Accelerating Precision Health by Applying the Lessons Learned from Direct-to-Consumer Genomics to Digital Health Technologies

Joyce Y. Tung, PhD, 23andMe; Ryan J. Shaw, PhD, RN, Duke University School of Nursing; Jill M. Hagenkord, MD, FACP, Color Genomics; Meredith Hackmann, National Academies of Sciences, Engineering, and Medicine; Marion Muller, Emory University; Sarah H. Beachy, PhD, National Academies of Sciences, Engineering, and Medicine; Victoria M. Pratt, PhD, Indiana University; Sharon F. Terry, MA, Genetic Alliance; Ann K. Cashion, PhD, National Institute of Nursing Research; Geoffrey S. Ginsburg, MD, PhD, Duke University School of Medicine

[1]  Carl A. Gunter,et al.  Privacy and Security in Mobile Health: A Research Agenda , 2016, Computer.

[2]  Kathy Hudson,et al.  Subjects matter: a survey of public opinions about a large genetic cohort study , 2008, Genetics in Medicine.

[3]  E. Kelly,et al.  Health information privacy and e-healthcare , 2002 .

[4]  Samantha R. Paige,et al.  eHealth Literacy and Web 2.0 Health Information Seeking Behaviors Among Baby Boomers and Older Adults , 2015, Journal of medical Internet research.

[5]  Matthew J. Bietz,et al.  Privacy Attitudes among Early Adopters of Emerging Health Technologies , 2016, PloS one.

[6]  S. Teutsch,et al.  The Evaluation of Genomic Applications in Practice and Prevention (EGAPP) initiative: methods of the EGAPP Working Group , 2009, Genetics in Medicine.

[7]  Geoffrey S. Ginsburg,et al.  Realizing the Full Potential of Precision Medicine in Health and Health Care. , 2016, JAMA.

[8]  H. Skirton,et al.  Direct-to-consumer genomic testing from the perspective of the health professional: a systematic review of the literature , 2013, Journal of Community Genetics.

[9]  E. Topol,et al.  Moving Beyond Clinical Risk Scores with a Mobile App for the Genomic Risk of Coronary Artery Disease , 2017, bioRxiv.

[10]  Tao Wang,et al.  Social Networkers' Attitudes Toward Direct-to-Consumer Personal Genome Testing , 2009, The American journal of bioethics : AJOB.

[11]  Marc S. Williams,et al.  US system of oversight for genetic testing: a report from the Secretary's Advisory Committee on Genetics, Health and Society. , 2008, Personalized medicine.

[12]  Sara E. Champlin,et al.  Health Literacy and Health Information Technology Adoption: The Potential for a New Digital Divide , 2016, Journal of medical Internet research.

[13]  Dermot Phelan,et al.  Accuracy of Wrist-Worn Heart Rate Monitors , 2017, JAMA cardiology.

[14]  R. Bali,et al.  Implications for Healthcare Knowledge Management Systems: a case study , 2005, 2005 IEEE Engineering in Medicine and Biology 27th Annual Conference.