“Dignity”: A central construct in nursing home staff understandings of quality continence care

AIMS AND OBJECTIVES To explore nursing home staff members' beliefs and expectations about what constitutes "quality continence care" for people living in nursing homes. BACKGROUND Most nursing home residents require assistance to maintain continence or manage incontinence. Best practice guidelines promote active investigation of incontinence, treatment of underlying potentially reversible causes, and initial conservative interventions to prevent, minimise and/or treat incontinence. Despite research showing the positive benefits of implementing active interventions, translating the findings of research into practice in nursing homes has been modest. Understanding the perspectives of individuals who provide continence care may help bridge the gap between evidence and practice. DESIGN A qualitative exploratory descriptive design. METHODS Qualitative interviews were conducted with 19 nursing home staff: eight registered nurses, four enrolled nurses and seven personal care workers working in a nursing home in Australia between 2014-2015. Data were analysed inductively to identify themes and subthemes that described and explained staff beliefs about quality continence care in nursing homes. FINDINGS Participants' understanding and expectations about quality continence care were linked to beliefs about incontinence being an intractable and undignified condition in nursing homes. The key theme to emerge was "protecting residents' dignity" which was supported by the following six subthemes: (i) using pads, ii) providing privacy, (iii) knowing how to "manage" incontinence, (iv) providing timely continence care, (v) considering residents' continence care preferences and (vi) communicating sensitively. CONCLUSION The findings provide new insight into the basis for continence care practices in nursing homes. Education about continence care should challenge beliefs that limit continence care practice to cleaning, containing and concealing incontinence. There is a need for a multidimensional framework that is informed by social, psychological and biomedical research about incontinence, research about the fundamental elements of care, care-dependent individuals' expectations about care, and values about dignity and care. RELEVANCE TO CLINICAL PRACTICE The in-depth exploration led to an understanding of the basis for continence care practices that centre on cleaning, containing and concealing residents' incontinence in some nursing homes. There is a need to review the quality of education for the aged care workforce about incontinence to ensure it equips them with a broad understanding of the fundamentals of care and how to enact dignity in continence care through a resident-centred approach.

[1]  Joshua Healy,et al.  The aged care workforce 2012: final report , 2012 .

[2]  J. Kleijnen,et al.  Can incontinence be cured? A systematic review of cure rates , 2017, BMC Medicine.

[3]  A. Hutchinson,et al.  Learning to accept incontinence and continence care in residential aged care facilities: Family members' experiences , 2016 .

[4]  L. Burgio,et al.  Teaching and maintaining behavior management skills with nursing assistants in a nursing home. , 1998, The Gerontologist.

[5]  C. Alessi,et al.  Translating Clinical Research into Practice: A Randomized Controlled Trial of Exercise and Incontinence Care with Nursing Home Residents , 2002, Journal of the American Geriatrics Society.

[6]  M. Hopman-Rock,et al.  Does improved functional performance help to reduce urinary incontinence in institutionalized older women? a multicenter randomized clinical trial , 2012, BMC Geriatrics.

[7]  Efrat Shadmi,et al.  In‐Hospital Use of Continence Aids and New‐Onset Urinary Incontinence in Adults Aged 70 and Older , 2011, Journal of the American Geriatrics Society.

[8]  L. Millar,et al.  Incontinence: managed or mismanaged in hospital settings? , 2008, International journal of nursing practice.

[9]  Lennart Nordenfelt,et al.  Dignity of the elderly: An introduction , 2003, Medicine, health care, and philosophy.

[10]  B. O'Connell,et al.  A suite of evidence‐based continence assessment tools for residential aged care , 2011, Australasian journal on ageing.

[11]  T. Dassen,et al.  Prevalence of urinary incontinence and associated risk factors in nursing home residents: A systematic review , 2009, Neurourology and urodynamics.

[12]  M. Wilde,et al.  Management using continence products , 2013 .

[13]  D. Lekan-Rutledge,et al.  Bladder management in adult care homes. Review of a program in North Carolina. , 2003, Journal of gerontological nursing.

[14]  B. Roe,et al.  Prompted voiding for the management of urinary incontinence in adults. , 2000, The Cochrane database of systematic reviews.

[15]  Martin Guha,et al.  The Sage Handbook of Qualitative Research (3rd edition) , 2006 .

[16]  M. Jirovec The impact of daily exercise on the mobility, balance and urine control of cognitively impaired nursing home residents. , 1991, International journal of nursing studies.

[17]  R. Mayer,et al.  Use of the Agency for Health Care Policy and Research Urinary Incontinence Guideline in Nursing Homes , 2003, Journal of the American Geriatrics Society.

[18]  C. Dubeau,et al.  Knowledge and attitudes of nursing home staff and surveyors about the revised federal guidance for incontinence care. , 2007, The Gerontologist.

[19]  Ruth Kirschner-Hermanns,et al.  Incontinence in frail older persons , 2017 .

[20]  B. Resnick,et al.  Nursing Staff Beliefs and Expectations About Continence Care in Nursing Homes , 2006, Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society.

[21]  R. Bernabei,et al.  Urinary incontinence in nursing home residents: a cross-national comparison. , 1997, Age and ageing.

[22]  J. Profetto-McGrath,et al.  Defining the fundamentals of care. , 2010, International journal of nursing practice.

[23]  L. Burgio,et al.  Behavioral treatment for urinary incontinence in elderly inpatients: Initial attempts to modify prompting and toileting procedures , 1988 .

