A qualitative investigation of the healthcare challenges of women with disabilities in Yogyakarta (Indonesia): Implication for health policy

[1]  Rahel Wasserfall,et al.  Reflexivity, feminism and difference , 1993 .

[2]  L. Penn-Kekana,et al.  Gender biases and discrimination: a review of health care interpersonal interactions , 2008, Global public health.

[3]  J. Cook,et al.  Feminist Methodology: New Applications in the Academy and Public Policy , 2005, Signs: Journal of Women in Culture and Society.

[4]  P. Gill,et al.  Methods of data collection in qualitative research: interviews and focus groups , 2008, BDJ.

[5]  Loree Erickson.  Revealing Femmegimp: A Sex-positive Reflection on Sites of Shame as Sites of Resistance for People with Disabilities , 2007 .

[6]  D. Mertens.  Transformative Paradigm , 2007 .

[7]  Lorraine Thomas.  Disability is Not so Beautiful: A Semiotic Analysis of Advertisements for Rehabilitation Goods , 2001 .

[8]  C. Chitereka.  People with Disabilities and the Role of Social Workers in Lesotho , 2010 .

[9]  M. Nordström,et al.  Support networks and social support for persons with psychiatric disabilities—a Swedish mixed-methods study , 2012 .

[10]  dkk Donald Ary.  Introduction to research in education , 1972 .

[11]  A. Michael Huberman,et al.  An expanded sourcebook qualitative data analysis , 1994 .

[12]  U. Sambamoorthi,et al.  Wage Differential by Disability Status in an Agrarian Labor Market in India , 2008 .

[13]  P. Liamputtong,et al.  Reproductive and Sexual Health of People with Physical Disabilities: A Metasynthesis , 2016 .

[14]  L. Phillips,et al.  Better Reproductive Healthcare for Women With Disabilities: A Role for Nursing Leadership , 2006, ANS. Advances in nursing science.

[15]  Paul L. Latreille,et al.  Disability and earnings: Are employer characteristics important? , 2010 .

[16]  Margaret Whitehead,et al.  The Concepts and Principles of Equity and Health , 1992 .

[17]  M. Lanoix.  Risky Dependency: Social Welfare and Dependency in French Policies on Aging , 2013 .

[18]  E. Guba,et al.  Lincoln, Yvonna, and Egon G. Guba, Naturalistic Inquiry. Beverly Hills, CA: Sage, 1985. , 1985 .

[19]  L. Mccullough.  Gender and Health: The Effects of Constrained Choices and Social Policies , 2008 .

[20]  Zdravka Leutar,et al.  The stigma of disability: Croatian experiences , 2012, Disability and rehabilitation.

[21]  R. Imrie.  Demystifying disability: a review of the International Classification of Functioning, Disability and Health. , 2004, Sociology of health & illness.

[22]  Renée R Taylor.  Can the social model explain all of disability experience? Perspectives of persons with chronic fatigue syndrome. , 2005, The American journal of occupational therapy : official publication of the American Occupational Therapy Association.

[23]  Rebecca Garden.  Disability and narrative: new directions for medicine and the medical humanities , 2010, Medical Humanities.

[24]  S. Haider,et al.  Prevalence and factors associated with polypharmacy in Victorian adults with intellectual disability. , 2014, Research in developmental disabilities.

[25]  J. Worell,et al.  Feminist perspectives in therapy: Empowering diverse women, 2nd ed. , 2003 .

[26]  N. Chatterjee,et al.  Health-care utilization by disabled persons: a survey in rural Bangladesh. , 1998, Disability and rehabilitation.

[27]  N. Groce,et al.  Access to health care, reproductive health and disability: a large scale survey in Sierra Leone. , 2011, Social science & medicine.

[28]  P. Barata,et al.  Ivory tower? Feminist women's experiences of graduate school , 2005 .

[29]  Anita Ghai.  Disability and the Millennium Development Goals , 2009 .

[30]  I. Dyck.  Whose Body? Whose Voice? , 1996 .

