When More Is Too Much: Compound Caregiving, Barriers to Services, and Service Support for Older Families of People With Disabilities
暂无分享,去创建一个
[1] P. Samuel,et al. Caregivers’ Perceptions of Family Quality of Life of Individuals with Developmental Disabilities Comorbid with Dementia: A Pilot Study , 2020, Journal for ReAttach Therapy and Developmental Diversities.
[2] M. Aranda,et al. Caregiving in the U.S. 2020 , 2020 .
[3] Christina N. Marsack-Topolewski,et al. Quality of Life among Compound Caregivers and Noncompound Caregivers of Adults with Autism , 2020, Journal of gerontological social work.
[4] J. Kosteniuk,et al. Dementia-Related Education and Support Service Availability, Accessibility, and Use in Rural Areas: Barriers and Solutions , 2020, Canadian Journal on Aging / La Revue canadienne du vieillissement.
[5] M. Burke,et al. Future Planning Among Families of Individuals With Intellectual and Developmental Disabilities: A Systematic Review , 2020 .
[6] Christina N. Marsack-Topolewski,et al. “I worry about his future!” Challenges to future planning for adult children with ASD , 2020, Journal of Family Social Work.
[7] Christina N. Marsack-Topolewski,et al. A Snapshot of Social Support Networks Among Parental Caregivers of Adults with Autism , 2019, Journal of Autism and Developmental Disorders.
[8] A. Houser,et al. Valuing the Invaluable: 2019 Update: Charting a Path Forward , 2019 .
[9] M. Ibrahim,et al. Predictors of Caregivers’ Satisfaction with the Management of Children with Autism Spectrum Disorder: A Study at Multiple Levels of Health Care , 2019, International journal of environmental research and public health.
[10] P. Samuel,et al. Family Quality of Life: Perspectives of Family Caregivers of People with Dementia , 2019, Physical & Occupational Therapy In Geriatrics.
[11] Melissa L. Harry,et al. “It's Like Two Roles We're Playing”: Parent Perspectives on Navigating Self-Directed Service Programs with Adult Children with Intellectual and/or Developmental Disabilities , 2018, Journal of Policy and Practice in Intellectual Disabilities.
[12] Patrick S. Powell,et al. Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation , 2018, Journal of Autism and Developmental Disorders.
[13] K. Roberto,et al. Caregiving, intellectual disability, and dementia: Report of the Summit Workgroup on Caregiving and Intellectual and Developmental Disabilities , 2018, Alzheimer's & dementia.
[14] W. Tarraf,et al. Family Quality of Life Survey (FQOLS-2006): Evaluation of Internal Consistency, Construct, and Criterion Validity for Socioeconomically Disadvantaged Families , 2018, Physical & occupational therapy in pediatrics.
[15] S. Winkler,et al. Family Caregiver Training Program (FCTP): A Randomized Controlled Trial , 2017, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.
[16] S. Pavarini,et al. Stress and optimism of elderlies who are caregivers for elderlies and live with children. , 2017, Revista brasileira de enfermagem.
[17] K. LaDonna,et al. Evolving Motivations: Patients’ and Caregivers’ Perceptions About Seeking Myotonic Dystrophy (DM1) and Huntington’s Disease Care , 2017, Qualitative health research.
[18] H. Ouellette-Kuntz,et al. Parents of Adults with Intellectual and Developmental Disabilities (IDD) and Compound Caregiving Responsibilities , 2017 .
[19] Emily You,et al. “There isn't an easy way of finding the help that's available.” Barriers and facilitators of service use among dementia family caregivers: a qualitative study , 2017, International Psychogeriatrics.
[20] B. Grossman,et al. Family support in late life: A review of the literature on aging, disability, and family caregiving , 2016 .
[21] F. Pociask,et al. Concurrent Validity of the International Family Quality of Life Survey , 2016, Occupational therapy in health care.
[22] J. Mutchler,et al. The Role of Aging and Disability Resource Centers in Serving Adults Aging with Intellectual Disabilities and Their Families: Findings from Seven States , 2016, Journal of aging & social policy.
[23] Katherine E. Pickard,et al. Quality versus quantity: The role of socioeconomic status on parent-reported service knowledge, service use, unmet service needs, and barriers to service use , 2016, Autism : the international journal of research and practice.
[24] U. Sambamoorthi,et al. Access to services, quality of care, and family impact for children with autism, other developmental disabilities, and other mental health conditions , 2014, Autism : the international journal of research and practice.
[25] Kathy Black,et al. Who Cares for Caregivers? Evidence-Based Approaches to Family Support , 2014, Journal of gerontological social work.
[26] Jennifer S. Reinke,et al. Families of individuals with intellectual and developmental disabilities: policy, funding, services, and experiences. , 2013, Intellectual and developmental disabilities.
[27] A. Turnbull,et al. The quantitative measurement of family quality of life: a review of available instruments. , 2011, Journal of intellectual disability research : JIDR.
[28] F. Floyd,et al. Midlife and aging parents of adults with intellectual and developmental disabilities: impacts of lifelong parenting. , 2011, American journal on intellectual and developmental disabilities.
[29] L. Pizzi,et al. The cost-effectiveness of a nonpharmacologic intervention for individuals with dementia and family caregivers: the tailored activity program. , 2010, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.
[30] Elizabeth Perkins. The Compound Caregiver: A Case Study of Multiple Caregiving Roles , 2010 .
[31] Roy I. Brown,et al. Family Quality of Life: A Framework for Policy and Social Service Provisions to Support Families of Children With Disabilities , 2009 .
[32] A. Turnbull,et al. Family Quality of Life: Moving From Measurement to Application , 2009 .
[33] Roy I. Brown,et al. The International Family Quality of Life Project: Goals and Description of a Survey Tool , 2007 .
[34] N. Jokinen. Family Quality of Life and Older Families , 2006 .
[35] Audie A Atienza,et al. Role stressors as predictors of changes in womens’ optimistic expectations , 2004 .
[36] S. Bazyk. Ordinary Families, Special Children: A Systems Approach to Childhood Disability , 1989 .
[37] M. Edwards,et al. Testing the factor structure of the Family Quality of Life Survey - 2006. , 2012, Journal of intellectual disability research : JIDR.
[38] K. Lacey,et al. Analysing family service needs of typically underserved families in the USA. , 2012, Journal of intellectual disability research : JIDR.