Internet survey of treatments used by parents of children with autism.

We developed an Internet survey to identify treatments used by parents of children with autism. The survey listed 111 treatments and was distributed via colleagues and through chapters of the Autism Society of America and Autism Organizations Worldwide. A total of 552 parents submitted usable returns during the 3-month survey period. On average the parents reported using seven different treatments. The number of treatments used varied as a function of the child's age and type/severity of disability within the autism spectrum. Speech therapy was the most commonly reported intervention, followed by visual schedules, sensory integration, and applied behavior analysis. In addition, 52% of parents were currently using at least one medication to treat their child, 27% were implementing special diets, and 43% were using vitamin supplements. Because parents were using a large number of treatments, many of which lack empirical support, future research should focus on understanding the decision-making processes that underlie treatment selection by parents of children with autism.

[1]  C. Gillberg,et al.  Auditory Integration Training in Children with Autism , 1997 .

[2]  P. Strain,et al.  The Need for Longitudinal, Intensive Social Skill Intervention , 2000 .

[3]  G. Johnson Internet Research Methods: A Practical Guide for the Social and Behavioural Sciences , 2003 .

[4]  L. Burd,et al.  Pharmacotherapy of Autism: A Review and Clinical Approach , 2001 .

[5]  G. Baranek Efficacy of Sensory and Motor Interventions for Children with Autism , 2002, Journal of autism and developmental disorders.

[6]  G. Mesibov Formal and Informal Measures on the Effectiveness of the TEACCH Programme , 1997 .

[7]  R. Hastings,et al.  Facilitating factors and barriers to the implementation of intensive home-based behavioural intervention for young children with autism. , 2002, Child: care, health and development.

[8]  Linda B. Bourque,et al.  How to Conduct Self-Administered and Mail Surveys , 1995 .

[9]  M. Mostert,et al.  Facilitated Communication Since 1995: A Review of Published Studies , 2001, Journal of autism and developmental disorders.

[10]  Autism in Children and Adults: Etiology, Assessment, and Intervention , 1994 .

[11]  G. Dawson,et al.  Interventions to Facilitate Auditory, Visual, and Motor Integration in Autism: A Review of the Evidence , 2000, Journal of autism and developmental disorders.

[12]  Dc Washington Diagnostic and Statistical Manual of Mental Disorders, 4th Ed. , 1994 .

[13]  N. Soares,et al.  A Picture’s Worth: PECS and Other Visual Communication Strategies in Autism , 2002 .

[14]  S. Sheinkopf,et al.  Home-Based Behavioral Treatment of Young Children with Autism , 1998, Journal of autism and developmental disorders.

[15]  Tristram H. Smith,et al.  Early and intensive behavioral intervention in autism. , 2003 .

[16]  N. Tinbergen,et al.  Autistic Children: New Hope for a Cure , 1983 .

[17]  B. Ogletree,et al.  Assessment of Communication and Language in Classical Autism: Issues and Practices , 2002 .

[18]  Alan E. Kazdin,et al.  Evidence-based psychotherapies for children and adolescents , 2003 .

[19]  L. Juane Heflin,et al.  Interventions for Children and Youth with Autism , 1998 .