A Randomized Trial to Train Vulnerable Primary Care Patients to Use a Patient Portal

Background: Patient portals are becoming ubiquitous. Previous research has documented substantial barriers, especially among vulnerable patient subgroups such as those with lower socioeconomic status or limited health literacy (LHL). We tested the effectiveness of delivering online, video-based portal training to patients in a safety net setting. Methods: We created an online video curriculum about accessing the San Francisco Health Network portal, and then randomized 93 English-speaking patients with 1+ chronic diseases to receive 1) an in-person tutorial with a research assistant, or 2) a link to view the videos on their own. We also examined a third, nonrandomized usual care comparison group. The primary outcome was portal log-in (yes/no) 3 to 6 months post-training, assessed via the electronic health record. Secondary outcomes were self-reported attitudes and skills collected via baseline and follow-up surveys. Results: Mean age was 54 years, 51% had LHL, 60% were nonwhite, 52% were female, 45% reported fair/poor health, and 76% reported daily Internet use. At followup, 21% logged into the portal, with no differences by arm (P = .41), but this was higher than the overall clinic rate of 9% (P < .01) during the same time period. We found significant prepost improvements in self-rated portal skills (P = .03) and eHealth literacy (P < .01). Those with LHL were less likely to log in post-training (P < .01). Conclusions: Both modalities of online training were comparable, and neither mode enabled a majority of vulnerable patients to use portals, especially those with LHL. This suggests that portal training will need to be more intensive or portals need improved usability to meaningfully increase use among diverse patients.

[1]  K. Lorig,et al.  Effect of a self-management program on patients with chronic disease. , 2001, Effective clinical practice : ECP.

[2]  J. Manson,et al.  A prospective study of self-reported sleep duration and incident diabetes in women. , 2003, Diabetes care.

[3]  E. Boyko,et al.  Brief questions to identify patients with inadequate health literacy. , 2004, Family medicine.

[4]  Sarah M. Greene,et al.  Development and Validation of the Patient Assessment of Chronic Illness Care (PACIC) , 2005, Medical care.

[5]  F. Mostashari Office of the National Coordinator for Health Information Technology Attention: Governance RFI , 2005 .

[6]  Cameron D. Norman,et al.  eHEALS: The eHealth Literacy Scale , 2006, Journal of medical Internet research.

[7]  Gregory E. Simon,et al.  Patient Use of Secure Electronic Messaging Within a Shared Medical Record: A Cross-sectional Study , 2009, Journal of General Internal Medicine.

[8]  T. Koepsell,et al.  Use of a Shared Medical Record With Secure Messaging by Older Patients With Diabetes , 2010, Diabetes Care.

[9]  Robert Nguyen,et al.  The Literacy Divide: Health Literacy and the Use of an Internet-Based Patient Portal in an Integrated Health System—Results from the Diabetes Study of Northern California (DISTANCE) , 2010, Journal of health communication.

[10]  R. Hasnain-Wynia,et al.  Disparities in Enrollment and Use of an Electronic Patient Portal , 2011, Journal of General Internal Medicine.

[11]  Alissa L. Russ,et al.  Lessons learned from usability testing of the VA's personal health record , 2011, J. Am. Medical Informatics Assoc..

[12]  Robert Nguyen,et al.  Social disparities in internet patient portal use in diabetes: evidence that the digital divide extends beyond access , 2011, J. Am. Medical Informatics Assoc..

[13]  Courtney R Lyles,et al.  Patient Race/Ethnicity and Shared Medical Record Use Among Diabetes Patients , 2012, Medical care.

[14]  Neil M. Paige,et al.  Electronic Patient Portals: Evidence on Health Outcomes, Satisfaction, Efficiency, and Attitudes , 2013, Annals of Internal Medicine.

[15]  Diane P. Martin,et al.  Glycemic Control Associated With Secure Patient-Provider Messaging Within a Shared Electronic Medical Record , 2013, Diabetes Care.

[16]  Snapshots of diabetes care in Canada. , 2014, Canadian journal of diabetes.

[17]  S. Czaja,et al.  The Impact of Numeracy Ability and Technology Skills on Older Adults’ Performance of Health Management Tasks Using a Patient Portal , 2014, Journal of applied gerontology : the official journal of the Southern Gerontological Society.

[18]  Robert Nguyen,et al.  Use of the Refill Function Through an Online Patient Portal is Associated With Improved Adherence to Statins in an Integrated Health System , 2013, Medical care.

[19]  James R. Lewis,et al.  Usability: Lessons Learned … and Yet to Be Learned , 2014, Int. J. Hum. Comput. Interact..

[20]  Michael S. Wolf,et al.  Disparities in registration and use of an online patient portal among older adults: findings from the LitCog cohort , 2015, J. Am. Medical Informatics Assoc..

[21]  Taya Irizarry,et al.  Patient Portals and Patient Engagement: A State of the Science Review , 2015, Journal of medical Internet research.

[22]  Urmimala Sarkar,et al.  Barriers and Facilitators to Online Portal Use Among Patients and Caregivers in a Safety Net Health Care System: A Qualitative Study , 2015, Journal of medical Internet research.

[23]  C. Kruse,et al.  The Effect of Patient Portals on Quality Outcomes and Its Implications to Meaningful Use: A Systematic Review , 2015, Journal of medical Internet research.

[24]  Sara J. Czaja,et al.  The Usability of Electronic Personal Health Record Systems for an Underserved Adult Population , 2015, Hum. Factors.

[25]  C. Lyles,et al.  Connecting the Dots: Health Information Technology Expansion and Health Disparities , 2015, PLoS medicine.

[26]  Courtney R. Lyles,et al.  Refilling medications through an online patient portal: consistent improvements in adherence across racial/ethnic groups , 2016, J. Am. Medical Informatics Assoc..

[27]  Terhilda Garrido,et al.  “I Want to Keep the Personal Relationship With My Doctor”: Understanding Barriers to Portal Use among African Americans and Latinos , 2016, Journal of medical Internet research.

[28]  Amy Allen,et al.  Patient Portal as a Tool for Enhancing Patient Experience and Improving Quality of Care in Primary Care Practices , 2017, EGEMS.

[29]  Heather Angier,et al.  Patterns of Electronic Portal Use among Vulnerable Patients in a Nationwide Practice-based Research Network: From the OCHIN Practice-based Research Network (PBRN) , 2016, The Journal of the American Board of Family Medicine.

[30]  Amanda Terry,et al.  Implementing and using a patient portal: a qualitative exploration of patient and provider perspectives on engaging patients , 2016, BMJ Health & Care Informatics.

[31]  Sara Czaja,et al.  Patient Portals as a Tool for Health Care Engagement: A Mixed-Method Study of Older Adults With Varying Levels of Health Literacy and Prior Patient Portal Use , 2017, Journal of medical Internet research.

[32]  Jim Fruchterman,et al.  Legal, Practical, and Ethical Considerations for Making Online Patient Portals Accessible for All. , 2017, American journal of public health.

[33]  Bolanle A. Olaniran,et al.  Comparison of Health Information Technology Use Between American Adults With and Without Chronic Health Conditions: Findings From The National Health Interview Survey 2012 , 2017, Journal of medical Internet research.

[34]  Courtney R. Lyles,et al.  Online patient websites for electronic health record access among vulnerable populations: portals to nowhere? , 2017, J. Am. Medical Informatics Assoc..