[31]  Mauri Åhlberg,et al.  Visualizing Social Science Research: Maps, Methods, & Meaning , 2011 .

[32]  M. Oliver.  The Politics of Disablement: A Sociological Approach , 1990 .

[33]  R. Barbour.  Introducing qualitative research : a student's guide , 2014 .

[34]  Robert K. Yin,et al.  Qualitative Research from Start to Finish , 2010 .

[35]  D. Hoffmann,et al.  The girl who cried pain: a bias against women in the treatment of pain. , 2001, The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics.

[36]  Andrew K. Shenton.  Strategies for ensuring trustworthiness in qualitative research projects , 2004, Educ. Inf..

[37]  B. Ford.  International Classification of Impairments, Disabilities and Handicaps , 1984, Releve epidemiologique hebdomadaire.

[38]  A. Eagly.  Sex differences in social behavior : a social-role interpretation , 1987 .

[39]  Bonnie O'day,et al.  The Health Care Financing Maze for Working-Age People with Disabilities , 2007 .

[40]  M. Maclachlan,et al.  Realising the rights of disabled people in Africa: an introduction to the special issue , 2009, Disability and rehabilitation.

[41]  Letícia de Campos Velho Martel.  Reasonable Accommodation: The New Concept from an Inclusive Constitutional Perspective , 2011 .

[42]  G. Carrin,et al.  Designing health financing systems to reduce catastrophic health expenditure , 2005 .

[43]  John W. Creswell,et al.  Qualitative Inquiry and Research Design: Choosing Among Five Approaches , 1966 .

[44]  Carol Thomas.  MEDICINE, GENDER, AND DISABILITY: DISABLED WOMEN'S HEALTH CARE ENCOUNTERS , 2001, Health Care for Women International.

[45]  P. Curtis,et al.  Having a baby: some disabled women's reproductive experiences. , 1997, Midwifery.

[46]  A. Lyons.  Masculinities, Femininities, Behaviour and Health , 2009 .

[47]  A Nilay Evcil,et al.  Wheelchair accessibility to public buildings in Istanbul , 2009, Disability and rehabilitation. Assistive technology.

[48]  E. Thomas,et al.  A first qualitative project: qualitative descriptive design for novice researchers. , 2009, Journal for specialists in pediatric nursing : JSPN.

[49]  J. Angus,et al.  Navigating healthcare: gateways to cancer screening , 2009 .

[50]  Myfanwy Morgan,et al.  What does 'access to health care' mean? , 2002, Journal of health services research & policy.

[51]  R. Mullner.  Encyclopedia of health services research , 2009 .

[52]  Paulette Cebulski,et al.  More Than Ramps: A Guide to Improving Health Care Quality and Access for People With Disabilities , 2006, Physical Therapy.

[53]  D. Taub,et al.  stigma management strategies among women with physical disabilities: contrasting approaches of downplaying or claiming a disability status , 2004 .

[54]  N. Watson,et al.  The social model of disability: An outdated ideology? , 2001 .

[55]  Peter Disler.  Poverty and disability , 1984 .

[56]  A. Yaakoubd.  The Social Dimension of Health in Morocco , 2009 .

[57]  M. Santiago,et al.  Leisure-Time Physical Activity Among Women with Mobility Impairments: Implications for Health Promotion and Leisure Education , 2004 .

[58]  R. Penchansky,et al.  The Concept of Access: Definition and Relationship to Consumer Satisfaction , 1981, Medical care.

[59]  R. Schulz,et al.  Long-term adjustment to physical disability: the role of social support, perceived control, and self-blame. , 1985, Journal of personality and social psychology.

[60]  N. Groce,et al.  Inheritance, poverty, and disability , 2014 .

[61]  L. Barton,et al.  Inclusive Education: Policy, Contexts and Comparative Perspectives , 2016 .

[62]  L. Servais.  Sexual health care in persons with intellectual disabilities. , 2006, Mental retardation and developmental disabilities research reviews.

[63]  P. Fabiani.  The Philosophy of the Imagination in Vico and Malebranche , 2009 .

