Bridging Care Communication and Health Management Within Diverse and Underserved Populations

As the US healthcare system becomes further impacted by factors such as the oncoming flood of aging baby boomers, increases in the amount of people uninsured or underinsured, higher occurrences of chronic illnesses (diabetes, hypertension, etc.), and a potentially insufficient pool of incoming healthcare workers, the burden of managing one's own health, therapy, and medical transactions will increasingly fall on the patient, their family and care managers. A multitude of new systems for personal health management are being developed and it will be critical that these systems are responsive to the unique and specific needs of all people and perhaps more importantly those who are the most at-risk. As an initial step toward identifying core system requirements, interviews with care managers and administrators of a personal health information system (PHIS) for use with migrant farm workers was conducted providing preliminary recommendations toward the development of a framework for effective use of PHIS within diverse and underserved populations. Initial findings indicate that PHIS within these types of communities will exist not so much as an isolated tool for health management, but moreover an artifact for bridging health information communication between patients and their healthcare providers.

[1]  Kathryn Pitkin Derose,et al.  Immigrants and health care: sources of vulnerability. , 2007, Health affairs.

[2]  Paul Levinson,et al.  The Age of Access: Information Technology and Social Revolution/Posthumous Papers of Colin Cherry ed. by William Edmondson (review) , 1985 .

[3]  C. Clancy The persistent challenge of avoidable hospitalizations. , 2005, Health services research.

[4]  Matthew B. Miles,et al.  Qualitative Data Analysis: An Expanded Sourcebook , 1994 .

[5]  Charles Safran,et al.  Informatics as a Strategy for Reducing Health Disparities in Underserved Populations , 2004 .

[6]  Ben Shneiderman,et al.  Universal Usability , 2000, UBIQ.

[7]  Jie Huang,et al.  Use of e-Health services between 1999 and 2002: a growing digital divide. , 2004, Journal of the American Medical Informatics Association : JAMIA.

[8]  Charles Møller,et al.  Proceedings of the Tenth Americas Conference on Information Systems , 2004 .

[9]  David W. Bates,et al.  White Paper: Personal Health Records: Definitions, Benefits, and Strategies for Overcoming Barriers to Adoption , 2006, J. Am. Medical Informatics Assoc..

[10]  Kathleen N. Lohr,et al.  A Systematic Review of the Literature , 2004 .

[11]  R. Blendon,et al.  Health information, the Internet, and the digital divide. , 2000, Health affairs.

[12]  J. Kahn,et al.  Increasing Access to Care for the Uninsured: Considering the Options in California Counties , 2006, Journal of health care for the poor and underserved.

[13]  Nathan Botts Electronic Personal Health Records and Systems to Improve Care for Vulnerable Populations , 2007, AMCIS.

[14]  Leah A. Lievrouw,et al.  Information and equity , 2005, Annu. Rev. Inf. Sci. Technol..