Exploring the need for a suitable privacy framework for mHealth when managing chronic diseases

The widespread rises in chronic illnesses (e.g., diabetes and high blood pressure) have resulted in the need to find more efficient ways of managing patients with these conditions. One such way is by the use of mobile health (mHealth) technologies that can gather real-time data from patients and monitor them from a distance, removing the need to be at a medical facility. These technologies can be an integral part of intelligent healthcare environments (e.g., smart homes to monitor and assist elderly patients) which are essential to reducing healthcare costs and improving efficiency. The use of mHealth, however, brings various privacy concerns and challenges. This paper reviews and examines the challenges of preserving user privacy in the context of using mHealth to manage chronic diseases. The paper first discusses mHealth, its importance in managing chronic diseases, and the associated privacy concerns. Second, the paper compares the existing privacy frameworks applicable to mHealth. Third, the key principles gathered from the frameworks are analysed in the context of their suitability for enabling adequate privacy when using mHealth for managing chronic diseases. Finally, the paper argues that a new privacy framework is needed for mHealth in the context of managing chronic diseases.

[1]  Daniel J. Solove A Taxonomy of Privacy , 2006 .

[2]  Michael G. Harvey,et al.  Privacy and security issues for mobile health platforms , 2014, J. Assoc. Inf. Sci. Technol..

[3]  Sana Tmar-Ben Hamida,et al.  A New mHealth Communication Framework for Use in Wearable WBANs and Mobile Technologies , 2015, Sensors.

[4]  Kelly Grindrod,et al.  Locking it down , 2017, Canadian pharmacists journal : CPJ = Revue des pharmaciens du Canada : RPC.

[5]  Larry Stapleton,et al.  Towards a Privacy Framework for Information Systems Development , 2005 .

[6]  Ildemaro Araujo Privacy mechanisms supporting the building of trust in e-commerce , 2005, 21st International Conference on Data Engineering Workshops (ICDEW'05).

[7]  Eric J. Topol,et al.  The emerging field of mobile health , 2015, Science Translational Medicine.

[8]  David Kotz,et al.  Privacy in mobile technology for personal healthcare , 2012, CSUR.

[9]  Donna J. Slovensky,et al.  mHealth: Transforming Healthcare , 2014 .

[10]  D. Estrin,et al.  Open mHealth Architecture: An Engine for Health Care Innovation , 2010, Science.

[11]  Shifali Arora,et al.  Privacy and Security in Mobile Health (mHealth) Research , 2014, Alcohol research : current reviews.

[12]  Ann Cavoukian,et al.  Privacy by design: the definitive workshop. A foreword by Ann Cavoukian, Ph.D , 2010 .

[13]  Michael McCarthy,et al.  Experts warn on data security in health and fitness apps , 2013, BMJ : British Medical Journal.

[14]  Jin H. Im,et al.  Privacy , 2002, Encyclopedia of Information Systems.

[15]  Marilyn Prosch,et al.  Protecting personal information using Generally Accepted Privacy Principles (GAPP) and Continuous Control Monitoring to enhance corporate governance , 2008 .

[16]  Katie Shilton,et al.  Four billion little brothers? , 2009, Commun. ACM.

[17]  샤나즈 A Study of IEEE 802.15.4 Security Framework for Wireless Body Area Network , 2011 .

[18]  Urs-Vito Albrecht,et al.  mHealth 2.0: Experiences, Possibilities, and Perspectives , 2014, JMIR mHealth and uHealth.

[19]  Philip Brey,et al.  Freedom and Privacy in Ambient Intelligence , 2005, Ethics and Information Technology.

[20]  Eric Everson Privacy by Design: Taking Ctrl of Big Data , 2017 .

[21]  Harold J. Krent Whose Business is Your Pancreas?: Potential Privacy Problems in New York City's Mandatory Diabetes Registry , 2008, Annals of health law.

[22]  Kyung Sup Kwak,et al.  A Study of IEEE 802.15.4 Security Framework for Wireless Body Area Networks , 2011, Sensors.

[23]  Anders Nordgren,et al.  Privacy by Design in Personal Health Monitoring , 2015, Health Care Analysis.

[24]  Sasikanth Avancha,et al.  A privacy framework for mobile health and home-care systems , 2009, SPIMACS '09.

[25]  Diane J. Cook,et al.  "Intelligent Environments: a manifesto" , 2013, Human-centric Computing and Information Sciences.

[26]  Upkar Varshney,et al.  A model for improving quality of decisions in mobile health , 2014, Decis. Support Syst..

[27]  Meghan K Conroy,et al.  Connecting Patients to mHealth Applications to Enhance Self-care Management , 2015, Home healthcare now.

[28]  Larry Stapleton,et al.  PRIVACY, PATIENTS AND HEALTHCARE WORKERS A CRITICAL ANALYSIS OF LARGE SCALE, INTEGRATED MANUFACTURING INFORMATION SYSTEMS REAPPLIED IN HEALTH , 2005 .

[29]  Paulo R. L. Gondim,et al.  Security in Cloud-Computing-Based Mobile Health , 2016, IT Professional.

[30]  David C Klonoff,et al.  The Current Status of mHealth for Diabetes: Will it Be the Next Big Thing? , 2013, Journal of diabetes science and technology.

[31]  Juan Miguel García-Gómez,et al.  Mobile Clinical Decision Support Systems and Applications: A Literature and Commercial Review , 2013, Journal of Medical Systems.