How language affects peer responsiveness in an online cancer support group: implications for treatment design and facilitation

Little is known about how positive group interactions develop in online support groups. Previous research suggests that message content, self‐disclosure, and emotional expression may be central to this process. The purpose of this study was to identify linguistic and qualitative characteristics of participants' messages that predict how other participants respond in an asynchronous discussion board for cancer‐related distress.

[1]  Bret R. Shaw,et al.  Communicating about Self and Others within an Online Support Group for Women with Breast Cancer and Subsequent Outcomes , 2008, Journal of health psychology.

[2]  Shirley Moore,et al.  Designing Tailored Internet Support to Assist Cancer Patients in Illness Management , 2007, AMIA.

[3]  Suzanne Pingree,et al.  Effects of Insightful Disclosure Within Computer Mediated Support Groups on Women With Breast Cancer , 2006, Health communication.

[4]  R. Pukrop,et al.  Effects of psychosocial interventions on quality of life in adult cancer patients: meta analysis of 37 published controlled outcome studies. , 2003, Patient education and counseling.

[5]  Robert P. Hawkins,et al.  CHESS: An interactive computer system for women with breast cancer piloted with an underserved population , 1994, Proceedings. Symposium on Computer Applications in Medical Care.

[6]  P. Schultz,et al.  Internet message board use by patients with cancer and their families. , 2003, Clinical journal of oncology nursing.

[7]  H. Kraemer,et al.  Change in emotion-regulation strategy for women with metastatic breast cancer following supportive-expressive group therapy. , 2002, Journal of consulting and clinical psychology.

[8]  Cornelia M Ruland,et al.  Left Hanging in the Air: Experiences of Living With Cancer as Expressed Through E-mail Communications With Oncology Nurses , 2011, Cancer nursing.

[9]  P. Klemm,et al.  A nontraditional cancer support group. The Internet. , 1998, Computers in nursing.

[10]  C. B. Taylor,et al.  Evaluation of an internet support group for women with primary breast cancer , 2003, Cancer.

[11]  A. Stanton,et al.  Emotionally expressive coping predicts psychological and physical adjustment to breast cancer. , 2000, Journal of consulting and clinical psychology.

[12]  Boris P. Kovatchev,et al.  A Behavior Change Model for Internet Interventions , 2009, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[13]  A. Arntz,et al.  Changes in natural language use as an indicator of psychotherapeutic change in personality disorders. , 2012, Behaviour research and therapy.

[14]  Mitch Golant,et al.  Benefits and challenges experienced by professional facilitators of online support groups for cancer survivors , 2009, Psycho-oncology.

[15]  D. Gustafson,et al.  Effect of computer support on younger women with breast cancer , 2001, Journal of General Internal Medicine.

[16]  Jeong Yeob Han,et al.  How women with breast cancer learn using interactive cancer communication systems. , 2006, Health education research.

[17]  M. Rohrbaugh,et al.  We-talk, communal coping, and cessation success in a couple-focused intervention for health-compromised smokers. , 2012, Family process.

[18]  D. Roth,et al.  Randomized pilot of a self-guided internet coping group for women with early-stage breast cancer , 2005, Annals of behavioral medicine : a publication of the Society of Behavioral Medicine.

[19]  B. Goldstein,et al.  Not all negative emotions are equal: the role of emotional expression in online support groups for women with breast cancer , 2006, Psycho-oncology.

[20]  R. P. Vilhauer,et al.  Perceived Benefits of Online Support Groups for Women with Metastatic Breast Cancer , 2009, Women & health.

[21]  S. Chambers,et al.  Feasibility of brief psychological distress screening by a community-based telephone helpline for cancer patients and carers , 2010, BMC Cancer.

[22]  D. Cox,et al.  Internet interventions: In review, in use, and into the future. , 2003 .

[23]  J. R. Landis,et al.  The measurement of observer agreement for categorical data. , 1977, Biometrics.

[24]  J. Smyth,et al.  The writing cure: How expressive writing promotes health and emotional well-being. , 2002 .

[25]  S. Wangberg,et al.  Adherence in Internet-based interventions , 2008, Patient preference and adherence.

[26]  G. Eysenbach.  The Law of Attrition , 2005, Journal of medical Internet research.

[27]  S. Ziebland,et al.  Gender, cancer experience and internet use: a comparative keyword analysis of interviews and online cancer support groups. , 2006, Social science & medicine.

[28]  A. Shelton,et al.  Changes in neuronal activation patterns in response to androgen deprivation therapy: a pilot study , 2010, BMC Cancer.

[29]  David Spiegel,et al.  Emotional expression and cancer progression. , 2003 .

[30]  K. Humphreys,et al.  Electronic support groups for breast carcinoma , 2003, Cancer.

[31]  Bret R. Shaw,et al.  Effects of using online narrative and didactic information on healthcare participation for breast cancer patients. , 2008, Patient education and counseling.

[32]  Bret R. Shaw,et al.  Experiences of Women with Breast Cancer: Exchanging Social Support over the CHESS Computer Network , 2000, Journal of health communication.

[33]  Sharon Danoff-Burg,et al.  Expressive disclosure and benefit finding among breast cancer patients: mechanisms for positive health effects. , 2006, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[34]  J. Pennebaker,et al.  Psychological aspects of natural language. use: our words, our selves. , 2003, Annual review of psychology.

[35]  Katherine M White,et al.  A randomised controlled trial of a theory-based intervention to improve sun protective behaviour in adolescents ('you can still be HOT in the shade'): study protocol , 2012, BMC Cancer.