[64]  A. Cureton,et al.  Disability and disadvantage , 2009 .

[65]  W. Kwan,et al.  The impact of breast cancer among Canadian women: disability and productivity. , 2009, Work.

[66]  Daniel G. Oliver,et al.  Constraints and Opportunities with Interview Transcription: Towards Reflection in Qualitative Research , 2005, Social forces; a scientific medium of social study and interpretation.

[67]  S. Reynolds.  Disability culture in West Africa: qualitative research indicating barriers and progress in the greater Accra region of Ghana. , 2010, Occupational therapy international.

[68]  Nirmala Erevelles.  (Dis)Embodied Form: Issues of Disabled Women. , 2005 .

[69]  Robson da Fonseca Neves,et al.  Support networks and people with physical disabilities: social inclusion and access to health services. , 2015, Ciencia & saude coletiva.

[70]  A. Costello,et al.  Disabled women׳s maternal and newborn health care in rural Nepal: A qualitative study , 2014, Midwifery.

[71]  Patterns of disability and norms of participation through the life course: empirical support for a social model of disability , 2003 .

[72]  Sophie Mitra,et al.  Disability and Poverty in Developing Countries: A Snapshot from the World Health Survey , 2011 .

[73]  S. Emmott,et al.  Feminist Issues in Research Methodology: The Development of a Cognitive Scale , 2001 .

[74]  M. Schaaf.  Negotiating Sexuality in the Convention on the Rights of Persons with Disabilities , 2011 .

[75]  U. Sambamoorthi,et al.  Disability and receipt of clinical preventive services among women. , 2006, Women's health issues : official publication of the Jacobs Institute of Women's Health.

[76]  J. Rogers.  The Disabled Woman's Guide to Pregnancy and Birth , 2005 .

[77]  I. Kawachi,et al.  Women's status and the health of women and men: a view from the States. , 1999, Social science & medicine.

[78]  Elisabeth Prügl,et al.  Feminism and Constructivism: Worlds Apart or Sharing the Middle Ground? , 2001 .

[79]  K L Easton,et al.  Avoiding Common Pitfalls in Qualitative Data Collection and Transcription , 2000, Qualitative health research.

[80]  G. Agoramoorthy.  Are women with mental illness & the mentally challenged adequately protected in India? , 2011, The Indian journal of medical research.

[81]  Linda W Nikora,et al.  Disabled Māori and disability support options , 2004 .

[82]  Chomba Wa Munyi,et al.  Past and Present Perceptions Towards Disability: A Historical Perspective , 2012 .

[83]  E. Alant,et al.  Women and disability: exploring the interface of multiple disadvantage , 2006 .

[84]  A. Green,et al.  Why the disease-based model of medicine fails our patients. , 2002, The Western journal of medicine.

[85]  WilkinsDavid.  Men's health around the world: a review of policy and progress across 11 countries , 2009 .

[86]  S. Skipton.  Cuts, Privatization And Deregulation: A Look At The Impact of Some New Right Government Policies On Women , 1997 .

[87]  Patricia Anafi,et al.  Does Disability Matter? Disability in Sexual and Reproductive Health Policies and Research in Ghana , 2014, International quarterly of community health education.

[88]  M. Forhan.  An analysis of disability models and the application of the ICF to obesity , 2009, Disability and rehabilitation.

[89]  P. Barros,et al.  Catastrophic healthcare expenditure - drivers and protection: the Portuguese case. , 2014, Health policy.

[90]  B. Depaulo,et al.  Lying in everyday life. , 1996, Journal of personality and social psychology.

[91]  S. Friel.  Health equity in Australia: A policy framework based on action on the social determinants of obesity, alcohol and tobacco , 2009 .

[92]  B. Akın,et al.  An Investigation of Sexual/Reproductive Health Issues in Women with a Physical Disability , 2014 .

[93]  N. Denzin,et al.  The SAGE handbook of qualitative research , 2005 .

[94]  M. Eberhardt,et al.  The importance of place of residence: examining health in rural and nonrural areas. , 2004, American journal of public health.

