Patient Empowerment and New Citizen Roles through Telehealth Technologies - The Early Stage

The aim of the present article is to explore the potential for citizens to gain new empowered roles through the use of health technology. The authors propose the distinction between citizen roles on two levels: the role of the citizen as patient actively involved in his own treatment and then an 'extended citizen role'. Findings are based on a literature review combined with lessons learned from two telehealth projects currently running in Denmark. The authors find that the empowerment happens through information-sharing; offering the patients a visual overview of their course of treatment, letting the patients take their own measurements, and letting them provide verbal and written inputs. Finally, perspectives on communities of shared care and 'ambient assisted living' are discussed.

[1]  Pilot trial of telemedicine as a decision aid for patients with chronic wounds. , 2008, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[2]  S. Meystre The current state of telemonitoring: a comment on the literature. , 2005, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[3]  Therese L. Rossman,et al.  In‐Home Wound Care Management Utilizing Information Technology , 2007, Home healthcare nurse.

[4]  L. Cardozo,et al.  Telemedicine for recently discharged older patients. , 2010, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[5]  Rainer Hofmann-Wellenhof,et al.  Mobile teledermatology: a feasibility study of 58 subjects using mobile phones , 2008, Journal of telemedicine and telecare.

[6]  B. Waldo Telehealth and the electronic medical record. , 2003, Nursing economic$.

[7]  Sabine Koch,et al.  Home telehealth - Current state and future trends , 2006, Int. J. Medical Informatics.

[8]  Kevin D Blanchet,et al.  Telehealth and diabetes monitoring. , 2008, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[9]  Diane J. Cook,et al.  Author's Personal Copy Pervasive and Mobile Computing Ambient Intelligence: Technologies, Applications, and Opportunities , 2022 .

[10]  Simon Dodds,et al.  Telemedicine: a new model of care. , 2003, Nursing times.

[11]  M. Gagnon,et al.  Telehomecare for vulnerable populations: The evaluation of new models of care. , 2006, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[12]  C. Ratliff,et al.  Telehealth for wound management in long-term care. , 2005, Ostomy/wound management.

[13]  Richard Tynan,et al.  Towards evolutionary ambient assisted living systems , 2010, J. Ambient Intell. Humaniz. Comput..

[14]  Birthe Dinesen Implementation of telehomecare technology: impact on chronically ill patients, healthcare professionals and the healthcare system , 2007, International Journal of Integrated Care.

[15]  Emily Seto,et al.  Cost comparison between telemonitoring and usual care of heart failure: a systematic review. , 2008, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[16]  J. Hall-Barrow,et al.  A Pilot Study of Diabetes Education via Telemedicine in a Rural Underserved Community—Opportunities and Challenges , 2009, The Diabetes educator.

[17]  Cheryl Duke,et al.  The Frail Elderly Community-Based Case Management Project. , 2005, Geriatric nursing.

[18]  Philip C. Morin,et al.  Primary care providers' perceptions of home diabetes telemedicine care in the IDEATel project. , 2007, The Journal of rural health : official journal of the American Rural Health Association and the National Rural Health Care Association.

[19]  Jean-Paul Fortin,et al.  Impacts of telehomecare on patients, providers, and organizations. , 2006, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[20]  George Demiris,et al.  Telehomecare: quality, perception, satisfaction. , 2004, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[21]  P. A. Mayes,et al.  New direction for enhancing quality in diabetes care: utilizing telecommunications and paraprofessional outreach workers backed by an expert medical team. , 2010, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[22]  Jane Clemensen,et al.  Treatment of Diabetic Foot Ulcers in the Home: Video Consultations as an Alternative to Outpatient Hospital Care , 2008, International journal of telemedicine and applications.

[23]  D M D'Alessandro,et al.  Empowering children and families with information technology. , 2001, Archives of pediatrics & adolescent medicine.

[24]  Jane Clemensen Pervasive Healthcare: Home Treatment of Patients with Diabetic Foot Ulcers , 2006 .

[25]  Lennart Magnusson,et al.  A literature review study of Information and Communication Technology as a support for frail older people living at home and their family carers , 2004 .

[26]  S. Finkelstein,et al.  Home telehealth improves clinical outcomes at lower cost for home healthcare. , 2006, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[27]  Guy Paré,et al.  Review Paper: Systematic Review of Home Telemonitoring for Chronic Diseases: The Evidence Base , 2007, J. Am. Medical Informatics Assoc..

[28]  George Demiris,et al.  Ethical Considerations for the Utilization of Telehealth Technologies in Home and Hospice Care by the Nursing Profession , 2006, Nursing administration quarterly.

[29]  B. Johnston,et al.  Outcomes of the Kaiser Permanente Tele-Home Health Research Project. , 2000, Archives of family medicine.

[30]  Walter Palmas,et al.  Recruitment and enrollment of rural and urban medically underserved elderly into a randomized trial of telemedicine case management for diabetes care. , 2006, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.