Experiences of predictive testing in young people at risk of Huntington’s disease, familial cardiomyopathy or hereditary breast and ovarian cancer

[1]  R. Macleod,et al.  Recommendations for the predictive genetic test in Huntington's disease , 2013, Clinical genetics.

[2]  R. Hamilton.  Original Research: Being Young, Female, and BRCA Positive , 2012, The American journal of nursing.

[3]  Barry J Maron,et al.  Genetics of hypertrophic cardiomyopathy after 20 years: clinical perspectives. , 2012, Journal of the American College of Cardiology.

[4]  M. Greene,et al.  ‘Cancer doesn’t have an age’: Genetic testing and cancer risk management in BRCA1/2 mutation-positive women aged 18–24 , 2012, Health.

[5]  M. Greene,et al.  Toward a new understanding of risk perception among young female BRCA1/2 "previvors". , 2012, Families, systems & health : the journal of collaborative family healthcare.

[6]  D. Evans,et al.  Life expectancy in hereditary cancer predisposing diseases: an observational study , 2012, Journal of Medical Genetics.

[7]  Jane S. Paulsen,et al.  Factors associated with experiences of genetic discrimination among individuals at risk for huntington disease , 2011, American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics.

[8]  J. Savulescu,et al.  The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis , 2010, Familial Cancer.

[9]  P. Borry.  Genetic testing in asymptomatic minors: recommendations of the European Society of Human Genetics , 2009, European Journal of Human Genetics.

[10]  B. Knoppers,et al.  Factors influencing intrafamilial communication of hereditary breast and ovarian cancer genetic information , 2009, European Journal of Human Genetics.

[11]  A. Durr,et al.  Long-term outcome of presymptomatic testing in Huntington disease , 2009, European Journal of Human Genetics.

[12]  A. Wilde,et al.  Predictive genetic testing for cardiovascular diseases: Impact on carrier children , 2008, American journal of medical genetics. Part A.

[13]  Jonathan A. Smith,et al.  Interpretative phenomenological analysis , 2008 .

[14]  J. Savulescu,et al.  “You're one of us now”: Young people describe their experiences of predictive genetic testing for Huntington disease (HD) and familial adenomatous polyposis (FAP) , 2008, American journal of medical genetics. Part C, Seminars in medical genetics.

[15]  S. Warby,et al.  Predictive testing for Huntington disease: interpretation and significance of intermediate alleles , 2006, Clinical genetics.

[16]  B. Meiser,et al.  Psychological impact of genetic testing for cancer susceptibility: an update of the literature , 2005, Psycho-oncology.

[17]  R. Roos,et al.  Adverse effects of predictive testing for Huntington disease underestimated: long-term effects 7-10 years after the test. , 2004, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[18]  D. Craufurd,et al.  Comparison of genetic services with and without genetic registers: access and attitudes to genetic counselling services among relatives of genetic clinic patients , 2002, Journal of medical genetics.

[19]  D. Craufurd,et al.  Comparison of genetic services with and without genetic registers: knowledge, adjustment, and attitudes about genetic counselling among probands referred to three genetic clinics , 2002, Journal of medical genetics.

[20]  E. Carr,et al.  The use of the telephone interview for research , 2001 .

[21]  S. Michie,et al.  Psychological consequences of predictive genetic testing: a systematic review , 2000, European Journal of Human Genetics.

[22]  S. Sobel,et al.  Impact of genetic testing for Huntington disease on the family system. , 2000, American journal of medical genetics.

[23]  B. Roe,et al.  Telephone or face-to-face interviews?: a decision made on the basis of a pilot study. , 1998, International journal of nursing studies.

[24]  Funda Meric-Bernstam,et al.  Genotype in BRCA‐associated Breast Cancers , 2013, The breast journal.

[25]  K. Demyttenaere,et al.  Psychological distress in the 5-year period after predictive testing for Huntington's disease , 2003, European Journal of Human Genetics.

[26]  Jonathan A. Smith,et al.  Doing Interpretative Phenomenological Analysis , 1999 .