[95]  B. Norwich.  Dilemmas of difference, inclusion and disability: international perspectives on placement , 2008 .

[96]  Wilhelm Kirch,et al.  Encyclopedia of public health , 2008 .

[97]  Deon Filmer,et al.  Disability, Poverty, and Schooling in Developing Countries: Results from 11 Household Surveys , 2005 .

[98]  G. Llewellyn,et al.  To Feel Belonged: The Voices of Children and Youth with Disabilities on the Meaning of Wellbeing , 2012 .

[99]  D. Mont.  Measuring disability prevalence , 2007 .

[100]  Lennard J. Davis,et al.  The Disability Studies Reader , 2013 .

[101]  T. O. Mmatli.  Translating disability-related research into evidence-based advocacy: the role of people with disabilities , 2009, Disability and rehabilitation.

[102]  J. Wisdom,et al.  Health Disparities Between Women With and Without Disabilities: A Review of the Research , 2010, Social work in public health.

[103]  Joan Acker,et al.  Objectivity and truth: Problems in doing feminist research☆ , 1983 .

[104]  B. Starfield.  Basic concepts in population health and health care , 2001, Journal of epidemiology and community health.

[105]  長瀬 修.  わかりやすい障害者の権利条約 : 知的障害のある人の権利のために = Convention on the rights of persons with disabilities , 2009 .

[106]  N. Stapele.  Intersubjectivity, self-reflexivity and agency: Narrating about ‘self’ and ‘other’ in feminist research , 2014 .

[107]  D. Evans,et al.  Protecting households from catastrophic health spending. , 2007, Health affairs.

[108]  K. Atkin,et al.  Being deaf and being other things: young Asian people negotiating identities. , 2002, Social science & medicine.

[109]  Patricia S. Mann.  Gender Trouble: Feminism and the Subversion of Identity , 1992 .

[110]  Y. Salamonson,et al.  Translation of interviews from a source language to a target language: examining issues in cross-cultural health care research. , 2015, Journal of clinical nursing.

[111]  C. Doughty,et al.  Care, empowerment and self-determination in the practice of peer support , 2012 .

[112]  R. Burden,et al.  A Survey into Mainstream Teachers' Attitudes Towards the Inclusion of Children with Special Educational Needs in the Ordinary School in one Local Education Authority , 2000 .

[113]  R. Basson.  Sexual health of women with disabilities. , 1998, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[114]  W. Gesler,et al.  Approaches to sampling and case selection in qualitative research: examples in the geography of health. , 2000, Social science & medicine.

[115]  L. Jacobsson.  Daily life experiences, symptoms and well being in women with coeliac disease : A patient education intervention , 2011 .

[116]  Marita Ahdiyana,et al.  Pelayanan Publik Bidang Transportasi bagi Difabel di Daerah Istimewa Yogyakarta , 2015 .

[117]  L. Abu-habib.  Gender and Disability: Women's Experiences in the Middle East , 1997 .

[118]  Juan Balbi.  Epistemological and theoretical foundations of constructivist cognitive therapies: Post-rationalist developments , 2008 .

[119]  J. Wilkinson,et al.  Sexual and Reproductive Health Care for Women with Intellectual Disabilities: A Primary Care Perspective , 2013, International journal of family medicine.

[120]  Grant Russell,et al.  Patient-centred access to health care: conceptualising access at the interface of health systems and populations , 2013, International Journal for Equity in Health.

[121]  H. Turunen,et al.  Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. , 2013, Nursing & health sciences.

[122]  Mark R Luborsky,et al.  Sampling in Qualitative Research , 1995, Research on aging.

[123]  Y. Salimi,et al.  Perceived Social Support Among People With Physical Disability , 2013, Iranian Red Crescent medical journal.

[124]  M. Nosek,et al.  Breast and cervical cancer screening among women with physical disabilities. , 1997, Archives of physical medicine and rehabilitation.

[125]  S. Hesse-Biber.  Feminist Research Practice: A Primer , 2006 .

[126]  Heather B. Taylor,et al.  Self-esteem and women with disabilities. , 2003, Social science & medicine.

