confidentiality and information-sharing, (4) access to support from carers and (5) making decisions about treatment or care.Seven bibliographic databases were searched: MEDLINE (via Ovid), MEDLINE In-Process & Other Non-Indexed Citations (via Ovid), PsycINFO (via Ovid), Social Policy and Practice (via Ovid), Health Management Information Consortium (via Ovid), Cumulative Index to Nursing and Allied Health Literature (via EBSCOhost) and Applied Social Sciences Index and Abstracts (via ProQuest). Citation searching, author contact and grey literature searches were conducted.A rapid systematic review was conducted in 6 weeks. Evidence published after 1998 from the UK pertaining to the experiences of those involved in compulsory detention under the MHA 1983 (or UK variants), including service users, carers, family members, NRs, NPs, mental health professionals, policy-makers and lawyers, was sought. Study selection, data extraction and critical appraisal were completed independently by two reviewers. We looked for data about experiences, which were obtained through qualitative means or surveys. Included studies containing several paragraphs of participant quotations and/or author interpretations were entered into a framework synthesis; the rest were summarised descriptively. The framework synthesis was based on the five research objectives and refined using the findings of key studies from England and Scotland and an inductive thematic analysis.Twenty studies were included with 12 prioritised for framework synthesis. Four themes emerged: (1) issues regarding the identification of the NR/NP, (2) confidentiality and information-sharing, (3) enabling the use of the NR/NP role and (4) the importance of maintaining relationships. The involvement of service users in choosing their representative and the role of services in supporting the NR/NP was identified as important.There is little recent evidence to inform this important and complex discussion. The review was rigorously conducted despite the short time scale; however, a more in-depth, iterative thematic analysis of all the included studies may have provided additional insights into the mechanisms underpinning the issues.The NR provisions of the MHA 1983 are complex and of significant importance to individuals detained under the Mental Health Act and their carers. This rapid review provides specific examples of issues that individuals may experience. More research is needed to aid understanding of this complex topic.Primary research specifically focused on the perceived and actual use and impact of the NR provisions in England and Scotland.This study is registered as PROSPERO CRD42018088237.The National Institute for Health Research Health Services and Delivery Research programme.

[1]  J. Rapaport The ghost of the nearest relative under the Mental Health Act 1983 - past, present and future , 2014 .

[2]  J. Atkinson,et al.  Service users’ and carers’ views of the Named Person provisions under the Mental Health (Care and Treatment) (Scotland) Act 2003 , 2009 .

[3]  S. Lawton-Smith,et al.  Supervised community treatment: does it facilitate social inclusion? A perspective from approved mental health professionals (AMHPs) , 2013 .

[4]  M. Webber,et al.  Evaluation of the Scarborough, Whitby and Ryedale Street Triage Service , 2016 .

[5]  M. Dolan,et al.  Managing dangerous people with severe personality disorder: a survey of forensic psychiatrists' opinions , 2001 .

[6]  Karen Bamford,et al.  Gathering meaningful service user feedback regarding a community forensic service , 2015 .

[7]  S. Vicary An Interpretative Phenomenological Analysis of the Impact of Professional Background on Role Fulfilment: a study of approved mental health practice , 2017 .

[8]  Sarah Marriott, Bernard Audini, Paul Lelliott, Yvonne We,et al.  Research into the Mental Health Act: A qualitative study of the views of those using or affected by it , 2001 .

[9]  K. Hartford,et al.  Pre-arrest diversion of people with mental illness: Literature review and international survey. , 2006, Behavioral sciences & the law.

[10]  R. Manktelow,et al.  The Experience and Practice of Approved Social Workers in Northern Ireland , 2002 .

[11]  E. Tacconelli Systematic reviews: CRD's guidance for undertaking reviews in health care , 2010 .

[12]  Iris Gault Service-user and carer perspectives on compliance and compulsory treatment in community mental health services. , 2009, Health & social care in the community.

[13]  J. Rapaport A Matter of Principle: the Nearest Relative under the Mental Health Act 1983 and Proposals for Legislative Reform , 2004 .

[14]  J. Atkinson,et al.  The views of policy influencers and mental health officers concerning the Named Person provisions of the Mental Health (Care and Treatment) (Scotland) Act 2003 , 2010, Journal of mental health.

[15]  James Campbell Stakeholders' views of legal and advice services for people admitted to psychiatric hospital , 2008 .

[16]  E. Freeman,et al.  ‘A frightening experience’: detainees’ and carers’ experiences of being detained under Section 136 of the Mental Health Act , 2011, Medicine, science, and the law.

[17]  M. Barnes,et al.  Valuing Experience: Users' Experiences of Compulsion under the Mental Health Act 1983 , 2000 .

[18]  Karolina Doughty,et al.  Community treatment orders: exploring the paradox of personalisation under compulsion. , 2016, Health & social care in the community.

[19]  S. Oliver,et al.  Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ , 2012, BMC Medical Research Methodology.

[20]  J. Ridley,et al.  Partners in care?: views and experiences of carers from a cohort study of the early implementation of the Mental Health (Care & Treatment) (Scotland) Act 2003. , 2010, Health & social care in the community.

[21]  Sally Baldwin,et al.  Meeting the challenge: developing systematic reviewing in social policy , 2004 .

[22]  K. Berzins,et al.  Mental health service users', carers' and professionals' perceptions of the named person provisions of the Mental Health (Care and Treatment) (Scotland) Act 2003 , 2009 .

[23]  M. Ott,et al.  Connection to mental health care upon community reentry for detained youth: a qualitative study , 2014, BMC Public Health.

[24]  R. McCabe,et al.  Family Caregivers' Experiences of Involuntary Psychiatric Hospital Admissions of Their Relatives – a Qualitative Study , 2011, PloS one.

