Conducting qualitative research with people with learning, communication and other disabilities: methodological challenges
暂无分享,去创建一个
[1] We are all in the same boat: doing ‘people‐led research’ , 2004 .
[2] C. Kiernan. Participation in Research by People with Learning Disability: Origins and Issues , 1999 .
[3] Val Williams,et al. More researching together: the role of nondisabled researchers in working with People First members1 , 2005 .
[4] J. Porter,et al. See What I Mean: Interpreting the Meaning of Communication by People with Severe and Profound Intellectual Disabilities , 1999 .
[5] K. Bunning,et al. Self‐concept in young adults with a learning disability from the Jewish community , 2007 .
[6] A. Lewis,et al. Realising child voice: the development of Cue Cards , 2008 .
[7] C. Barnes. Disability and the Myth of the Independent Researcher , 1996 .
[8] B. Beresford,et al. Developing an approach to involving children with autistic spectrum disorders in a social care research project , 2004 .
[9] T. Iacono,et al. Issues of informed consent in conducting medical research involving people with intellectual disability , 2003 .
[10] R. Edgerton,et al. The cloak of competence: years later. , 1976, American journal of mental deficiency.
[11] Cathy Binger,et al. Building communicative competence with individuals who use augmentative and alternative communication , 1998 .
[12] T. Parmenter,et al. Working with the Experts: Collaborative research with people with an intellectual disability , 2000 .
[13] J. Gleason. Meaning of Play: Interpreting Patterns in Behavior of Persons with Severe Developmental Disabilities , 1990 .
[14] D. Atkinson. LIFE HISTORY WORK WITH A GROUP OF PEOPLE WITH LEARNING DISABILITIES , 1993 .
[15] M. Oliver. Changing the Social Relations of Research Production , 1992 .
[16] J. Porter,et al. Interpreting the communication of people with profound and multiple learning difficulties , 2001 .
[17] Jackie Sanders,et al. Looking inside the bag of tools: creating research encounters with parents with an intellectual disability , 2008 .
[18] Len Barton,et al. Articulating with difficulty : research voices in inclusive education , 1998 .
[19] Ann Lewis. Accessing, through Research Interviews, the Views of Children with Difficulties in Learning , 2002 .
[20] Tony Gilbert,et al. Involving people with learning disabilities in research: issues and possibilities. , 2004, Health & social care in the community.
[21] T. Booth,et al. Parenting Under Pressure: Mothers and Fathers With Learning Difficulties , 1994 .
[22] Jan Walmsley,et al. Using Autobiographical Approaches with People with Learning Difficulties , 1999 .
[23] Including everyone in research: The Burton Street Research Group , 2007 .
[24] ‘And When did You Last See Your Father?’ Exploring the Views of Children with Learning Difficulties/Disabilities , 2004 .
[25] John Harris,et al. Time To Make Up Your Mind: Why Choosing Is Difficult. , 2003 .
[26] R. Cummins. Proxy responding for subjective well-being: A review , 2002 .
[27] M. Fraser,et al. Are people with learning disabilities able to contribute to focus groups on health promotion? , 2008, Journal of advanced nursing.
[28] B. Kroese,et al. ‘Are you allowed to say that?’ using video materials to provide accessible information about psychology services , 2006 .
[29] H. Meininger. Narrating, writing, reading: life story work as an aid to (self) advocacy , 2006 .
[30] B. Kroese,et al. Service Users' Views of Physical Restraint Procedures in Secure Settings for People with Learning Disabilities. , 2007 .
[31] Joanne Porter,et al. Valuing people: a New Strategy for Learning Disability for the 21st Century , 2002 .
[32] M. Lhussier,et al. Paradoxes, locations and the need for social coherence: a qualitative study of living with a learning difficulty , 2005 .
[33] Teresa Whitehurst,et al. Liberating silent voices – perspectives of children with profound & complex learning needs on inclusion , 2007 .
[34] J. Aldridge. Picture this: the use of participatory photographic research methods with people with learning disabilities , 2007 .
[35] C. Emden. Conducting a narrative anlysis , 1998 .
[36] C. Gray,et al. The New Social Story Book , 1994 .
[37] Stephanie J Davies,et al. Pathways to participatory research in developing a tool to measure feelings , 2008 .
[38] R. McConkey,et al. Views of People with Learning Difficulties about Current and Future Accommodation: The use of focus groups to promote discussion , 2003 .
