Signs of Inequality? Variations in Providing Home Health Care Across Care Organizations and Across European Countries in the IBenC Study

Most countries aim to allocate home health care to those in need in a fair and equal way. Equal allocation implies that the amount of home care a person receives would reflect the level of health impairment and the need for resources. It is not clear whether countries succeed in attaining this. Our objective was to explore signs of (un)equal home health care provisioning across care organizations and across European health countries. We used data of the IBenC study collected from 2718 older community care recipients from 33 organizations in 6 Western European countries (www.ibenc.eu). We benchmarked differences of provided and expected formal care time across organizations and countries. Expected formal care hours were estimated by multiplying the overall sample’s mean formal hours with recipients’ case mix weights from interRAI’s resources utilization group profiles. We found substantial variations in provided formal care time among organizations both within and across countries that could not be explained by the case mix differences of recipients. This implied presence of inequality of home care provisioning. These findings may alert professionals and policy makers striving for equal home health care provisioning for dependent older persons.

[1]  M. Wagner,et al.  Long-term Care Provision and the Well-Being of Spousal Caregivers: An Analysis of 138 European Regions , 2017, The journals of gerontology. Series B, Psychological sciences and social sciences.

[2]  Ellen Verbakel,et al.  How to understand informal caregiving patterns in Europe? The role of formal long-term care provisions and family care norms , 2017, Scandinavian journal of public health.

[3]  C. Hertogh,et al.  The occurrence and persistence of thoughts of suicide, self‐harm and death in family caregivers of people with dementia: a longitudinal data analysis over 2 years , 2017, International journal of geriatric psychiatry.

[4]  G. Onder,et al.  Organizational home care models across Europe: A cross sectional study. , 2018, International journal of nursing studies.

[5]  H. Legido-Quigley,et al.  “I Can't Do This Alone”: a study on foreign domestic workers providing long-term care for frail seniors at home , 2017, International Psychogeriatrics.

[6]  T. Eikemo,et al.  Informal care in Europe: findings from the European Social Survey (2014) special module on the social determinants of health , 2017, European journal of public health.

[7]  G. Onder,et al.  Convergent validity of the interRAI-HC for societal costs estimates in comparison with the RUD Lite instrument in community dwelling older adults , 2016, BMC Health Services Research.

[8]  Graziano Onder,et al.  Substantial between-country differences in organising community care for older people in Europe-a review. , 2016, European journal of public health.

[9]  Philip Scheltens,et al.  The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia: who is at the greatest risk? , 2015, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[10]  G. Weber,et al.  Ageing in Europe: Supporting policies for an inclusive society , 2015 .

[11]  C. Orso,et al.  Eligibility Regulations and formal home-care utilisation among the vulnerable older people in SHARE wave 5 , 2015 .

[12]  R. Adelman,et al.  Caregiver burden: a clinical review. , 2014, JAMA.

[13]  Allen Hutchinson,et al.  Home care across Europe : current structure and future challenges , 2012 .

[14]  D McDaid,et al.  The economic impact of dementia in Europe in 2008—cost estimates from the Eurocode project , 2011, International journal of geriatric psychiatry.

[15]  T. Tilburg,et al.  Informal and formal home-care use among older adults in Europe: can cross-national differences be explained by societal context and composition? , 2011, Ageing and Society.

[16]  A. Zbrozek,et al.  The resource utilization in dementia (RUD) instrument is valid for assessing informal care time in community-living patients with dementia , 2010, The journal of nutrition, health & aging.

[17]  P. Scheltens,et al.  Incidence of depression and anxiety in the spouses of patients with dementia: a naturalistic cohort study of recorded morbidity with a 6-year follow-up. , 2010, The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry.

[18]  Eric Bonsang Does informal care from children to their elderly parents substitute for formal care in Europe? , 2009, Journal of health economics.

[19]  J. Hirdes,et al.  Reliability of the interRAI suite of assessment instruments: a 12-country study of an integrated health information system , 2008, BMC health services research.

[20]  P. Lundborg,et al.  Your next of kin or your own career? Caring and working among the 50+ of Europe. , 2008, Journal of health economics.

[21]  J. Hirdes,et al.  Validation of Resource Utilization Groups Version III for Home Care (RUG-III/HC): Evidence From a Canadian Home Care Jurisdiction , 2008, Medical care.

[22]  J. Hirdes,et al.  A Review of Evidence on the Reliability and Validity of Minimum Data Set Data , 2008, Healthcare management forum.

[23]  P. Lundborg,et al.  Informal and formal care among single-living elderly in Europe. , 2008, Health economics.

[24]  M. Schroll,et al.  Community care in Europe. The Aged in HOme Care project (AdHOC) , 2004, Aging clinical and experimental research.

[25]  M. Björkgren,et al.  A RUG-III Case-Mix System for Home Care* , 2000, Canadian Journal on Aging / La Revue canadienne du vieillissement.

[26]  B E Fries,et al.  Scaling ADLs within the MDS. , 1999, The journals of gerontology. Series A, Biological sciences and medical sciences.

[27]  Brant E. Fries,et al.  Validity and reliability of Resource Utilization Groups (RUG-III) in Finnish long-term care facilities , 1999, Scandinavian journal of public health.

[28]  N. Ikegami,et al.  Comprehensive Clinical Assessment in Community Setting: Applicability of the MDS‐HC , 1997, Journal of the American Geriatrics Society.

[29]  D. Mehr,et al.  MDS Cognitive Performance Scale. , 1994, Journal of gerontology.