[25]  Karolina Doughty,et al.  An exploration of service user and practitioner experiences of community treatment orders , 2013 .

[26]  Martin Smith ‘Only connect’ ‘nearest relative's’ experiences of mental health act assessments , 2015 .

[27]  N. Douglas,et al.  The health needs of imprisoned female juvenile offenders: the views of the young women prisoners and youth justice professionals. , 2008, International journal of prisoner health.

[28]  J. Frich,et al.  [Qualitative studies]. , 2007, Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke.

[29]  M. Dixon-Woods Using framework-based synthesis for conducting reviews of qualitative studies , 2011, BMC medicine.

[30]  L. Marks,et al.  General practice in prisons in England : views from the field. , 2006 .

[31]  Joanne M Bennett,et al.  Occupational health nursing. , 2008, Nursing standard (Royal College of Nursing (Great Britain) : 1987).

[32]  M. Chambers,et al.  Perspectives on medicine adherence in service users and carers with experience of legally sanctioned detention and medication: a qualitative study , 2013, Patient preference and adherence.

[33]  B. Völlm,et al.  A mixed-methods study exploring the characteristics and needs of long stay patients in high and medium secure settings in England: implications for service organisation , 2017 .

[34]  Mental health and custody: a follow on study , 2012 .

[35]  Zoe Jordan,et al.  Developing the review question and inclusion criteria. , 2014, The American journal of nursing.

[36]  Christopher Carroll,et al.  How to build up the actionable knowledge base: the role of ‘best fit’ framework synthesis for studies of improvement in healthcare , 2015, BMJ Quality & Safety.

[37]  D. Moher,et al.  Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement , 2009, BMJ.

[38]  Graham Thornicroft,et al.  National Service Framework for Mental Health , 2000 .

[39]  Getting to know you: reflections on a specialist independent mental health advocacy service for Bexley and Bromley residents in forensic settings , 2012 .

[40]  S. Jones,et al.  Quality of treatment following police detention of mentally disordered offenders. , 2002, Journal of psychiatric and mental health nursing.

[41]  D. Hewitt The nearest relative: losing the right to concur? , 2010 .

[42]  Karolina Doughty,et al.  Community treatment orders: learning from experiences of service users, practitioners and nearest relatives , 2015, Journal of mental health.

[43]  J. Gunn,et al.  What psychiatrists think about Part III of the Mental Health Act 1983 , 1999 .

[44]  R. Brian Haynes,et al.  Developing Optimal Search Strategies for Detecting Clinically Relevant Qualitative Studies in MEDLINE , 2004, MedInfo.

[45]  J. Ridley,et al.  Subjective experiences of compulsory treatment from a qualitative study of early implementation of the Mental Health (Care & Treatment) (Scotland) Act 2003. , 2013, Health & social care in the community.

[46]  K. Canvin,et al.  Carer involvement in compulsory out-patient psychiatric care in England , 2017, BMC Health Services Research.

[47]  S. Daley,et al.  The use of section 135(1) of the Mental Health Act in a London borough , 2015 .

[48]  J. Horne Mental Health Act 1983 Code of Practice , 2000 .

[49]  D. Menkes,et al.  Diagnosing vulnerability and “dangerousness”: police use of Section 136 in England and Wales , 2014 .

[50]  R. Manktelow,et al.  The management and supervision of Approved Social Workers: Aspects of law, policy and practice , 2001 .

[51]  J. Ogloff,et al.  Psychiatric symptoms and histories among people detained in police cells , 2011, Social Psychiatry and Psychiatric Epidemiology.

[52]  Mark Engel,et al.  Conducting a meta-ethnography of qualitative literature: Lessons learnt , 2008, BMC medical research methodology.

[53]  V. D. Maynard An Ethnographic Study of Black Men Within an Inner London Area to Elicit Relatedness Between Black Human Condition and the Onset of Severe Mental Illness: What About the Black Human Condition? , 2007 .

[54]  H. Noga,et al.  Risk Management and Healthcare Policy Dovepress , 2022 .

[55]  S. McGilloway,et al.  Mental illness in the UK criminal justice system: A police liaison scheme for Mentally Disordered Offenders in Belfast , 2004 .

[56]  J. Henderson Experiences of ‘care’ in mental health , 2002 .

[57]  T. Burns,et al.  Patient, psychiatrist and family carer experiences of community treatment orders: qualitative study , 2014, Social Psychiatry and Psychiatric Epidemiology.

[58]  G. Gudjonsson,et al.  The Lancashire Quality of Life Profile: data and experiences with 58 detained mentally disordered offenders , 2000 .

[59]  K. Dahlberg,et al.  To be Strategically Struggling against Resignation: The Lived Experience of Being Cared for in Forensic Psychiatric Care , 2012, Issues in mental health nursing.

[60]  D. Mercer,et al.  The development of recovery based nursing in a high-security hospital: nurturance and safe spaces in a dangerous world? , 2014 .

[61]  M. Leese,et al.  Mental health, vulnerability and risk in police custody. Journal of Adult Protection , 2017 .

[62]  C. Buhusi,et al.  MENTAL DISORDERS , 1969 .

[63]  H. Kravitz,et al.  A cross-sectional study of psychosocial and criminal factors associated with arrest in mentally ill female detainees. , 2002, The journal of the American Academy of Psychiatry and the Law.

[64]  F. Rabiee,et al.  Being understood, being respected: an evaluation of mental health service provision from service providers and users' perspectives in Birmingham, UK , 2013 .

[65]  Disturbed female offenders: helping the 'untreatable' , 1999 .

[66]  P. Mahadun,et al.  Section 136 assessments in Trafford Borough of Manchester , 2011 .