[39] S. Brewster,et al. Putting words into their mouths? Interviewing people with learning disabilities and little/no speech , 2004 .
[40] Kirsten Stalker. Some Ethical and Methodological Issues in Research with People with Learning Difficulties , 1998 .
[41] Melanie Nind,et al. Ethics in quasi-experimental research on people with severe learning disabilities: dilemmas and compromises , 2001 .
[42] J. Wishart,et al. Do current consent and confidentiality requirements impede or enhance research with children with learning disabilities? , 2006 .
[43] Rebecca Pockney. Friendship or Facilitation: People with Learning Disabilities and Their Paid Carers , 2006 .
[44] D. Goodley. Tales of Hidden Lives: A critical examination of life history research with people who have learning difficulties , 1996 .
[45] I. Tuffrey‐Wijne,et al. Doing research on people with learning disabilities, cancer and dying: ethics, possibilities and pitfalls , 2008 .
[46] Gerry Urwin,et al. Whose Project is it Anyway , 1996 .
[47] S. Parsons,et al. Time for review: supporting the work of an advisory group , 2006 .
[48] M. Elliott,et al. Health and social care in the community. , 1989, Elderly care.
[49] S. Hood,et al. Children as Research Subjects: A Risky Enterprise. , 1996 .
[50] A. James,et al. Research with Children: Perspectives and Practices , 2000 .
[51] N. Lennox,et al. Beating the barriers: recruitment of people with intellectual disability to participate in research. , 2005, Journal of intellectual disability research : JIDR.
[52] Dorothy Atkinson,et al. Research and empowerment: involving people with learning difficulties in oral and life history research , 2004 .
[53] L. Harrison,et al. Living Safer Sexual Lives , 2001 .
[54] M McCarthy,et al. User focus groups and Best Value in services for people with learning disabilities. , 2001, Health & social care in the community.
[55] John M. Davis,et al. Learning the lives of disabled children: developing a reflexive approach , 1999 .
[56] G. Walford. Research ethical guidelines and anonymity1 , 2005 .
[57] Joan Murphy,et al. Obtaining consent to participate in research: the issues involved in including people with a range of learning and communication disabilities , 2007 .
[58] E. Emerson,et al. Adults with Learning Difficulties in England 2003/4. , 2005 .
[59] Jill Porter,et al. Interviewing Children and Young People with Learning Disabilities , 2004 .
[60] M. Bollard. Going to the Doctor's , 2003 .
[61] G. Zarb,et al. On the Road to Damascus: First Steps Towards Changing the Relations of , 1992 .
[62] C. Emden. Conducting a narrative analysis. , 1998, Collegian.
[63] Jean Ware,et al. Ascertaining the views of people with profound and multiple learning disabilities , 2004 .
[64] J. Swain,et al. Public Research, Private Concerns: Ethical issues in the use of open-ended interviews with people who have learning difficulties , 1998 .
[65] R. Freedman. Ethical challenges in the conduct of research involving persons with mental retardation. , 2001, Mental retardation.
[66] Sheena Rolph. The history of community care for people with learning difficulties in Norfolk 1930-1980 : the role of two hostels , 1999 .
[67] Paul Cambridge,et al. Using individualised communication for interviewing people with intellectual disability: a case study of user-centred research , 2003 .
[68] R. McConkey,et al. Employment Aspirations of People with Learning Disabilities Attending Day Centres , 2001 .
[69] T. Booth,et al. In the Frame: Photovoice and mothers with learning difficulties , 2003 .
[70] B. Kroese,et al. Assessing the ability of people with a learning disability to give informed consent to treatment , 1999, Psychological Medicine.
[71] Michael Preston-Shoot,et al. Whose Project is it Anyway? Sharing and shaping the research and development agenda , 1996 .
[72] T. Booth,et al. Sounds of Silence: Narrative research with inarticulate subjects , 1996 .
[73] J. Walmsley. Inclusive learning disability research: the (nondisabled) researcher's role , 2004 .
[74] R. Lawthom,et al. Epistemological journeys in participatory action research: alliances between community psychology and disability studies , 2005 .
[75] R. Bogdan,et al. The judged, not the judges. An insider's view of mental retardation. , 1976, The American psychologist.
[76] E. Cocks,et al. THE PARTICIPATORY RESEARCH PARADIGM AND INTELLECTUAL DISABILITY , 2010 .