Lessons learned about harmonizing survey measures for the CSER consortium
暂无分享,去创建一个
K. Goddard | L. Hindorff | A. McGuire | J. Berg | M. Danila | B. Biesecker | C. Rini | J. Robinson | S. Lee | J. Hunter | K. East | C. Horowitz | S. Ackerman | S. Knight | M. Ramos | Jeffrey Ou | G. Joseph | S. Outram | Margaret Waltz | Sara L. Ackerman | E. Rahn | Kristin R. Muessig | H. Smith | Frank A Angelo | Galen Joseph | Michelle A. Ramos
[1] W. Chung,et al. Psychological outcomes related to exome and genome sequencing result disclosure: a meta-analysis of seven Clinical Sequencing Exploratory Research (CSER) Consortium studies , 2019, Genetics in Medicine.
[2] Josh Peterson,et al. The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research. , 2019, American journal of human genetics.
[3] N. Risch,et al. The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations. , 2018, American journal of human genetics.
[4] Stephen M Fiore,et al. The Science of Team Science: A Review of the Empirical Evidence and Research Gaps on Collaboration in Science , 2018, The American psychologist.
[5] B. Wilfond,et al. Defining personal utility in genomics: A Delphi study , 2017, Clinical genetics.
[6] Nancy J. Cooke,et al. Enhancing the Effectiveness of Team Science , 2015 .
[7] S. Kripalani,et al. Validation of a Short, 3-Item Version of the Subjective Numeracy Scale , 2015, Medical decision making : an international journal of the Society for Medical Decision Making.
[8] A. McGuire,et al. Social and behavioral research in genomic sequencing: approaches from the Clinical Sequencing Exploratory Research Consortium Outcomes and Measures Working Group , 2014, Genetics in Medicine.
[9] Michael Herdman,et al. Development of the EQ-5D-Y: a child-friendly version of the EQ-5D , 2010, Quality of Life Research.
[10] B. Hesse. Of mice and mentors: developing cyber-infrastructure to support transdisciplinary scientific collaboration. , 2008, American journal of preventive medicine.
[11] Robert T Croyle,et al. The National Cancer Institute's transdisciplinary centers initiatives and the need for building a science of team science. , 2008, American journal of preventive medicine.
[12] Mark D Thornquist,et al. The collaboration readiness of transdisciplinary research teams and centers findings from the National Cancer Institute's TREC Year-One evaluation study. , 2008, American journal of preventive medicine.
[13] Kara L Hall,et al. The ecology of team science: understanding contextual influences on transdisciplinary collaboration. , 2008, American journal of preventive medicine.
[14] Daniel Stokols,et al. Toward a Science of Transdisciplinary Action Research , 2006, American journal of community psychology.
[15] Mary E Duffy,et al. Design and psychometric evaluation of the Psychological Adaptation to Genetic Information Scale. , 2005, Journal of nursing scholarship : an official publication of Sigma Theta Tau International Honor Society of Nursing.
[16] J. Varni,et al. The PedsQL: measurement model for the pediatric quality of life inventory. , 1999, Medical care.
[17] J. Ware,et al. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. , 1996, Medical care.
[18] Ronald Czaja,et al. Designing Surveys: A Guide to Decisions and Procedures , 1995 .
[19] P. Rosenfield,et al. The potential of transdisciplinary research for sustaining and extending linkages between the health and social sciences. , 1992, Social science & medicine.
[20] S. Fullerton,et al. The Feelings About genomiC Testing Results (FACToR) Questionnaire: Development and Preliminary Validation. , 2019, Journal of genetic counseling.