A Systematic Review of Practice Standards and Research Ethics in Technology-Based Home Health Care Intervention Programs for Older Adults

Objective: The purpose of the review is to assess frequencies of reporting adherence to professional practice standards and research ethics in studies of technology-based home health care programs. Methods: Key databases were searched to yield 2,866 abstracts that were independently rated by two reviewers using inclusion-exclusion criteria, resulting in 107 articles that were then reviewed for reports of practice standards and research ethics. Results: Issues related to professional practice standards and research ethics were not well reported. When reported, adherence to practice standards included preintervention training, use of intervention protocols, supervision, and mechanisms for risk management. Research ethics most commonly reported were informed consent, REB/IRB approval, and protection of privacy. Discussion: The results raise questions as to whether practice standards and research ethics are addressed sufficiently when health service delivery occurs in technology-based environments. Guidelines for professional accountability in e-health service delivery are needed.

[1]  J. Karlawish,et al.  What is the Quality of the Reporting of Research Ethics in Publications of Nursing Home Research? , 1999, Journal of the American Geriatrics Society.

[2]  B Stanberry,et al.  The legal and ethical aspects of telemedicine. 2: Data protection, security and European law , 1998, Journal of telemedicine and telecare.

[3]  D. Sackett Evidence-based medicine: how to practice and teach EBM: 2nd ed , 2000 .

[4]  M. Martínez-González,et al.  Methodological quality and reporting of ethical requirements in clinical trials , 2001, Journal of medical ethics.

[5]  A. Risk,et al.  e-Health Code of Ethics (May 24) , 2000, Journal of medical Internet research.

[6]  R. Schulz,et al.  Health Stresses and Depressive Symptomatology in the Elderly , 2004 .

[7]  Patrice Renaud,et al.  Delivering cognitive-behavior therapy for panic disorder with agoraphobia in videoconference. , 2004, Telemedicine journal and e-health : the official journal of the American Telemedicine Association.

[8]  Christian Köhler,et al.  Does the internet harm health? Database of adverse events related to the internet has been set up. , 2002, BMJ.

[9]  C. Regehr,et al.  Clinical, Ethical, and Legal Issues in E-therapy , 2003 .

[10]  R. Scott,et al.  The socio-economic impact of telehealth: A systematic review , 2003, Journal of telemedicine and telecare.

[11]  Christian Köhler,et al.  How do consumers search for and appraise health information on the world wide web? Qualitative study using focus groups, usability tests, and in-depth interviews , 2002, BMJ : British Medical Journal.

[12]  HON code of conduct for medical and health Web sites. , 2000, American journal of health-system pharmacy : AJHP : official journal of the American Society of Health-System Pharmacists.

[13]  B Stanberry,et al.  Legal and ethical aspects of telemedicine , 1998, Journal of telemedicine and telecare.

[14]  A R Jadad,et al.  Assessing the quality of reports of randomized clinical trials: is blinding necessary? , 1996, Controlled clinical trials.

[15]  L. Roberts,et al.  An Invitation for Medical Educators to Focus on Ethical and Policy Issues in Research and Scholarly Practice , 2001, Academic medicine : journal of the Association of American Medical Colleges.

[16]  K. Bauer,et al.  Home-Based Telemedicine: A Survey of Ethical Issues , 2001, Cambridge Quarterly of Healthcare Ethics.

[17]  R. Roush,et al.  Reduced Hospitalization Rates of Two Sets of Community-Residing Older Adults After Use of a Personal Response System , 1997 .

[18]  U. Ravnskov Diet-heart disease hypothesis is wishful thinking , 2002, BMJ : British Medical Journal.

[19]  K. Haver,et al.  Cystic fibrosis on the Internet: a survey of site adherence to AMA guidelines. , 2004, Pediatrics.

[20]  C. Childress,et al.  Ethical Issues in Providing Online Psychotherapeutic Interventions , 2000, Journal of medical Internet research.

[21]  Robert Kiley,et al.  Does the internet harm health? , 2002, BMJ : British Medical Journal.

[22]  M. Winker,et al.  Guidelines for medical and health information sites on the internet: principles governing AMA web sites. American Medical Association. , 2000, JAMA.

[23]  D Moher,et al.  The CONSORT statement: revised recommendations for improving the quality of reports of parallel-group randomized trials. , 2001, Annals of internal medicine.

[24]  N. Weiss,et al.  E-mail consultation: clinical, financial, legal, and ethical implications. , 2004, Surgical neurology.

[25]  Peter Jüni,et al.  Quality of reporting of randomized trials as a measure of methodologic quality. , 2002, JAMA.

[26]  B Stanberry,et al.  Telemedicine: barriers and opportunities in the 21st century , 2000, Journal of internal medicine.

[27]  B Stanberry,et al.  The legal and ethical aspects of telemedicine. 3: Telemedicine and malpractice , 1998, Journal of telemedicine and telecare.

[28]  C. Infante-Rivard,et al.  A Telephone Support Service to Reduce Medical Care Use Among the Elderly , 1988, Journal of the American Geriatrics Society.

[29]  R. Roine,et al.  Assessing telemedicine: a systematic review of the literature. , 2001, CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne.

[30]  K. Dyer,et al.  Ethical Challenges of Medicine and Health on the Internet: A Review , 2001, Journal of medical Internet research.

[31]  D. Gustafson,et al.  An Evidence-Based Approach to Interactive Health Communication: A Challenge to Medicine in the Information Age , 1998 .

[32]  D. Sackett Evidence-Based Medicine: How to Practice and Teach EBM , 2018 .

[33]  G Eysenbach,et al.  Labeling and Filtering of Medical Information on the Internet , 1999, Methods of Information in Medicine.

[34]  T R Lied,et al.  Performance: a multi-disciplinary and conceptual model. , 1999, Journal of evaluation in clinical practice.

[35]  A. Jadad Randomised Controlled Trials: A User's Guide , 1998 .

[36]  T Sheldon,et al.  Promoting health care quality: what role performance indicators? , 1998, Quality in health care : QHC.