[127]  S. Vehmas,et al.  A realist account of the ontology of impairment , 2008, Journal of Medical Ethics.

[128]  P. Östlin,et al.  Unequal, unfair, ineffective and inefficient gender inequity in health: why it exists and how we can change it. Final report , 2007 .

[129]  A. Hammarström.  Why feminism in public health? , 1999, Scandinavian Journal of Public Health.

[130]  Raewyn Connell,et al.  Gender and Power: Society, the Person and Sexual Politics. , 1991 .

[131]  Jenny Morris.  With Wings: An Anthology of Literature by Women With Disabilities , 1988 .

[132]  D. Bell,et al.  The Sage Encyclopedia of Qualitative Research Methods , 2013 .

[133]  A. Culyer,et al.  Equity and equality in health and health care. , 1993, Journal of health economics.

[134]  S. Wilkinson.  The role of reflexivity in feminist psychology , 1988 .

[135]  C. Johnstone.  Disability and Identity: Personal Constructions and Formalized Supports , 2004 .

[136]  J. Lipson,et al.  Pregnancy, birth, and disability: women's health care experiences. , 2000, Health care for women international.

[137]  W. Stainback,et al.  Encouraging Peer Supports and Friendships , 1992 .

[138]  江藤 文夫.  World Report on Disability 2011を読む(第2回)世界の障害者人口と統計手法をめぐって , 2013 .

[139]  R. Yeo,et al.  Including Disabled People in Poverty Reduction Work: "Nothing About Us, Without Us" , 2003 .

[140]  R. Thomas-Maclean,et al.  Feminist Understandings of Embodiment and Disability: A "Material-Discursive" Approach to Breast Cancer Related Lymphedema , 2012 .

[141]  C. Dudley,et al.  The Value of Caregiver Time: Costs of Support and Care for Individuals Living with Autism Spectrum Disorder , 2014 .

[142]  Simon Brisenden,et al.  Independent Living and the Medical Model of Disability , 1986 .

[143]  S. Hawkes,et al.  Hidden voices: prevalence and risk factors for violence against women with disabilities in Nepal , 2015, BMC Public Health.

[144]  N. Groce.  Women With Disabilities in the Developing World , 1997 .

[145]  G. Abel,et al.  How do adults with physical disability experience primary care? A nationwide cross-sectional survey of access among patients in England , 2014, BMJ Open.

[146]  Natasha Saltes.  ‘Abnormal’ Bodies on the Borders of Inclusion: Biopolitics and the Paradox of Disability Surveillance , 2013 .

[147]  Maria Farida Indrati.  Ilmu Perundang-Undangan 1 : Jenis Fungsi dan Materi Muatan , 2007 .

[148]  K. Gergen.  An invitation to social construction , 1999 .

[149]  J. Andersson.  Physical disability and sexuality : A qualitative study on challenges and expectations connected to sexuality seen from the view of Tanzanian women living with physical disabilities , 2010 .

[150]  J. Jelsma,et al.  Poverty and disability in Eastern and Western Cape Provinces, South Africa , 2008 .

[151]  S. Stone.  Reactions to invisible disability: the experiences of young women survivors of hemorrhagic stroke. , 2005, Disability and rehabilitation.

[152]  Remaining Audible to the Self: Women and Holistic Health , 2003 .

[153]  J. Rothman.  The Challenge of Disability and Access: Reconceptualizing the Role of the Medical Model , 2010, Journal of social work in disability & rehabilitation.

[154]  Marguerite Schneider,et al.  EquiFrame: a framework for analysis of the inclusion of human rights and vulnerable groups in health policies. , 2011, Health and human rights.

[155]  Michael Oliver,et al.  Understanding Disability: From Theory to Practice , 1995 .

[156]  C. Tobias,et al.  Cross-Disability Experiences of Barriers to Health-Care Access , 2006 .

[157]  H. Combrinck,et al.  The UN Convention on the Rights of Persons with Disabilities in Africa: Progress After 5 Years , 2011 .