Psychosocial Impact of Predictive Genetic Testing in Hereditary Heart Diseases: The PREDICT Study
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S. Tezenas du Montcel | A. Toutain | C. Rooryck | B. Isidor | P. Charron | I. Denjoy | C. Sawka | P. Richard | F. Ader | J. Pruny | B. Leheup | A. Moerman | V. Fressart | E. Gandjbakhch | E. Schaefer | C. Rouzier | M. Gargiulo | A. Brehin | M. Planes | K. Nguyen | R. Mansouri | C. Maupain | A. Curjol | L. Akloul | I. Raji | C. Michon | M. Hebert | J. Mazzella | S. Staraci | C. Bordet | S. Brice | A. Palmyre | D. Dupin Deguine | Gipsy Billy | Krystelle Séné | E. Le Boette | M. Babonneau | A. Bekhechi | Linda Akloul | Aurélien Palmyre
[1] J. Ingles. Psychological Issues in Managing Families with Inherited Cardiovascular Diseases. , 2019, Cold Spring Harbor perspectives in medicine.
[2] G. Pravettoni,et al. A Systematic Review of the Psychological Implications of Genetic Testing: A Comparative Analysis Among Cardiovascular, Neurodegenerative and Cancer Diseases , 2018, Front. Genet..
[3] A. Marian. Genetic Testing in Cardiovascular Medicine. , 2018, Texas Heart Institute journal.
[4] W. Chung,et al. Examining the Psychosocial Impact of Genetic Testing for Cardiomyopathies , 2018, Journal of Genetic Counseling.
[5] C. Caleshu,et al. Role of Genetic Testing in Inherited Cardiovascular Disease: A Review , 2017, JAMA cardiology.
[6] E. Ashley,et al. Interdisciplinary psychosocial care for families with inherited cardiovascular diseases. , 2016, Trends in cardiovascular medicine.
[7] D. Craufurd,et al. 22 Years of predictive testing for Huntington’s disease: the experience of the UK Huntington’s Prediction Consortium , 2016, European Journal of Human Genetics.
[8] D. Craufurd,et al. 22 Years of predictive testing for Huntington’s disease: the experience of the UK Huntington’s Prediction Consortium , 2016, European Journal of Human Genetics.
[9] F. Rutten,et al. [2014 ESC Guidelines on diagnosis and management of hypertrophic cardiomyopathy]. , 2014, Kardiologia polska.
[10] Siobhan M. Dolan,et al. Motivation to Pursue Genetic Testing in Individuals with a Personal or Family History of Cardiac Events or Sudden Cardiac Death , 2014, Journal of Genetic Counseling.
[11] W. Chung,et al. The effect of cardiac genetic testing on psychological well-being and illness perceptions. , 2014, Heart & lung : the journal of critical care.
[12] Jennifer M. Taber,et al. Melanoma Genetic Counseling and Test Reporting Improve Screening Adherence Among Unaffected Carriers 2 Years Later , 2013, Cancer Epidemiology, Biomarkers & Prevention.
[13] R. Macleod,et al. Experiences of predictive testing in young people at risk of Huntington’s disease, familial cardiomyopathy or hereditary breast and ovarian cancer , 2013, European Journal of Human Genetics.
[14] H. Watkins,et al. Pre-symptomatic genetic testing for inherited cardiac conditions: a qualitative exploration of psychosocial and ethical implications , 2013, European Journal of Human Genetics.
[15] A. Sturm,et al. Genetic testing in cardiovascular medicine: current landscape and future horizons , 2013, Current opinion in cardiology.
[16] H. Skirton,et al. Quality in genetic counselling for presymptomatic testing — clinical guidelines for practice across the range of genetic conditions , 2012, European Journal of Human Genetics.
[17] P. Scuffham,et al. Genetic testing for inherited heart diseases: longitudinal impact on health-related quality of life , 2012, Genetics in Medicine.
[18] E. Leray,et al. Prevalence, characteristics and comorbidities of anxiety disorders in France: Results from the “Mental Health in General Population” Survey (MHGP) , 2011, European Psychiatry.
[19] Michael J Ackerman,et al. HRS/EHRA expert consensus statement on the state of genetic testing for the channelopathies and cardiomyopathies: this document was developed as a partnership between the Heart Rhythm Society (HRS) and the European Heart Rhythm Association (EHRA). , 2011, Europace : European pacing, arrhythmias, and cardiac electrophysiology : journal of the working groups on cardiac pacing, arrhythmias, and cardiac cellular electrophysiology of the European Society of Cardiology.
[20] A. Keren,et al. Genetic counselling and testing in cardiomyopathies: a position statement of the European Society of Cardiology Working Group on Myocardial and Pericardial Diseases. , 2010, European heart journal.
[21] G. Bonsel,et al. Genetic counseling and cardiac care in predictively tested hypertrophic cardiomyopathy mutation carriers: The patients' perspective , 2009, American journal of medical genetics. Part A.
[22] J. Lubiński,et al. Identification of patients at high risk of psychological distress after BRCA1 genetic testing. , 2009, Genetic testing and molecular biomarkers.
[23] A. Durr,et al. Long-term outcome of presymptomatic testing in Huntington disease , 2009, European Journal of Human Genetics.
[24] M. Hendriks,et al. Familial disease with a risk of sudden death: a longitudinal study of the psychological consequences of predictive testing for long QT syndrome. , 2008, Heart rhythm.
[25] R. Roos,et al. Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test. , 2004, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.
[26] S. Wiggins,et al. Psychological consequences and predictors of adverse events in the first 5 years after predictive testing for Huntington's disease , 2003, Clinical genetics.
[27] A. Durr,et al. Presymptomatic testing in Huntington’s disease and autosomal dominant cerebellar ataxias , 2002, Neurology.
[28] M. Komajda,et al. Genetic testing and genetic counselling in hypertrophic cardiomyopathy: the French experience , 2002, Journal of medical genetics.
[29] S. Michie,et al. Psychological consequences of predictive genetic testing: a systematic review , 2000, European Journal of Human Genetics.
[30] International Huntington Association and the World Federation of Neurology Research Group on Huntington's Chorea. Guidelines for the molecular genetics predictive test in Huntington's disease. , 1994, Journal of medical genetics.
[31] Sandi Wiggins,et al. The Psychological Consequences of Predictive Testing for Huntington’s Disease , 1992 .
[32] M. Horowitz,et al. Impact of Event Scale: A Measure of Subjective Stress , 1979, Psychosomatic medicine.
[33] C. Spielberger,et al. Digit span: An indicant of trait or state anxiety? , 1969 .
[34] G. Evers‐Kiebooms,et al. A theoretical psychological perspective on predictive testing for late onset hereditary diseases. , 2007, Genetic counseling.
[35] K. Demyttenaere,et al. Psychological distress in the 5-year period after predictive testing for Huntington's disease , 2003, European Journal of Human Genetics.