Independence does not come with the method – treatment of neurogenic bowel dysfunction in children with myelomeningocele

The aim was to evaluate and compare different bowel regimes with regard to satisfaction, faecal incontinence and independence, and the relationship to quality of life among children with myelomeningocele (MMC).

[1]  Domján Andrea,et al.  World Medical Association Declaration of Helsinki (WMA) - Ethical principles for medical research involving human subjects , 2014 .

[2]  P. Metcalfe,et al.  Outcomes following fecal continence procedures in patients with neurogenic bowel dysfunction. , 2013, The Journal of urology.

[3]  U. Jodal,et al.  Adults with myelomeningocele: an interview study about life situation and bladder and bowel management. , 2013, Journal of pediatric urology.

[4]  M. Dijkgraaf,et al.  Functional defecation disorders in children with lower urinary tract symptoms. , 2013, The Journal of urology.

[5]  S. Mattsson,et al.  Children with myelomeningocele and independence in the toilet activity: A pilot study , 2013, Scandinavian journal of occupational therapy.

[6]  L. Bray,et al.  An evidence-based review of the use of transanal irrigation in children and young people with neurogenic bowel , 2012, Spinal Cord.

[7]  Eun Young Chang,et al.  Long-term outcome of left- vs right-sided antegrade continence enema. , 2012, Journal of pediatric surgery.

[8]  Å. Bartonek,et al.  Health‐related quality of life and ambulation in children with myelomeningocele in a Swedish population , 2012, Acta paediatrica.

[9]  T. Falkmer,et al.  Children and youth with myelomeningocele’s independence in managing clean intermittent catheterization in familiar settings , 2011, Acta paediatrica.

[10]  C. Di Lorenzo,et al.  Effect of rectal distention on lower urinary tract function in children. , 2010, The Journal of urology.

[11]  A. Kulkarni.  Quality of life in childhood hydrocephalus: a review , 2010, Child's Nervous System.

[12]  Daisuke Matsuno,et al.  The role of the retrograde colonic enema in children with spina bifida: is it inferior to the antegrade continence enema? , 2010, Pediatric Surgery International.

[13]  A. Emmanuel,et al.  Review of the efficacy and safety of transanal irrigation for neurogenic bowel dysfunction , 2010, Spinal Cord.

[14]  A. Gasbarrini,et al.  Transanal irrigation in myelomeningocele children: an alternative, safe and valid approach for neurogenic constipation , 2010, Spinal Cord.

[15]  Satu-Liisa Pauniaho,et al.  After the honeymoon comes divorce: long-term use of the antegrade continence enema procedure. , 2009, Journal of pediatric surgery.

[16]  C. Butler,et al.  Left Antegrade Continent Enema (LACE): review of the literature. , 2008, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie.

[17]  A. Kulkarni,et al.  Comparing children’s and parents’ perspectives of health outcome in paediatric hydrocephalus , 2008, Developmental medicine and child neurology.

[18]  R. Tarazi,et al.  Age-related Differences in Executive Function Among Children with Spina Bifida/Hydrocephalus Based on Parent Behavior Ratings , 2008, The Clinical neuropsychologist.

[19]  L. Goetz,et al.  Neurogenic Bowel Dysfunction , 2008 .

[20]  M. Van Winckel,et al.  Achieving fecal continence in patients with spina bifida: a descriptive cohort study. , 2007, The Journal of urology.

[21]  Tasha M Burwinkle,et al.  Impaired health-related quality of life in children and adolescents with chronic conditions: a comparative analysis of 10 disease clusters and 33 disease categories/severities utilizing the PedsQL™ 4.0 Generic Core Scales , 2007, Health and quality of life outcomes.

[22]  J. Pope,et al.  Prospective, longitudinal evaluation of health related quality of life in the pediatric spina bifida population undergoing reconstructive urological surgery. , 2006, The Journal of urology.

[23]  S. Laurberg,et al.  Neurogenic bowel dysfunction score , 2006, Spinal Cord.

[24]  T. Reinfjell,et al.  Measuring health-related quality of life in young adolescents: Reliability and validity in the Norwegian version of the Pediatric Quality of Life Inventory™ 4.0 (PedsQL) generic core scales , 2006, Health and quality of life outcomes.

[25]  S. Mattsson,et al.  Tap‐water enema for children with myelomeningocele and neurogenic bowel dysfunction , 2006, Acta paediatrica.

[26]  M. Post,et al.  Functional independence among young adults with spina bifida, in relation to hydrocephalus and level of lesion , 2006, Developmental medicine and child neurology.

[27]  J. Varni,et al.  The PedsQL™ as a pediatric patient-reported outcome: reliability and validity of the PedsQL™ Measurement Model in 25,000 children , 2005, Expert review of pharmacoeconomics & outcomes research.

[28]  Michael Seid,et al.  The PedsQL 4.0 as a pediatric population health measure: feasibility, reliability, and validity. , 2003, Ambulatory pediatrics : the official journal of the Ambulatory Pediatric Association.

[29]  B. Edwin,et al.  Appendicostomy for antegrade enema: effects on somatic and psychosocial functioning in children with myelomeningocele. , 2002, Pediatrics.

[30]  R. Adams,et al.  Decision-making for a successful bowel continence program. , 2000, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie.