Effect of intracranial bleeds on the health and quality of life of boys with hemophilia.

[1]  K. Fischer,et al.  Health‐related quality of life as outcome parameter in haemophilia treatment , 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

[2]  W. Schramm,et al.  Economics of prophylactic treatment , 2003, Haemophilia : the official journal of the World Federation of Hemophilia.

[3]  N. Amodei,et al.  Hemophilia Growth and Development Study: caregiver report of youth and family adjustment to HIV disease and immunologic compromise. , 2003, Journal of pediatric psychology.

[4]  D. Grobbee,et al.  The effects of postponing prophylactic treatment on long-term outcome in patients with severe hemophilia. , 2002, Blood.

[5]  V. Blanchette,et al.  Health‐related quality‐of‐life treatments for severe haemophilia: utility measurements using the Standard Gamble technique , 2002, Haemophilia : the official journal of the World Federation of Hemophilia.

[6]  P. Giangrande,et al.  Quality‐of‐life differences between prophylactic and on‐demand factor replacement therapy in European haemophilia patients , 2002, Haemophilia : the official journal of the World Federation of Hemophilia.

[7]  B. Evatt,et al.  Changes in the occurrence of and risk factors for hemophilia‐associated intracranial hemorrhage , 2001, American journal of hematology.

[8]  P. Braveman,et al.  Measuring Socioeconomic Status/Position in Studies of Racial/Ethnic Disparities: Maternal and Infant Health , 2001, Public health reports.

[9]  B. Feldman,et al.  The clinical meaning of functional outcome scores in children with juvenile arthritis. , 2001, Arthritis and rheumatism.

[10]  P. Helders,et al.  Validity of health status measurement with the Dutch Arthritis Impact Measurement Scale 2 in individuals with severe haemophilia , 2001, Haemophilia : the official journal of the World Federation of Hemophilia.

[11]  G. deVeber,et al.  Neurologic Outcome in Survivors of Childhood Arterial Ischemic Stroke and Sinovenous Thrombosis , 2000, Journal of child neurology.

[12]  J. Wright,et al.  Measurement properties of the activities scale for kids. , 2000, Journal of clinical epidemiology.

[13]  W. Kreuz,et al.  Prevalence and outcome of intracranial haemorrhage in haemophiliacs – a survey of the paediatric group of the German Society of Thrombosis and Haemostasis (GTH) , 1999, European Journal of Pediatrics.

[14]  C. Sabin,et al.  Assessing health‐related quality‐of‐life in individuals with haemophilia , 1999, Haemophilia : the official journal of the World Federation of Hemophilia.

[15]  Nelson,et al.  Prevalence and incidence of intracranial haemorrhage in a population of children with haemophilia , 1999 .

[16]  J. Lusher,et al.  Intracranial and extracranial hemorrhages in newborns with hemophilia: a review of the literature. , 1999, Journal of pediatric hematology/oncology.

[17]  S. Donfield,et al.  Hemophilia morbidity, cognitive functioning, and academic achievement. , 1998, The Journal of pediatrics.

[18]  J. Fries,et al.  Measurement of health status in children with juvenile rheumatoid arthritis. , 1994, Arthritis and rheumatism.

[19]  H. Banta.  Quality of life 1 , 1993, Pharmacy World and Science.

[20]  J. Draugalis,et al.  Quality of life 2 , 1993, Pharmacy World and Science.

[21]  T. Bohan,et al.  Brain abnormalities in male children and adolescents with hemophilia: detection with MR imaging. The Hemophilia Growth and Development Study Group. , 1992, Radiology.

[22]  R. Tadmor,et al.  Intracranial hemorrhage in patients with hemophilia. , 1986, Neurosurgery.

[23]  S. Solovieva.  Clinical severity of disease, functional disability and health-related quality of life. Three-year follow-up study of 150 Finnish patients with coagulation disorders. , 2001 .

[24]  A. Messori,et al.  Multivariate analysis of factors influencing quality of life and utility in patients with haemophilia. , 2001, Haematologica.

[25]  B. Feldman,et al.  Distinction of quality of life, health related quality of life, and health status in children referred for rheumatologic care. , 2000, The Journal of rheumatology.

[26]  J. Fernández,et al.  Update of 156 episodes of central nervous system bleeding in hemophiliacs. , 1992, Haemostasis.