Information and support needs of young women regarding breast cancer risk and genetic testing: adapting effective interventions for a novel population

[1]  L. Koehly.  It's Interpersonal: Family Relationships, Genetic Risk, and Caregiving. , 2017, The Gerontologist.

[2]  A. Kiss,et al.  Effect of decision aid for breast cancer prevention on decisional conflict in women with a BRCA1 or BRCA2 mutation: a multisite, randomized, controlled trial , 2016, Genetics in Medicine.

[3]  C. Isaacs,et al.  Understanding the Needs of Young Women Regarding Breast Cancer Risk Assessment and Genetic Testing: Convergence and Divergence among Patient-Counselor Perceptions and the Promise of Peer Support , 2016, Healthcare.

[4]  R. Tamimi,et al.  BRCA1 and BRCA2 Mutation Testing in Young Women With Breast Cancer. , 2016, JAMA oncology.

[5]  J. Kullgren,et al.  Innovations to more effectively engage patients and caregivers across the health care spectrum. , 2016, Healthcare.

[6]  Claudia X. Aguado Loi,et al.  Utilization and Outcomes of BRCA Genetic Testing and Counseling in a National Commercially Insured Population: The ABOUT Study. , 2015, JAMA oncology.

[7]  B. Peshkin,et al.  Genetic counseling and testing for hereditary cancer risk in young adult women: Facilitating autonomy and informed decision making is key , 2015, Gynecologic oncology reports.

[8]  J. Duffy,et al.  Randomized controlled trial of a telephone-based peer-support program for women carrying a BRCA1 or BRCA2 mutation: impact on psychological distress. , 2014, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[9]  E. Fisher,et al.  Peer support in health care and prevention: cultural, organizational, and dissemination issues. , 2014, Annual review of public health.

[10]  R. Zulliger,et al.  Community health workers in low-, middle-, and high-income countries: an overview of their history, recent evolution, and current effectiveness. , 2014, Annual review of public health.

[11]  R. Schmutzler,et al.  Supplemental screening ultrasound increases cancer detection yield in BRCA1 and BRCA2 mutation carriers , 2014, Archives of Gynecology and Obstetrics.

[12]  M. Greene,et al.  In Their Own Words: Treating Very Young BRCA1/2 Mutation-Positive Women with Care and Caution , 2014, PloS one.

[13]  C. Flood,et al.  Results of a pilot randomised controlled trial to measure the clinical and cost effectiveness of peer support in increasing hope and quality of life in mental health patients discharged from hospital in the UK , 2014, BMC Psychiatry.

[14]  A. Patenaude,et al.  Young adult daughters of BRCA1/2 positive mothers: What do they know about hereditary cancer and how much do they worry? , 2013, Psycho-oncology.

[15]  B. Pinto,et al.  Intervention Format and Delivery Preferences Among Young Adult Cancer Survivors , 2013, International Journal of Behavioral Medicine.

[16]  E. Friedman,et al.  Phenocopy breast cancer rates in Israeli BRCA1BRCA2 mutation carrier families: is the risk increased in non-carriers? , 2012, Breast Cancer Research and Treatment.

[17]  M. Greene,et al.  Toward a new understanding of risk perception among young female BRCA1/2 "previvors". , 2012, Families, systems & health : the journal of collaborative family healthcare.

[18]  D. Cella,et al.  Randomized Controlled Trial of a Psychosocial Telephone Counseling Intervention in BRCA1 and BRCA2 Mutation Carriers , 2010, Cancer Epidemiology, Biomarkers & Prevention.

[19]  Anne L. Ersig,et al.  Characteristics of health information gatherers, disseminators, and blockers within families at risk of hereditary cancer: implications for family health communication interventions. , 2009, American journal of public health.

[20]  O. Olopade,et al.  Learning of your parent's BRCA mutation during adolescence or early adulthood: a study of offspring experiences , 2009, Psycho-oncology.

[21]  J. Dale,et al.  Peer support telephone calls for improving health. , 2008, The Cochrane database of systematic reviews.

[22]  H A Risch,et al.  The BOADICEA model of genetic susceptibility to breast and ovarian cancers: updates and extensions , 2008, British Journal of Cancer.

[23]  J. Coyne,et al.  Peer‐support in coping with medical uncertainty: discussion of oophorectomy and hormone replacement therapy on a web‐based message board , 2007, Psycho-oncology.

[24]  R. Hamilton,et al.  The Theory of Genetic Vulnerability: A Roy Model Exemplar , 2007, Nursing science quarterly.

[25]  Giovanni Parmigiani,et al.  Meta-analysis of BRCA1 and BRCA2 penetrance. , 2007, Journal of clinical oncology : official journal of the American Society of Clinical Oncology.

[26]  Deborah Gelaude,et al.  Adapting evidence-based behavioral interventions for new settings and target populations. , 2006, AIDS education and prevention : official publication of the International Society for AIDS Education.

[27]  T. Yankeelov,et al.  NCCN clinical practice guidelines in oncology: breast cancer screening and diagnosis. , 2009, Journal of the National Comprehensive Cancer Network : JNCCN.

[28]  D. Cella,et al.  Predictors of Cognitive Appraisals Following Genetic Testing for BRCA1 and BRCA2 Mutations , 2004, Journal of Behavioral Medicine.

[29]  B. Peshkin,et al.  Predictors of participation in psychosocial telephone counseling following genetic testing for BRCA1 and BRCA2 mutations. , 2004, Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology.

[30]  J. Hopper,et al.  Average risks of breast and ovarian cancer associated with BRCA1 or BRCA2 mutations detected in case Series unselected for family history: a combined analysis of 22 studies. , 2003, American journal of human genetics.

[31]  A. O'Connor.  Validation of a Decisional Conflict Scale , 1995, Medical decision making : an international journal of the Society for Medical Decision Making.

[32]  K. Heller,et al.  Measures of perceived social support from friends and from family: Three validation studies , 1983, American journal of community psychology.

[33]  S. Giordano,et al.  Rates of BRCA1/2 mutation testing among young survivors of breast cancer , 2015, Breast Cancer Research and Treatment.

[34]  D. Brizel,et al.  National Comprehensive Cancer Network (NCCN) Clinical Practice Guidelines in Oncology , 2012 .

[35]  K. Offit,et al.  Breast cancer risks in individuals testing negative for a known family mutation in BRCA1 or BRCA2 , 2009, Breast Cancer Research and Treatment.

[36]  Suzanne O'Neill,et al.  Randomized trial of a decision aid for BRCA1/BRCA2 mutation carriers: impact on measures of decision making and satisfaction. , 2009, Health psychology : official journal of the Division of Health Psychology, American Psychological Association.

[37]  C. Carver.  You want to measure coping but your protocol’ too long: Consider the brief cope , 1997, International journal of behavioral medicine.