[24]  M. Palmer,et al.  Risk factors for urinary incontinence one year after nursing home admission. , 1991, Research in nursing & health.

[25]  Brenda Roe,et al.  Systematic review of the management of incontinence and promotion of continence in older people in care homes: descriptive studies with urinary incontinence as primary focus , 2011, Journal of advanced nursing.

[26]  D. Lekan-Rutledge,et al.  Diffusion of innovation. A model for implementation of prompted voiding in long-term care settings. , 2000, Journal of gerontological nursing.

[27]  S. Lyons How do people make continence care happen? An analysis of organizational culture in two nursing homes. , 2010, The Gerontologist.

[28]  Distance learning: a strategy for improving incontinence care in nursing homes. , 2010, The Gerontologist.

[29]  Pam Jones Nurses and patients , 1944 .

[30]  G. Harkless,et al.  Unit-Based Intervention to Improve Urinary Incontinence in Frail Elderly , 2007 .

[31]  Anna Rahman,et al.  Implementing toileting trials in nursing homes: evaluation of a dissemination strategy. , 2014, Geriatric nursing.

[32]  A. Mykletun,et al.  Pad per day usage, urinary incontinence and urinary tract infections in nursing home residents. , 2010, Age and ageing.

[33]  K. Karlowicz Evaluation of the Urinary Incontinence Scales to measure change after experiential learning: a pilot study. , 2009, Urologic nursing.

[34]  D. Lekan-Rutledge,et al.  In their own words: nursing assistants' perceptions of barriers to implementation of prompted voiding in long-term care. , 1998, The Gerontologist.

[35]  R. D. de Bie,et al.  Prevalence and incidence of urinary incontinence of Swiss nursing home residents at admission and after six, 12 and 24 months. , 2008, Journal of clinical nursing.

[36]  J. Helbostad,et al.  Effect of physical training on urinary incontinence: a randomized parallel group trial in nursing homes , 2012, Clinical interventions in aging.

[37]  M. Palmer Nurses' knowledge and beliefs about continence interventions in long-term care. , 1995, Journal of advanced nursing.

[38]  I. Kowanko,et al.  Nurses' and patients' perceptions of dignity. , 2002, International journal of nursing practice.

[39]  M. Kutner,et al.  Functional Incidental Training: A Randomized, Controlled, Crossover Trial in Veterans Affairs Nursing Homes , 2005, Journal of the American Geriatrics Society.

[40]  P. Macrae,et al.  Functional Incidental Training, Mobility Performance, and Incontinence Care with Nursing Home Residents , 1995, Journal of the American Geriatrics Society.

[41]  E. Keeler,et al.  A Cost and Value Analysis of Two Interventions with Incontinent Nursing Home Residents , 1995, Journal of the American Geriatrics Society.

[42]  E. Hay-Smith,et al.  Pelvic floor muscle training versus no treatment, or inactive control treatments, for urinary incontinence in women. , 2014, The Cochrane database of systematic reviews.

[43]  P. Wainwright,et al.  Dignity in the care of older people – a review of the theoretical and empirical literature , 2008, BMC nursing.

[44]  C. Estabrooks,et al.  Health care aides use of time in a residential long-term care unit: a time and motion study. , 2013, International journal of nursing studies.

[45]  R. D. de Bie,et al.  Nurses' knowledge and practice about urinary incontinence in nursing home care. , 2008, Nurse education today.

[46]  N. Denzin,et al.  The SAGE handbook of qualitative research , 2005 .

[47]  The ICN code of ethics for nurses. , 2001, Nursing ethics.

[48]  M. Freundl,et al.  Urinary incontinence in the elderly: knowledge and attitude of long-term care staff. , 1992, Geriatric nursing.

[49]  C. Mueller,et al.  Translating Research on Incontinence Into Practice , 2004, Nursing research.

[50]  S. Hutchinson,et al.  Toileting: a biobehavioral challenge in Alzheimer's dementia care. , 1996, Journal of gerontological nursing.

[51]  G. Brandeis,et al.  The Prevalence of Potentially Remediable Urinary Incontinence in Frail Older People: A Study Using the Minimum Data Set , 1997, Journal of the American Geriatrics Society.

[52]  J. Ostaszkiewicz Providing Continence Care in Residential Aged Care Facilities: A Grounded Theory Study , 2013 .

[53]  M. Ribbe,et al.  Urinary Incontinence in Disabled Elderly Women: A Randomized Clinical Trial on the Effect of Training Mobility and Toileting Skills to Achieve Independent Toileting , 2007, Gerontology.

[54]  V. Reed,et al.  The meaning of incontinence in dementia care. , 2005, The international journal of psychiatric nursing research.

[55]  J. Billings,et al.  Involving Older Users of Continence Services in Developing Standards of Care: A Pilot Study - Final Report on Stage 3 , 2004 .

[56]  J. Wyman,et al.  Shaping Future Directions for Incontinence Research in Aging Adults: Executive Summary , 2004, Nursing research.

[57]  J. Billings Privacy and Dignity in Continence Care for Older People , 2008 .

[58]  L. Nordenfelt The Varieties of Dignity , 2004, Health Care Analysis.

[59]  A. Akpan,et al.  Privacy for Defecation and Fecal Incontinence in Older Adults , 2006, Journal of wound, ostomy, and continence nursing : official publication of The Wound, Ostomy and Continence Nurses Society.

[60]  J. Colling,et al.  Effect of an incontinence training program on nursing home staff's knowledge, attitudes, and behavior. , 1991, The Gerontologist.